Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Dermatitis Herpetiformis
0

6 posts in this topic

hi, New to the message board. I was just disgnosed with celiac/DH so I get the sores instead of being sick like most of the people on this board. I still have a lot of questions-like can I eat chocolate? What about modified food starch? bread is the hardest for me even though I am not a big bread eater-can I have Millet bread? Anyone else with GH-if you can give me any guidance it would be most appreciated. Thank you-Moe

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi.

I am still pretty new to this but you can eat a lot of brands of chocolate, you just need to be careful. People like Nestle and Cadburys list on the products and websites if they contain things like gluten, soy, nuts etc.

Another thing you need to be careful of is snack sized chocolate. I have found a few times the normal version is fine but a snack size is not.

Check out:

http://www.celiac.com/cgi-bin/webc.cgi/st_...-33104374558.f1

I have been gluten free for a few months and to be honest it is a pain in the ass but once you get used to it, it isn't too hard barring eating out.

The one thing I would suggest to you is research lots. You would be amazed at the things which contain gluten. Things which caught me out in the beginning were things like soda gun coke in certain bars (syrup contained wheat), sausages, chips coated in flour to stop them sticking together and even a wooden spoon which had previously been used for regular pasta as it is porous.

I don't bother with gluten-free bread at all. 95% of it tastes like crap and at the end of the day nothing will truly replace bread. I buy 100% corn crackers or corn wraps to make a kind of sandwich and it is great.

Companies often list what products have gluten in them on their websites or a quick call to them confirms it.

If I am not 100% sure it is gluten free I don't eat it. My diet started off quite basic and is now becoming half decent.

I would however kill for a bacon sandwich in white bread with brown sauce :angry:

0

Share this post


Link to post
Share on other sites

I agree with the last comment about bread! Most of it isn't worth eating. I know people with bread makers have luck making gluten-free bread, though. The best baked goods I have found are frozen tapioca-based products from a Canadian company called Kinnikinick. When thawed, it has a texture similar to "real" bread. A lot of chocolates are gluten-free. Hersheys is. I eat Hersheys kisses and M&m's when I need a treat. Research ingredients on line. The modified food starch question is tricky. It is generally corn starch, but not always. Some companies, like Kraft, promise to say if the source of the starch is wheat. Others don't, so I stay away from that ingredient unless I can verify the source. For example, Jello Pudding said their Modified Food starch is corn starch when I called. Once you are used to reading labels, things will be easier. Another great resource I just discovered is the magazine "Living Without". It has lots of information about food intolerances. Good Luck

0

Share this post


Link to post
Share on other sites

We have DH and the gluten-free diet has worked wonders...if you stick to it faithfully. Many of the scars are now even beginning to fade. Just one mistake, though, and here come those itchy ugly sores again. Expect it to take a year or more to get it fully under control.

I agree with the earlier post. Research, research, research. Keep a notebook. A great resource for going to the grocery store is the gluten free commercial guide available from csaceliacs.org. I have added extra tabs to keep notes on store brands and medications. That book goes everywhere we go.

You will need to become your own best friend and research assistant if you want to do this to its best. It is tough for the first few months, but then you just know what to pick up at the store, double check every few months to be sure nothing has changed, and then go on with life.

Be sure to check carefully for anything that comes into contact with your skin. That includes soaps, lotions, shampoos, make up, household cleaners, etc. One of the best sources for household cleaners I have found is Shaklee. I used to be a distributor but am not any longer. When my sores are at their worst, I can put a capful of basic H into my bathwater and soak...ah the bubbles and what a change in the look and feel of the sores. Their dishwashing liquid, germicide, etc. all do not cause any reaction. We use All Free and Clear for clothes. The Shaklee was too expensive for a family our size. You may have to change for the whole family if your stuff is washed in the same sink or laundry (at least initially). You may also find as we did that the longer we are gluten-free, the fewer things trigger a problem. Even gluten-free stuff could be a problem at first if it was not really mild.

Just think how good you are going to feel and how beautiful your skin will be once you have done this for a while.

Donna

0

Share this post


Link to post
Share on other sites

Oh yes, I forgot. Yes you can have bread made from millet, quinoa, amaranth, teff, bean flours, rice, etc. as long as they do not also contain wheat, rye, barley, or oats. The ones with the best texture are based in the bean flours but have the other flours for flavor. There are some pretty good recipes out there. Keep looking.

Good luck!

0

Share this post


Link to post
Share on other sites




Actually, the gluten-free bread machine mix from Bob's Red Mill is delicious!

My wife has used several products from there to make biscuits, doughnuts, and such, and other than being more dense than regular bread, it is really good.

I have also run across several pre-packaged meals that you prepare at home with noodles and spices that are gluten-free according to the ingredients on the package. It actually states "GLUTEN-FREE" at the end of the list. These items are Thai Kitchen, and several of them are really great.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,346
    • Total Posts
      917,413
  • Topics

  • Posts

    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,482
    • Most Online
      1,763

    Newest Member
    Jiifigment
    Joined