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Think I May Be In The Same Boat


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6 replies to this topic

#1 zoommedix

 
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Posted 21 March 2005 - 10:52 AM

Hi All

Another newbie

Confused and curious, a little history
I've been felling "like Crap" for lack of a better term on and off for two years at least, first it started with heartburn type symptoms which long story short was diagnosed as GERD "reflux" this has actually been really good the last year or so what has not been good is my head. At first I thought it was sinus problems and it maybe but I always have underlying symptoms that may be celiac in nature. The reason I'm thinking this is that I finally got fed up and went to a naturopathic doctor. he put me on a 3 week allergy elimination diet. after the first week i felt no better then i eliminated wheat and saw some improvement the last wek has been much better and I have put all foods back in minus grains, I felt awesome for a few days and was quite encouraged. I went out for supper the other night and had steak and mushrooms ( i think the shrooms had soya sauce but I assured befoe hand there was none in it) any way the last two days have been brutal again my symptoms include

Foggy head ( unclear )
irritable
depressed at times
aches in arms and legs
Tired
Malaise
Low grade Headaches
Trouble concentrating
mood swings

I don't seem to have a lot of GI symptoms though

Just wondering if anyone has opinions

Also if any of you accidentally eat wheat etc how long do your symptoms come back for b4 they subside??

any opinions would be helpful

Thanks
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#2 celiac3270

 
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Posted 21 March 2005 - 02:09 PM

You sound celiac to me...1% of the population has it--gives you good odds to start--and then, your symptoms match up. Actually, the most common symptom is fatigue...not diarrhea, not gas...not any GI symptom. You have the most common symptom, along with a few other "typical" celiac symptoms: mood swings, depression, and irritability. I think you should get tested--and don't let your doctor talk you out of the notion that you might have celiac. Doctors recently realized that a person with celiac disease doesn't need to be and most often, isn't the short, thin person with bloating, gas, stomach pains, diarrhea, anemia, and nutritional deficiencies.....doctors finally realized that there is no TYPICAL celiac...because nothing is typical about it. No two people have the same exact symptoms and there are over 200. So get tested and welcome :)
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#3 KaitiUSA

 
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Posted 21 March 2005 - 02:26 PM

It does sound like it could in fact be celiac. There are many symptoms associated with celiac and not everyone has the same ones. You don't have to have GI symptoms you don't even have to have symptoms at all and can still have it. I would recommend to get tested. Surgeries, childbirth, viruses such as mono, and things like that can trigger celiac as well. My celiac was triggered by mono and thats when all my symptoms started. It is a very underdiagnosed disease I would definately get tested for it. I understand feeling like crap all the time I used to feel like that too...but thankfully there is something you can do to feel better with celiac. Good luck :D
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Kaiti
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Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

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#4 ianm

 
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Posted 21 March 2005 - 05:54 PM

Sounds like all of the symptoms I had. Seems like there are new people coming aboard everyday. That can only be considered a good thing.

When I ingest gluten it takes about two minutes and my lips start to get a tingling/prickly sensation. I then start to feel some fatigue. At that point I stop eating to avoid further contamination. I alway take small bites at first and eat slowly just in case there's any hidden gluten.

Welcome

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If all the world is indeed a stage and we are merely players then will someone give me the script because I have no f!@#$%^ clue as to what is going on!

What does not kill you makes you stronger.
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Can't get it right, no matter what I do. Might as well be me and keep fu@$ing up for you. - Brian Thomas (Halloween, the greatest metal band ever!)

Ian Moore. Self diagnosed at 36 because the doctors were clueless.
Started low-carb diet early 2004, felt better but not totally gluten-free. Went 100% gluten-free early 2005 and life has never been better.

#5 stef_the_kicking_cuty

 
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Posted 21 March 2005 - 07:27 PM

You sound celiac to me also. Definately get tested and as celiac3270 said. Don't let your doctor talk you out of it. Stay stubborn. Some docs tend to try to talk you out of it. We heard that a lot in here.

I wish you good luck and welcome on the message board.

Hugs, Stef
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#6 zoommedix

 
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Posted 23 March 2005 - 05:29 PM

Thanks for all the input I found out the problem I had the other day may have been some meat I had that I did'nt know had wheat flour in it. I felt awful within hours and am slowly feeling better now 4 days after the fact!

Question If I have been gluten free for 3-4 weeks and get tested will i geta negative result because i have been not eating gluten laced products??

Thanks''

zoommedix
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#7 KaitiUSA

 
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Posted 23 March 2005 - 05:35 PM

Yes they will most likely come back negative. To get tested you need to be on a gluten filled diet. If you don't want to go back on gluten I would maybe recommend an Enterolab because you do not have to get back on gluten to be tested for that.
http://www.enterolab.com/ Here is their website where you can get more information if you want about that.
Good luck :D
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Kaiti
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Gluten-free since January 2004
Arkansas

Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com




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