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Glutened!
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I am 1 year into this and have been doing remarkably well. I think I've gotten too brave, because yesterday at Germanfest I asked about the brats (they were Usingers) and whether or not they had been boiled in beer. They were, but the manager offered to cook me one that wasn't in the beer. He came back, put it in a bun and handed it to me. Then I told him I couldn't have it and why, and he cooked me another one. Sure enough, in the middle fo the night last night I thought I was going to die!!! Major cramps and then D and sweats. I woke up this morning with a huge headache, but mostly better. I just want to be somewhat normal and eat fun food sometimes that is safe!!

Any thoughts??

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Sorry you're feeling bad. That is no fun. You probably had CC from the grill and the utensils. The utensils touch the buns then your brat and whammie! If the grill wasn't washed clean of the beer brats, whammie! Sorry, I went to a family reunion yesterday where there was very little I could eat. But I ate what I could and had a Lara bar with me and had a good time. It wasn't just about the food.

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Believe me, I feel your pain. I was just thinking of coming here and starting a similar thread. I was on a cruise all week last week and did great. I am only a month into the gluten-free diet and I had finally started feeling better. On the way home from the cruise I ate at taco bell. I made 2 great mistakes:

1. Eating at taco bell in the first place. I thought they'd have more safe stuff. I am going to be giving them a call today.

2. Eating 1 bite of 1 corn chip which I spat out when I realized I had forgotten to ask if it was cooked in common oil. It was. I ate pintos and cheese though. It is hard to believe that 1 bite of 1 corn chip could make me sick for 3 days (so far). The pintos and cheese could have been CC'ed too.

I had been feeling so good finally and I am so discouraged to be sick again. It makes me wonder if it was really the taco bell. I am still waiting on some results from enterolab and it is hard to know for sure if it was gluten or what.

I feel your pain. I really do.

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    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
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