Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Need Help
0

3 posts in this topic

I have a 15 mo old son that they think has celiac disease. I am reading other profiles and it sounds just like all of your kids. I was seeing that it is almost impossible to diagnois befor 18 mo. My son has had trouble since he started on cereral at 3 mo old. Up until that age he was gaining weight just fine and then he has slowed way down. He had the lab work done yesterday and a biopsy scheduled for Nov 3 and also a colonoscopy and a dumping sereies. Should I have the test done now or wait till he is 18 mo old. I was also woundering if any of you have other kids I have 5 total children and do you make them all go the diet also. And how do you every get to go out to eat. Help I am so scared of all of this HELLLLP

0

Share this post


Link to post
Share on other sites


I can't answer on your concern about how early a child can be tested as both our children were diagnosed this year. Our daughter is 4 and our son is 9. Our son was the one that was having problems, had bloodwork, biopsy, etc and was diagnosed with celiac disease. Because of the genetic link, we had blood work done on our daughter (who exhibited no symtoms that we were aware of), which showed elevated levels of IGG, IGA and TTG and were actually double of those of our son. Within a 1 week period, our son's biopsy was positive and our daughter's blood work showed concern. It was quite an overwhelming week. :o Thus, she had biopsy, which was positive. My husband is in process of being diagnosed or if he just has the genetic makeup for the possiblity of it. He is currently doctoring with Dr. Fasano at the University of MD. I know when our son was diagnosed, it was very overwhelming and as a mother understand the concern that you have for your children. My advice would be to wait on your son's results before you put the entire family on a gluten free diet, but also, if you wish to pursue testing for the other children, they need to be consuming gluten until they have a biopsy. As far as going out to eat, we did that on a weekly basis prior to the diagnosis of celiac. We do not go out to eat very often anymore <_< and requires alot of planning. If we do go out, it is McDonald's cheesburger happy meal with no bun, FF, soda and hot fudge sundae for dessert. It is definately a change of lifestyle, but after 6 months of gluten free, it seems second hand and don't feel overwhelmed. Good luck! Mom 2 2 :D

0

Share this post


Link to post
Share on other sites

Just wanted to give you some encouragement. I am a mother of 4 and, I have a son who is definitely gluten intolerant, as for the other 3...???

We might have been able to diagnose our son at 15 months if I or the doctor we were seeing at the time had any clue about Celiac disease. The telltale symptoms, for my son, at that age were:

loss of weight and height (went from being in the 80% to the 15%)

frequent loose stools (I thought it was from lactose intolerance)

bloated belly (thought IT was from gas from lactose intolerance)

clingy, whiny moody behavior (would wake up from afternoon naps VERY upset)

For more of my story, you can read the post I have over at Braintalk.

It is possible to detect an intolerance to gluten at that age... as I have encountered many who have. Whether or not they are successful at finding the patch in the small intestines that has the damage and give you a diagnosis of Celiac disease is unsure. From what I understand the damage can be patchy and not visible to the naked eye, therefore it can easily be missed in an endoscopy/biopsy.

I would recommend having your other children tested via the blood work. Elevated IgG would indicate a gluten intolerance... elevated IgA with IgG would indicate that there is possible damage from the gluten intolerance and possible celiac disease.

Going out to eat is a risky venture... specially when you have a little one who can't tell you whether or not they've been 'glutenned.' My son is 4 years old now, and we try to only go to restaurants that we know to have gluten-free stuff... we ask at our favorite establishments and then determine from there... it's tough... the chance of cross-contamination is high... the price you pay for eating out.

My best advice for you is to NOT to try to just replace gluten stuff with non-gluten stuff. Try to make a diet change into whole natural foods. It will be better for your whole family. Fixing dinners that are not from a box or can is better anyways. Crockpot cooking is great. There are tons of things that can be done with chicken, and beef in a crockpot that is gluten free. Remember, potaotes and rice are still in, along with fruits and veggies! The only thing that is good looking for a suitable replacement for is pasta. The things that are nice for replacing for occasional treats, is cookies, cakes and such.

I wish you luck and if you have any questions and concerns, just post 'em! There are tons of moms, dads and families on these boards who are happy to offer up their advice and opinions.

God bless,

(Personal disclaimer: I am NOT a doctor, nor do I play one on t.v.! :) I am just a mother of a gluten intolerant child who has read and chatted with others in the same boat. Please feel free to challenge me or point me towards any research and information, I'm always searching!)

