Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Salicylate Sensitive Celiacs


tailz

Recommended Posts

tailz Apprentice

I found this link that takes some of the guesswork out of screening vitamins for salicylates. Be careful though with glutens and other trigger ingredients.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Tailz, don't use the info on that site. It's all about using guaifenesin, which is supposed to fix fibromyalgia (as long as you take it indefinitely), and claims that salicylates block it's effectiveness. Guaifenesin, in my own experience (and I used it for nearly two years), is utterly useless for fibro. Cutting out the gluten and salicylates is the REAL treatment.

A lot of the advice on salicylates is just PLAIN WRONG. Period. ALL teas, other than chamomile tea, are bad. ESPECIALLY natural ingredients are terrible (but the other ones, like mint flavouring, are awful, too). Topical salicylates, like the ones in toothpaste, shampoo and soap are no good, either.

Guaifenesin DOES thin mucus, that's why it is in cough medicines. It has it's uses. But I found that while I cut out all salicylates and bread (as it tells you to do at the beginning) 'it was working great' (yeah, right). Once I started eating some bread again, I was really sick again. So, I stopped using it.

Now I just cut out the lectins (gluten being one of them) and the salicylates, and the pain and the digestive problems are gone. NO guaifenesin needed.

So, since in this site the underlying reasoning for eliminating salicylates is faulty, why would you trust the rest of the information? The problem is, that there is some truth mixed with lies. It would be hard to distinguish the two, and find the useful information here.

I just read that they encourage using TUMS for your calcium. What an awful idea! NOBODY should EVER take antacids as a calcium supplement. That's about the worst way of getting calcium (besides the fact that Tums aren't proven gluten-free). That advice alone would tell me that whoever is giving the advice on this site is not to be trusted.

Also, they say if the salicylates are part of the inactive ingredients, they are fine. Actually, they are NOT fine. Also, they say that flax seed oil is okay. It is not. In fact, the only oil that is okay is cold pressed sunflower oil.

So, their info on which vitamins are safe and which are not is useless. Don't follow it, in fact, forget about this website.

Please, just get your info from the one on salicylates I link to, this lady really, really knows what she is talking about, and has done her 'homework'. Also, buy her 'Salicylate Handbook' (on C D), it has invaluable information, and is very reasonably priced (she really hardly makes any money on it, she just doesn't want to lose money).

Following her guidelines and advice has helped me more than you can imagine.

And no, (in case anybody thinks I am somehow connected to this lady) I am NOT helping her promote her site and her Salicylate Handbook, I don't know her personally, she is in England, and I am in Canada.

Edit: Oops, I forgot that when you put the c and the d together, it always shows up as celiac disease. I was saying the salicylate handbook was on C D, but it said that it was on celiac disease, because I didn't separate the letters. I hope I didn't cause any confusion.

  • 4 years later...
stef-the-kicking-cuty Enthusiast

Now my question is, is there a website or post somewhere like a list that lists most of the Salicylate free foods you can have? I'm using myself as a guinea pig right now and I think, I'm on to something. No insurance for doctors, but want to try this diet as an exclusion diet and see what happens.

Thanks for all the info!

eatmeat4good Enthusiast
Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442

    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...