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Dh And Eczema


EddieJP125

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EddieJP125 Explorer

I have been diagnosed with celiac disease a couple of months ago...but didn't know i had DH...just looked at the paperwork yesterday...i always thought that my skin condition was eczema is or does always look like that?...it gets cleared up and maintained when i use a steroidal cream everyday...and input from all this...and wat exactly is DH?

thankx

Eddue


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tarnalberry Community Regular

Here are a couple of webpages on it (you can find a LOT of information by looking it up in google):

Open Original Shared Link

Open Original Shared Link

Most of the information out there is much the same, and yeah, steroids are used to treat it initially and can clear it up. But topical steroids have some pretty serious side effects, whereas going gluten-free (which is almost always associated with DH) does not. The thought is that the immune reaction from gluten, instead of affecting the intestines, are affecting the skin instead, and I believe a few studies have found IgA deposits in the skin lesions.

ponita Newbie

I was dx is celiac disease in june and have been gluten-free for 10 weeks now. I have had outbreaks of DH for 10 years off and on. For 10 years the docs knew it wasn't chickenpox, it wasn't shingles and it wasn't poison ivy but no one know what it was until I was dx with celiac disease. In the past these outbreaks would flare up 2 x a year.

My search now is to find why I may broke out almost continuously for the last 5 weeks. One place will flare up, clear up and then a new spot will appear. I have looked very closely at my diet and unless there is another food suspect I am gluten-free (only fruits, veg., cheese, eggs, meat and very little diary) not food outside of my house and no packaged anything. any ideas?

Melissa

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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