So Scared And Sad
Posted 30 December 2004 - 05:18 PM
I have finally been able to get my headaches significantly reduced within this month and my anxiety is also significantly reduced for several months but now I have a new symptom, low blood pressure. I am pretty certain of its cause but which, when, how and what doctor and medication to try is overwhelming. I want to be on top of this once and for all. Finally and now..... I feel like I can shout>>>>>>>>>>>
I have preferred integrating both traditional and complimentary medicine approaches for about fifteen years but it hasn't worked out like the doctor thought and I had hoped. I am one of those people that if it isn't going to happen it will!!! Realistically, I look fairly good for having a chronic, multiple metabolic disorder but how much can any one, average person stand.
Can you relate and what hope is there, another medicine, another test,
Posted 31 December 2004 - 03:59 PM
Posted 31 December 2004 - 04:08 PM
Have a great day!
positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)
Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.
Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......
"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden
Laughter is the shortest distance between two people.
-- Victor Borge
"An optimist laughs to forget. A pessimist forgets to laugh."
"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Posted 01 January 2005 - 05:02 PM
Maybe those of us with Celiac all have multiple metabolic problems, because from reading the posts ahead of this one, it sure sounds familiar to me: low blood pressure, headaches, etc. I have asthma, a spastic colon, low blood pressure, a heart murmur, and in the past I had an ulcer.
Since sticking with the no grains, no milk or dairy, no egg whites, yeast, modified food starch, etc. diet I have been feeling better, but I still tire easily, and have to be so diligent about reading labels, and about what I eat.
I am so happy that this board is here for all of us when we need to commisserate with each other, and I, too, know what it is to feel sad, frustrated, lonely, isolated, and unwell. So, I am choosing to do very little this holiday season, other than brief visits with my closest family members (along with work).
I wish you all much renewed health, happiness, and feeling better. Welda
Posted 03 January 2005 - 07:49 PM
Posted 04 January 2005 - 11:47 AM
The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25
Posted 04 January 2005 - 09:36 PM
I look back and can see that for years the misc problems added up. The doctors were stumped because there were so many apparently unrelated problems. When the celiac finally came into the picture, they all sort of went "Duh!" because at last we had something that explained the problems with so many different systems.
While I became permanently disabled from the fibromyalgia, neuropathy, etc..., they have all gotten somewhat better since going gluten-free. When all of them get a little better, the big picture gets a lot better. I know that life will never be as it was, but I'll take every little bit of improvement I can get. The gluten-free diet has done that.
9 yrs gluten-free
...also DH, fibromyalgia, neuropathy, osteopenia, hypothyroid...
After almost 10 years, I am doing soooo much better!
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users