The Vomit Comet

[Mathew]

On 8/6/2018 at 5:28 AM, Brittanymay said:

I have been gluten poisoned 6 times now. And every single time it’s the same. Almost two hours of accidentally consuming gluten. I get hot, sweaty, nauseous and bloated. I then have about 15 minutes before the violent throwing up begins which last for hours. It’s so bad I can barely stand. It completely drains me where I can barely walk after. Followed by a few days of cramps. You are not alone! My sister has the same reaction. I think it depends on how long you’ve had celiac. Looking back I know I had for at least 15 years before bro g diagnosed. Now it’s been out of my system for 6 years and once it gets in my reactions become more severe. 

Have you found any answers? I’m afraid that when I get poinsoned it’s causing serious damage to my intestines and might be harmful. 

Brittany 

When i spoke with GI last he said this reaction is more common than reported. And when u get sick u arent doing any long term damage or short term damage. Try freezing some still lucazade to replace electrolites. 

[ara050711]

I was sick for 2 years constantly throwing up horrible stomach pain diarrhea daily passing out all the time pale my bones were showing I'm 5'11 and usually about 215 to 220 lb and that's me wearing a size 9 size 11 pants so I look normal not fat not skinny but by the time I found out I had celiac disease I was 106 lb and in ICU I had previously visited 27 different doctors visited every urgent care in the city I live in went to the emergency room numerous times even travel to a neighboring city larger than mine and in hopes of better doctors due to the increased population but still no real answers every doctor I visited said I had h pylori or bleeding ulcers or GERD or extreme heartburn that I needed to eat healthier stick to crackers and soup for a while so I ramen chicken noodle soup Ritz cracker saltine crackers etc not knowing that I was just poisoning myself and causing myself more pain I was constantly accused of being on drugs and lived every day not knowing whether or not my children were going to see me pass out or have to hear people comment on how I looked or hear family members accuse me of being a drug addict I even had my sister telling any and everyone that she came across that I was on drugs and should have my children taken away I begged the doctors to help me and told them that it was not just ulcers it was not just heartburn that there was something else going on and my life was falling apart and it took me losing so much weight I couldn't function and being so weak I was literally dying once I found myself in ICU I was given 6 weeks to live because I was diagnosed with full rapid body deterioration due to unclear onset. 2 weeks into my death sentence God shine down on me with a unexpected run in with a doctor who was visiting another patient on the ICU unit for some reason he had shown interest in my case and took a look over my files and spoke to me I'm told but I do not remember and within a couple hours knew what was wrong with me I had celiac disease I wasn't out on drugs I was not suffering from ulcers or extreme heartburn I was killing myself eating gluten as directed by my doctors.. since then my social and family life has never recovered extended family never showed any interest in hearing my truth my sister had absolutely no intent on retracting her statements or apologizing for her cruelty or admitting she was wrong and didn't once apologize or show empathy toward the hell I had lived through stating that gluten could not kill someone celiac disease is not that serious and I obviously was doing something to cause myself to be so sick and end up with Celiac disease so on and so forth I was left homeless a few months later because she had convinced my mom that I was using drugs and my children were suffering because of my drug use and that my inability to keep a full-time job and support my family and my constant need of her help was not because I was ill it was because I was a selfish druggie expecting the world to pick up the pieces of my life that I was to selfish to carry with that said I am still struggling to get on my feet once I was diagnosed and understood what I had to do I stuck to my gluten-free diet to a t but it took months to get On my feet and feel ok again about that time I started having other issues and found out I have thyroid cancer which left me with severe jaw bone and dental issues resulting in cracked and broken teeth even shattered teeth that fell apart like glass feeding my sisters theory of drug use (because many people on heavy drugs lose their teeth I guess for whatever reason) And I have applied for every dental assistance program was on a waiting list for months to see the one and only sliding fee scale dentist where I live and once I was in his office he did not take X-rays he didn't do a teeth cleaning he didn't fill a single cavity he simply wrote out a referral to a dental surgeon that was a not sliding fee scale office and sent me on my way since then I have struggled to eat most anything because the thyroid surgery left me with permanent vocal cord damage so it's very hard to swallow I choke all the time and then on top of that I cannot chew things fully and if you indeed have celiac disease and buy celiac friendly food from the store you'll know how dry and often hard it is so I eat a lot of softer foods and snacks that are not healthy because most fruits and vegetables are too hard for me to chew and having a developmentally disabled child makes it hard for me to put a ton of time into making homemade foods since I'm not exactly a great cook as it is. I know I have kind of went on a rambling tangent but I did have a purpose in this post and it is My question about the correlation between thyroid issues and celiac disease and I also have never come across a straight answer of how someone contracts or ends up with celiac disease. And finally I am wondering if there is help for individual struggling to provide celiac friendly food and if there is any kind of dental assistance available for people who struggle with severe dental issues and celiac disease along with thyroid issues. I'm sure there's not a actual dedicated dental assistance program for the purposes I am asking about but I'm sure somebody knows of some kind of dental assistance for individuals struggling with one of the issues I have listed. I'm so sorry for the extremely long post and appreciate the time dedicated to reading my life story and I hope the best for all of you I know how hard it is and how frustrating it can be but it is a comfort to find others who understand and care. Thank you and God bless you all