Priscilla :)

"Cleaning your house while your kids are still growing is like shoveling the walk before it stops snowing." --Phyllis Diller

SAHM to 3 beautiful boys and one adorable girl

Kyle - 6

Matthew - 4 (Gluten Free since 11/03)

Andrew - 2 (Gluten Free since 7/04)

Abigail - 7 months (staying gluten-free until ?)

My hands are full, but my heart is not! ;)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,672
    • Total Posts
      914,360
  • Topics

  • Posts

    • artificial sweeteners?
      A few weeks ago I ate a quest bar and ended up feeling a bit sick for the rest of the day, and that night I started feeling nauseous and had the chills, shortness of breath, and ended up staying up all night because I just didn't feel well. I thought maybe it was too much fiber or protein, I definitely don't get enough of either (working on it) so I thought perhaps going from barely any to quite a bit could be it. Then I scrapped that idea, thought it was corn. I've heard that corn can cause symptoms similar to gluten.. but I eat other things with corn in them on a regular basis, so nope. Finally, I thought maybe it could be artificial sweeteners. I'm not a big fan and generally try to avoid them so I haven't had them in a while. Well, yesterday I had another quest bar left so I opened it and took the smallest bite in the world.. I mean it was practically a crumb. I also happened to eat a piece of sugar free gum so it could have been either one. But shortly after I started to feel kind of 'off', which turned into the same overall bad feeling that I had last time and I didn't sleep until 7am because of it. The reaction wasn't as bad as last time, but it definitely wasn't pleasant. But whether it was the gum or the bar it seems hard to believe that such a small amount would make me feel that sick.. Though if I had that much gluten I would be dead to the world for days, so maybe not THAT unlikely. However, I then noticed that the antacid that I sometimes take if I get glutened or something has sorbitol in it and I've never felt sick from that. So does it just happen that sorbitol doesn't make me sick but other sweeteners do? Also, I've never liked drinking diet soda because for as long as I can remember it has made my stomach upset. Not like this, but just that 'off' feeling for a couple hours after drinking it. Does anyone else get sick from artificial sweeteners? I'm hoping this is it, otherwise I'm kind of at a loss. I can't think of anything else in those bars that would make me sick and it doesn't seem like a coincidence that I got sick both times I tried eating them. I know it wasn't gluten either because I ate pretty plain things both days, nothing out of the ordinary that would do that. Plus the reaction is different. It's similar to gluten but not the same, with gluten it's (at first) just my stomach and with this like I said it's just a general sick feeling. What do you think? 
    • Mcdonald's French Fries
      Great discussion! These are my take-aways in researching this site and several others (not just for McD's but other items like beer & wine for a friend who crafts his own, but I am very sensitive +other digestive issues) 1. Cross contamination is always a possibility so be aware, be prepared & be safe. 2. Gov't regs regarding gluten-free claims are not great. Plus they deal in Parts Per Million (ppm) so as long as it is below the threshold, it can claim gluten-free. Your allergy & my sensitivity will be triggered at different levels, so we may react to to something that is less than 0.001ppm & is labeled as gluten-free. 3. Some cooking/processing procedures can destroy the offending allergen  (this case, gluten). I got this from 2 sources. One when I was trying to learn about gluten-free alcohol products. The other from a friend whose daughter is severely allergic to peanuts, coconut & a few other items. She spoke to the Allergist about a food item her daughter was exposed to but did not react as expected (thankfully!). After looking into it, the doctor explained that even though the allergen is listed, it may not have been the part of the food that she is allergic to (I know I am explaining this poorly, sorry) &/or the processing of the ingredient can alter it on a molecular level so as to not cause a reaction. Apparently the opposite is true: processing changes can cause us to react to things we otherwise wouldn't. 4. I don't find McD's to be greasy (you should see how I cook!). But it is so full of chemicals it's no wonder humans don't process it well. 5. COOK :-D   Certainly, I am not an expert & I know I probably didn't interpret everything correctly. So, if you have more info to help correct my "take-aways", it would be welcomed. Thank you!
    • Gluten free diet, positive celiac screen...what should I eat now?
      i would be eating pizza and donuts - two of my most missed foods and difficult to find a gluten-free substitute!  lolz, yup:  me, pizza, donuts, the bed, and the bathroom............... sorry about your dad - welcome to the forum.
    • Is Jello O.k. To Eat?
      jello is fine.  maybe you are sensitive to something else.  
    • Smoothie King
      I have had one or two and was fine.  I don't have an issue with dairy.  If I remember right, most smoothies are gluten-free.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      59,697
    • Most Online
      1,763

    Newest Member
    cookbookaddict1
    Joined