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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Is Lectin Intolerance (nightshade Foods) Linked To Celiac Disease?
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Can anyone tell me if lectin intolerance to nightshade foods is linked to celiac disease or what the relationship might be if any? I have had a positive TTGa blood test result (on two occassions) but a negative biopsy. I have had a geographical tongue since I was a toddler which I have linked to eating raw tomatoes. Have just discovered that tomatoes are a "nightshade" food which can cause an autoimmune reaction. Have been advised that I have latent celiac disease but have lots of other symptoms (and have had all my life now looking back). Mmm.

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If you have had a postive blood test you need to be gluten free regardless of what that biopsy said. If you already know that please forgive my mentioning it.

Other food intolerance in us is common. In large part due to the fact that our damaged intestines let a lot of stuff in that normally would not go into the bloodstream. For many other food intolerances will resolve after the gut has had a time to heal. I was intolerant to nightshades myself for a while but was lucky and after about 6 months was able to eat them again. Some will remain intolerant though. The only way to tell what group your in is to challenge them when you are feeling well.

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Thank you very much for replying. I am not yet gluten free - my gastroenterologist advised me that I had latent celiac disease based on my positive blood test result and negative biopsy and said that I didn't need to make any changes to my diet at this point in time. At my initial consult he asked if I get mouth ulcers to which I answered no. I didn't connect my geographical tongue to the question or that I often notice tongue pain immediately after eating tomatoes. I have just connected that tomatoes contain lectin and that gluten also contains lectin. I also have tooth enamel defects, experienced stomach pain throughout my childhood, experience migraines (have been more frequent in the last six months, have lost 13kg (unintentially but after having a baby), have felt intense fatigue over the past six months but my iron levels are normal and have mild hair loss... I experienced nausea, vomiting and occassional diarrhoea over a two week period about two months ago which lead to me being tested inconjunction with my unexplained weight loss. I also have a positive family history - my paternal aunt was diagnosed with Celiac disease two years ago. I am wondering if all my symptoms can be linked to eating the lectin from tomatoes rather than gluten?? I am still waiting for some repeat blood test results and have made another appointment to go back to my gastroenterologist. I think there is more to the story than a negative biopsy result. Am just not sure if it will mean that I need to eliminate the tomatoes and/or gluten. Is the TTGa test specific to gluten only or can it also pick up a response to lectin?

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Unfortunately, your GI sounds quite ignorant to me. If your blood tests were positive for celiac disease, you have it. A negative biopsy can NEVER rule out celiac disease, as those are hit and miss (and often it is 'miss' :huh: ).

It sounds to me like you are intolerant to nightshade foods and gluten grains (possibly other lectin foods as well, like me), and should avoid at least those.

Here is a link to a great website on lectins (which you may have found already) http://www.krispin.com/lectin.html

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    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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