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How Much Gluten To Cause Reaction


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3 replies to this topic

#1 SofiEmiMom

 
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Posted 23 September 2004 - 11:14 AM

Hello all. I am having great difficulty trying to get my child's teacher and pre-school adminstrator to understand how a bread crumb can make my daughter very ill. It's also difficult for them to understand how painful of a reaction this is for her - since it is delayed and not immediate like anaphalactic shock and therefore haven't witnessed a reaction. They also can't comprehend how each gluten set back can contribute to an increased risk of other diseases. Does anyone have any links or copies of articles for me that would help aid in getting the point across? Thanks so much. Please e-mail me directly at kfanelli@mac.com
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#2 tarnalberry

 
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Posted 23 September 2004 - 11:19 AM

I would suggest doing some searches on PubMed for journal articles, as well as looking up the articles here at Celiac.Com for the references you want. At the end of the day, it's a basic chemical reaction - you only need to put one speck of baking soda in a glass of vinegar to release oxygen, you only need to put one speck of gluten in the intestines to trigger the immune system. And, at the end of the day, they don't have to understand it, as long as they do it.
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

#3 judy04

 
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Posted 23 September 2004 - 01:46 PM

I would suggest showing them articles about the girl who couldn't
take communion because the Catholic Church wouldn't let her
use a rice wafer. This stirred up a lot of controversy and more
people became aware of the disease because of it. Some stories explained
about how even a crumb of wheat could cause severe damage and the
little girl said "I could die from it". just a thought...
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judy


gluten-free since 11/03, neg biopsy, IGA elevated

#4 ashlee's mom

 
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Posted 23 September 2004 - 01:54 PM

I would think any article describing cross contamination would help. Realizing that if you stir the pasta with the wrong spoon can make someone sick might help bring home the point that you are not being paranoid about a crumb. It is hard for people to grasp sometimes, but if these are proffesionals in child care, they need to be putting out an effort as well. If after you share this information you don't see a change, make sure you look into other schools, I'm sure there are some that will take your daughter's health into consideration!
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