[trents]

Welcome to this online community @ara050711! It is amazing how judgmental and cruel family members can be toward their celiac flesh and blood! Bad attitudes combined with medical ignorance! I will include a link to an article that appeared on this forum a couple years ago that I believe you will resonate with.

I cannot offer any help or advice about medical/dental assistance programs but I can provide insight into your questions about the cause of celiac disease and its connection to thyroid disease. First, understand that celiac disease is not a food allergy. It is a food modulated autoimmune disorder. Autoimmune means the body's immune system is caused to attack its own tissues. In the case of celiac disease, the ingestion of gluten triggers an autoimmune response that causes inflammation in the villous lining of the small bowel that, over time, damages the villous lining and inhibits the absorption of nutrients from our food. All of our nutrition is absorbed by the lining of the small bowel. So, typically, those with long-term untreated celiac disease develop a host of medical disorders related to nutritional deficiencies even though they may be eating well. 

The basis of celiac disease is genetic. Early research identified two main genes responsible for celiac disease and since then other contributing genes have been uncovered. It is common for people with celiac disease to develop other autoimmune disorders such as Hashimoto's thyroid disease as the genes for a number of autoimmune disorders are found close together in the same area of the chromosome. So, there is overlap. Sorry, this is more of a layman's explanation and not scientifically precise. But it should suffice for our purposes here. About 40% of the general population carries one or more of the genes responsible for celiac disease but only about 1% of the general population actually develops celiac disease. So, having the genes is not all there is to it. It also takes some kind of biological stress event to trigger the sleeping genes and activate them. It can be a viral infection or something else. This is the part that is kind of murky and that we don't know much about yet in specific terms. Why do some people's genes get triggered and others do not? We don't really know. Hope this helps.

Studies show that somewhere between 10% and over 40% of the first degree relatives (parents, siblings, children) of celiacs have or will develop celiac disease themselves. So, you may have the last laugh when some of your cynical relatives turn out to have celiac disease. Not that you are looking for revenge because I know you are not. But you should also be aware of this for your own children.

May the loving and the living God bless and encourage you.

 

Edited May 16, 2024 by trents

[ara050711]

I'm not sure if I am replying in the right area this is new to me but I wanted to thank the individual who sent the reply about family members and judgment when it comes to celiac disease but I also wanted to ask if there is any correlation between c diff and celiac disease and the cancer I was diagnosed with specifically was follicular thyroid cancer so I wondered if that specifically had or may have had anything to do with the celiac disease or if it's just one of those random things that I ended up with. Oh and my reason for asking about c diff is my mom was diagnosed with it and was sick for many years when I was a child throwing up and having diarrhea and in pain before she found out that she was allergic to mold and yeast and things like that and it very much resembled that illness and suffering that I went through for years before knowing I had celiac disease and lastly I wanted to thank you for making sure that I was aware of the danger my children were in of developing celiac disease and let you know that I was very quick to request them to be tested for any indication of celiac disease as well as any indication of thyroid disorders and I insist on their doctors doing it every year whether or not they think it's necessary anyways this is very sloppy rambled and thrown together and I apologize for that I use talk to text so my comments and remarks are more as if I were speaking to someone rather than writing with correct wording grammar and whatnot.. 

God bless you and all the individuals who take the time to respond to individuals looking for answers. A few minutes out of an individual's day to respond to a comment or share a story or try to help another individual is truly something that I appreciate little things like that are done out of kindness generosity and good-heartedness and many times I wish I had answers someone to turn to someone to give a damn at all about what I have to say so when individuals listen respond and care it does mean a lot to some people and God bless all of you 

Alicia🙏🏻😘🤗🙃

[trents]

I do not know that there is a connection between follicular thyroid cancer and celiac disease.

What I can tell you from working in a hospital patient care environment for over 20 years is that most cases of C-diff are connected to repeated and or prolonged antibiotic treatment for other infectious processes. C-diff usually arises from antibiotics killing off beneficial bacteria in the intestinal track, creating an embalance in the gut microbiome that is then exploited by bad bacteria.