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You Would Not Beleive What The Dermatologist Said To Me

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little d

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Posted 07 May 2008 - 06:49 AM

Hi all

I went to the Dermatologist on Monday because I ate a Subway sandwhich last week and something else with a flour tortilla I just did not follow my diet at all last week, by Friday I started to get a rash that looks to me to be DH. It was on my face under my lower lip and then traveled to my upper lip and spread to my nose it all looked to me like DH with the little blister like. A couple of spots on my arm and fingers. I had decided to go to the same Dermatologist that I went to last year because I did not want to wait to get referralls and all that, because I wanted to go while the rash was active. It does itch, more when I touch it, it looks the same as it always does little blisters very itchy, scaly when it heels. I really did not want to go to the same woman she is only a Physicans Assistant but all the other doctors were booked up and I needed to see about this while I was off and try to have it somewhat heeled before I went to work on Thursday, so I reluctantanly went because the last time she only came in to talk to me for maybe 5 minutes. All I was able to say was I eat gluten free and then she went into a tangent about "I bet its hard to eat anything" kind of speach ashured me that I did not have DH, told me that we could test it blah blah blah and left the room gave me so stuff to put on my arm and said if it does not go away with in a few days to come back. Well I did not because when I get it, it will last for 3 weeks and I'm done until the next year. By the time I went to her last year I was in my 3rd week and it was pretty much over. So when I started with my rash this time I did not want to wait because it is on my face and I needed to get it seen for work. This time she came in I had told her I believe the rash is becuase of the food I ate, she told me don't eat that anymore and bascically told me that DH only "ONLY" happens on the outer elbows. Then she breifly talked about using differant lotions that is good prescripbe me something and gave me samples that does seem to be working a little it is Locoid Lipocream (hydrocortisone butyrate 0.1%) cream. She then proceeded to tell me that she did not think that it was DH once again it "only happens on the outer elbows" and she was going to leave the room. I had kept asking what is she going to call it then and she said something like an internal drug response contact dermatitis pretty much telling me it is something internal that I am reacting to. No really I wanted to say. I had to invite her to look closer to my face touch it and she reluctantly did, her comment was it looks like Poison Ivy but she knows that it is not. I asked her did she want to test it she said not on my face but she looked at my arm again that had a little spot and it did look blistered one new and the other one was older and a little crusty so she did a biopsy. I had not a clue on what the biopsy entailed never had one so I said sure, but was not able to take an healthy biopsy because they did not have the right solution for that one so I have to go back. Not looking forward to that. If the biopsy comes back normal then I won't go back. It is sad that I had to push for something, I know what is wrong with me, I really had to go for work because working in the health field people freak when they see stuff that is wrong especially were i work.

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Fecal Antigliadin IgA 21 (Normal Range <10 Units)
Fecal Antitissue Transglutaminase IgA 13 Units (Normal Range <10 Units)
Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)
Fecal anti-casein (cow's milk) IgA antibody 12 Units (Normal Range <10 Units)
HLA-DQB1 Molecular analysis, Allele 1 0501
HLA-DQB1 Molecular analysis, Allele 2 0501
Serologic equivalent: HLA-DQ 1,1 (Subtype 5,5)

You can teach an old dog new tricks!!!

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Posted 08 May 2008 - 03:55 AM

I would find articles on DH from places like the NIH and Pubmed and print them out and bring them in with you on any visit to a derm. If this person was a Physicians assistant then I would print them out and send them with a short letter to the head of the derm group. She needs to be educated fast. Going over her head and pointing out her stupidity with peer reviewed articles may help the doctor that she is supposed to be working with educate her. If she didn't know for sure what was going on she should have called a doctor in to look. She is a PA not a doctor and it sounds like she may be forgetting that there are others in the office that may just know a bit more than she does.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)

celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom

Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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