Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ingesting Gluten On A Non-gluten Diet


Niteyx13

Recommended Posts

Niteyx13 Explorer

I have been on the diet for a month now, but was taking communion and messed up a few times the first couple of weeks. I missed a weekend of church, so I actually went 2 weeks with no gluten at all. Then this weekend (on saturday night) I had communion again (afterwards found out they keep gluten free wafers for celiacs in a back room...yay!!!). I didn't have diareha (sp?) and sunday I seemed fine, but monday I was drug-down tired again, almost threw-up, and just felt sick. I still have not felt very good today, and I have been constipated again since friday, even though I have been taking my fiber. Does anyone think this was a reaction? I am not completely well yet, but I can tell that I have been getting better (at least until yesterday). I have been very extremely careful about what I eat the past few weeks (except at communion). Just looking for input, because I thought people usually have diareha when they have a reaction. I have felt just horrible! Thanks!

Deanna


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Hi Deanna:

If you are supposed to be adhering to a gluten-free and you are ingesting gluten then I would say that is why you are feeling sick or not feeling well. Some people can have a reaction within a couple of hours and some can have it up to 10-12 hours (maybe even days) later.

I have been very extremely careful about what I eat the past few weeks (except at communion)

If you have Celiac or gluten sensitivity, even the smallest amount of gluten can damage your small intestines and can cause you to be sick and have symptoms. I would suggest getting the gluten-free wafers during your next communion. I am going to be faced with that myself soon and my church is very small and there are no gluten-free wafers available to me, so instead of punishing myself on purpose I will not be taking of the bread only the wine (I think God will understand).

flagbabyds Collaborator

Fatigue is like the #1 sympttom of celiac disease. So that is your reacction and defenitley get the gluten-free wafers next time. Don't chance it. If your body is rejecting gluten then don't eat it, even at communion(just so you know I am not religious so I don't know much about communion?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff
      9

      Diagnosed Marsh stage 3C in January 2026

    2. - Known1 replied to oceangirl's topic in Gluten-Free Foods, Products, Shopping & Medications
      21

      Lubriderm-gluten-free?

    3. - knitty kitty replied to oceangirl's topic in Gluten-Free Foods, Products, Shopping & Medications
      21

      Lubriderm-gluten-free?

    4. - Scott Adams replied to Olenaideole's topic in Gluten-Free Foods, Products, Shopping & Medications
      18

      What apps or tech tools help you manage celiac disease?

    5. - Florence Lillian replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      51

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,421
    • Most Online (within 30 mins)
      7,748

