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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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:D TO ALL THE MEMBERS OF CELIAC.COM,

THANK YOU FOR GIVING ME THAT SPARK I NEEDED TO RESTART MY FIRE.

I was waiting for my boyfiend at his job, so I decided to check out glutenfreemall and celiac.com. I was amazed at the format, the topics and information. My doctor told me of the site but I just put it to the side. I was diagnosed 9-04 and lost all motivation around 9-05. I just didn't care anymore. I would get upset and just eat anything. (I live alone in Altanta, GA and family lives in Queens,NY and Palm Bay,FL) My family understands what's going on but then again they don't. This becomes so frustating and then depression kicks in. :( I was so moved by the site that I joined and here I am posting this message.

Thanks again,

Charmaine

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Hello Charmaine, welcome to the site!

We all know how frustrating this disease can be, especially if you don't have support. Please hang in there and keep trying to stick with the diet, it is so important to your health both now and in the future!

There is lots of super people in this forum that will try and help you :)

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Welcome! We are always here to help!

Don't hesitate to ask if you have any questions or need any meal ideas!

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You know I have to say the same thing!!! I was very frusterated with all the no gluten stuff. I wasn't going to try it for a while. (putting my daughter on it) But I posted in the DH area about my daughters condition. And because of another parent who's child had the same problems...it gave me courage and hope that I could do this. I have been so excited to get my daughter well. She loves the new foods she is eating. And my stress is far less than a few months ago.

Thank you to this site TOO!!!!! :D

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I'm so glad you guys have found us here.

There are a bunch of really great people here who are both very supportive and knowledgeable and are always willing to answer any questions you might have.

Welcome to the forum!

Karen

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HI,

I too live alone and in a area where gluten is rarely known or understood. It has been a long learning curve but after two years of perserverance things are nearly under control. One word of warning is after being gluten free for a long period of time and then make a food error the after affects are more severe then previous attacks.

Good luck and keep trying. It does get easier.

Chronic :D

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I was diagnosed on 9/04 too... most of my family is clueless too and really don't have the drive to figure it out for me... I was pissed about that over thanksgiving but I've come to a far better place about it. Hey its my disease and my issue and they all have their own problems... I decided I can stay mad at my family forever or just do what I have to do. So I choose to love them and I'll deal with my Celiac issues.

I tend to think every that happens to us in our lives will turn out exactly how we embrace it. If you think having Celiac is a pain or hassle, thats exactly what it will be. If you look at it like a new challenge then thats what it will be.

Someone (I think on this list) said they were so glad when they found out it was Celiac and not some terrible disease.. heck this can be controlled with diet, so essentially its curable. My brother has mouth and tongue cancer.... he has 4 months to 4 years left (odd time table, I know) so in comparison to that, wow did I get off easy!

If you look at it like a path to good health its just easier. If you decide to go totally gluten-free keep in mind you will have slip ups, I've read of some on this list by people who have had Celiac for years... it happens but its no reason to get depressed, you just learn from it and go on! Enlist your boyfriends help... I did that with mine and he is so supportive, he goes to bat for me all the time in resturants and he carries a gluten free card I made on my computer with him so he can show it to the chef at resturants..

You can do this, its not so hard. Also if you have a Whole Foods market around you (check on their web site for locations, they are really almost everwhere) they carry gluten-free baked goods which are really tastey (and lots of other gluten-free stuff) I drive an hour to get to the closest one but its way worth it for me.

Best, Susan

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Those are all good points Susan. I've been gluten free for over 15 years and there are still slip ups. When you live in a gluten world, it's impossible to avoid them all. When your family or friends get annoyed when you question something. Just explain that it is your responsibilty to look after your own health (diet), and your health depends on double checking everything that goes in your mouth. You are not doing it to affend anyone. After all, we can't go out and enjoy activities with them, if we are in the bathroom ill! :o

Hang in there and stay healthy!

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:D welcome mike'speanut. This is an awesome forum with great people who are willing and available to give support and advice.

We're in this together and here to help.

;)

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    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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