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Hello. I was just diagnosed as possibley having celiace disease. I'm not sure what do i do about it and what are some of the problems associated with this disease, what symptoms?

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Hi has anybody experience severe bruising and anemia with celiac disease I also get tired alot.

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Fatigue is the #1 sympton of celiac disease. Anemia is right up there too. If your villi are damaged then you are not absorbing all the iron and other supplements.

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Chasefamily, Hi and welcome. :) The first thing to do when you are diagnosed with Celiac is immediately begin a gluten-free diet and stick to it for the rest of your life. That is the only way the symptoms will stop and your body will begin to heal. WHen and how were you diagnosed? Have you started a gluten-free diet yet? It is hard in the beginning but it does get easier, I promise!

Most people have the common GI probs such as:

diarrhea

nausea

weight loss

abdominal pain

cramps

etc...

and yes anemia can be a symptom too for some people. I personally do not have a problem with anemia but I have always bruised easily. Maybe someone else will be along soon to answer your questions.

Here is a link about Celiac symptoms:

Symptoms of Celiac

Here are some other helpful links:

Safe & Forbidden Food & Ingredient Lists for Gluten-Free Diet

Info on Celiac

http://www.glutenfreedrugs.com/

This is a post that one of our members started (thank you Jessica), which has a TON of links with great information, I thought you may want to look through them!

Info link

I hope this helps you :rolleyes:

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thanks for the quick reply. I have been to several doctors over the last few years for multiple problems. I see a hemotologists regulary for Essential thrombytosis and low ferritin level, plus severe bruising, I have been going ther since 1997, I was having bleeding problems and had to have emergency hysterectomy because I wouldn;t stop bleeding ever since that I have had problems with my iron count and have been on and off of iron medication since 97 but still bruise alot and always tired, I reciently went to a GI doctor for acid reflux problems and food coming back into my esophagus and he is the one who thought I might have celiac disease after reading all of my medical info. I am scheduled to have endoscopy the end of this moneth but he did not tell me to start a gluten free diet yet?

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Hi Chase family and welcome!

I would advise you not to go gluten free until the

Endoscopy is done. If you start to eat gluten

free now it will affect your biopsy and blood

test. Have you had the blood test yet? My

GI doc did a celiac panel, I tested Neg for

the gene but positive for the IgA (75). I was

retested in 6 mos, my level is still somewhat

elevated. My doc said to try foods again one

by one to see how I react, I did this but

found I still cannot tolerate wheat or dairy.

My advice to you is to keep a journal of

what you consume as you will probably have

some "gluten accidents" from time to time.

Try to learn as much as you can about

this disease because my doc told me to

avoid wheat, rye, oats, and distilled vinegar!(DUH)

Get in the habit of readin all the labels, at first

it seems overwhelming. Try to come to this website

every day. There are plenty of people ready

to help you. Hope this helps.

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    • Ok, I can't seem to find my first lot of blood tests that were done for Celiac screening, they did include TTG I remember that much, and I am getting another copy of it but another test did come in today.  I don't know how different tests are done around the world and I don't get all the medical jargon but this is what it states, ******************************************************************************* HLA DR/DQ Genotyping for Coeliac Disease, Specimen type : EDTA blood Method : Detection of sequence-specific oligonucleotides (Gen-Probe). HLA-DR - 1, 13          DRB1 - 01, 13 HLA-DQ - 5,6        HLA-DQA1 - 5,6      HLA-DB1 - 05, 06 Interpretation : No genotype susceptibility for coeliac disease.  The DQ2 and DQ8 antigens associated with increased risk of coeliac disease were not identified in this patient.  In the absence of these antigens, coeliac disease is extremely unlikely.   *******************************************************************************   I have read the horror stories of blood tests and scope biopsies not be done right or flawed but here is what I do know as of now, At the moment the most non invasive test I can have done say negative.  I have double scopes (endoscopy and colonoscopy) booked for the 12th of October with results from biopsies expected a week or two after. Chances are they will show, a) signs of coeliac disease (even if the odds are low it can still happen), b) show signs of something else entirely and we will be busy dealing with the ramifications of that or c) it will show no signs of coeliac but I will still be suffering from gluten sensitivity (which is harder/impossible to measure clinically). My GP has told me that stress and anxiety can be a cause of all the symptoms I have been experiencing and suggests if the scopes show nothing that I may benefit from something to treat anxiety, i.e. antidepressants.  Not in a, "Oh we don't know what it is so have these," kind of way, he agrees with the thought that the scopes could indeed show coeliac, something else or even be negative. I did tell him that I could have a sensitivity and that even without benefit of clinical results, some people have gone on a gluten elimination diet for a period of time to see if they get any relief.  My question is this, if the scopes come up negative and I try eliminating gluten, how long would it be before I saw any results or improvements?  I have read enough here and elsewhere to know that everybody is different, some see results within days, some see results longer but are there any guidelines for how long a test like this should be undertaken for?  I have heard everything thing from two weeks to two months.  All of this is entirely moot at this point but I know that even if the results said clear, there would always be a little part of me that wonders if it could be a sensitivity that is the problem.  Any thoughts or advice greatly appreciated, and a thank you to all those who have taken the time to respond and offer advice and encouragement so far.        
    • We don't delete accounts but can delete any personal information and change your screen name if you would like. Just send me a personal message with three possible screen names. For the record you can edit most things in your account area with the exception of your screen name.
    • Thanks I never heard of that dye before, I guess I have to find more natural meat thanks for the suggestion. 
    • Yes, I only eat one meal a day. Sometimes salad or fries or whatever I can find. And thanks for the replies again.
    • A colonoscopy is not used to diagnose celiac disease.  An endoscopy is used to obtain biopsies in the small intestine.  
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