    Susan Kinley
    Newest Member
    Susan Kinley
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Known1,  I understand you have had your B12, Folate B 9, and Vitamin D level checked.  However there are other B vitamins that are not routinely checked because blood tests for other B vitamins are terribly unreliable, expensive, or cumbersome to use frequently.  Results can take a long time to get back, delaying proper treatment and risking permanent damage.  It's easiest to supplement and look for health improvement. Blood tests can reflect how much of a certain vitamin was consumed in the past twenty-four to forty-eight hours.  Vitamins released by digestion is absorbed by villi, anemone like projections that increase the surface area of the small intestine, and then pass into the blood stream for distribution around the body.  A Marsh score of 3C indicates severe damage to the villi lining the small intestine.  Absorption of nutrients is definitely affected.   Blood tests don't reflect the amount of a vitamin  that is stored inside cells before being used.  You can have "normal" blood levels but have deficiency within cells of organs and tissues.  Tissues and organs will relinquish their stored vitamins into the blood stream in order to keep the brain and heart working while tissues and organs are depleted.   It's possible to have a localized deficiency of Thiamine B1 in different organs which cause the organ to malfunction.  Gastrointestinal Beriberi is caused by Thiamine deficiency in the gastrointestinal tract.  Gallbladder dysfunction, thyroid dysfunction, heart attack, and cognitive dysfunction can be caused by Thiamine deficiency.   Most of the B vitamins cannot be stored for very long, maybe six weeks. B12 can be stored for as long as a year in the liver.  So having "normal" B 12 levels does not mean all your other vitamins are "normal" as well.   Thiamine can be stored for eighteen days, however  Thiamine can be depleted within three days.  We have a greater metabolic demand for Thiamine when we're physically ill, emotionally stressed or are physically active (work out regularly) or work outdoors (or ride bikes).  Because most B vitamins can become low within a month or two under the best of circumstances, many newly diagnosed feel great on the gluten free diet at first.  After that, they seem to start going downhill.   The nutritional deficits start making themselves known.   Keep in mind that processed gluten free foods are not enriched nor fortified with vitamins and minerals to replace nutrients lost in processing like their gluten containing counterparts are.  You have to replace them yourself by taking supplements at least until the villi regrow and absorption improves. The eight B vitamins are water soluble.  They are easily lost if one has diarrhea or constipation or in those with a high Marsh score.  Because they are water soluble, the body can easily excrete excess through the kidneys.  Recommended Daily Amounts are based on experiments done on humans to find the minimum dose required to prevent disease.  Levels for optimal health are much higher.   Doctors are trained in medical learning institutions which are funded by pharmaceutical companies.  Requirements for nutritional education have been reduced to twenty class hours over the course of the seven years of medical school.   Three-day weekend seminars earn ten hours.  Vitamins cannot be patented as they are natural substances, so there is more profit for doctors to prescribe pharmaceuticals.  They are taught to cover symptoms with pharmaceutical bandaids.  They may not look for what caused symptoms to appear in the first place.   Doctors are taught nutritional deficiencies don't occur except in impoverished or drought stricken countries.  This is not accurate.  Nutritional deficiencies can occur if you eat a High Carbohydrate Diet, eat the Standard American Diet, and if you have malabsorption problems as occur with Celiac Disease.   You can check out my blog for the challenges I faced due to vitamin deficiencies that went unrecognized by doctors.   Talk to your doctor and new dietician about supplementing with vitamins, minerals and essential nutrients while your villi are healing.  My favorite Celiac book is The Paleo Approach by Dr. Sarah Ballantyne.  She explains the AutoImmune Protocol Diet.  It has been shown to reduce inflammation and promote healing in the gastrointestinal tract. Best wishes!
    • Known1
      Thanks, I had already sent you a direct message regarding bananas.  Maybe just reply to that?
    • knitty kitty
      @Known1, I'm sure you can find a shelter or community service group that would appreciate your lotion donation.   I've replied to the topic of your bloodwork as it relates to vitamins in your "Introduce Yourself" post so as not to high jack this thread.   Thanks
    • Scott Adams
      The comments requested are very limited in scope, and I don't think this shotgun approach would be helpful, but that is just my 2 cents, for what it's worth.
    • Florence Lillian
      Hi all: Scott, I am glad you listed all your supplements, etc, many new to Celiac will be floundering as I was when diagnosed in 1979.  After much trial and error, the following supplements are now a daily MUST HAVE for me.  We have to keep in mind, too much can be just as damaging as too little. Further, I have found that 'brands' of supplements vary hugely! I tend to go with the newer ones as I find they 'digest' better, and digestion is HUGE with many of us. In hopes my input may help someone through the jungle of supplements:  I buy from Amazon. I take Naka Cal/Mag Marine Algae with Vit D.  Explanation here re/ Algae: I do not take anything with fish oil. I can't swallow large capsules so I chew them...a bit 'fishy' tasting but not bad. I was using a top brand but one day it tasted like...rotten, strong, yucky fish taste. I switched to Algae, I also have a 'thing' about farmed fish full of anti-biotics but don't get me started on that...I digress. I take extra D3, Celiacs need this.. I get the one from Sports Research, great company in U.S.A.  I also take B complex from 'Thorne' as well as extra B12 subliminal, another one Celiacs need. I agree with Scott the need for extra B12 for a clear brain. I also take a Multi vitamin with Zinc- Naka brand.  Also, K2 MK7 is a must for Celiac... and finally, I take Omega-3 Algae.  I truly hope this helps someone -  I know the struggle well.  Florence.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.