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Is this all in MY head??
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Started by curiousgirl,

4 posts in this topic

Posted

I was diagnosed with celiac last Wednesday, 5/26. I've been doing the best I can on my own to eliminate gluten from my diet...haven't begun to take a look at my cosmetics and body care products. I have an appointment this Thursday with a new gastro doc...but until then.....

These are my test results:

tTG Ab,IgA

>100

Unit: U/mL

Reference Range:

NEGATIVE: <5

EQUIVOCAL: 5-8

POSITIVE: >8

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Posted

Holy cow, unless I'm reading that terribly incorrectly your results are greater than 100 AU!

That couldn't be further from being "all in your head" it sounds more like it's all over your body! The cleansing process can be very confusing and it takes most people multiple tries to finally get totally gluten free at home.

In the meantime, my special drink for gastric issues concerns lots of bacteria. I personally prefer coconut kefir (some of the most delicious stuff in the world) but you could just take some probiotics (or mix the two!). Probiotics have been shown to aid in the recovery of celiac disease, while damaging your intestines with gluten you end up severely disturbing the natural colonies of bacteria that keep your guts running properly.

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Posted

It is not all in your head. It takes a while to recover from the damage, it didn't occur overnight and won't go away instantly either.

Be sure you check all meds and supplements you take, eat a whole food unprocessed diet and learn about CC issues. There is a bit of learning to this gluten free thing but you will get it. Your in a great place to learn what you need to do, like having a seperate toaster for your gluten free items, replacing scratched and wooden cooking utensils, not baking with gluten flours for others etc.

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Posted

When I went gluten free, I experienced the most painful heart burn ever. For a week or two I ate rolaids and tums like they were candy. I had never experienced real heart burn before that. It was super intense but eventually went away. I think the severe diet change caused my body to freak out a bit.

I understand the "Is it all in my head" problem. Trust yourself. You know what's going on even if it seems crazy.

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Go To Topic Listing Celiac Disease - Post Diagnosis, Recovery/Treatment(s)

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    • VeggieGirl
      Blood result! - Should I have my biopsy done tomorrow? HELP

      By VeggieGirl · Posted

      No worries!!! 

      Yes I've been completely gluten free for over a year now, except when I get glutened from restaurants etc. My 'traces symptoms' have always been major bloating and lots of bathroom breaks but now during my gluten challenge so far I've had some super crazy symptoms... varying from loose stools to severe constipation, bloating 24/7, shortness of breath, rash, joint pains, mood swings, brain fog, headaches and some sharp pains similar to brain freeze but worse... the list goes on, but I'm determined to have a definite result! 
    • dharwood
      Mental Trauma

      By dharwood · Posted

      Ennis_TX - Your post rings true with me. I was only diagnosed in May, but from May through.... basically two weeks ago, I was out of my mind. I completely understand when you describe it. I had zero self control. I retired from the Army after 21 years and had always had pride in myself that I could handle just about anything thrown my way. That was until this disease. I found myself sobbing uncontrollably, not getting out of bed till late afternoon, hiding in the bedroom from my own family, missing work, not being able to make simple decisions, I was getting at most, 3 hours of sleep a night. I would sit up in bed and literally scream out loud in frustration. I asked my wife several times to bring me to the VA Psyc. ward (which she talked me out of). I had no pleasure or happiness in my life even though I have a very supportive wife of 32 years, and two ideal kids with three grandkids. I had NO reason to feel the way I did, but yet, there I was. And like you mentioned, I too had a "Bucket List" per say.  To top it all off, I had this horrible muscle pain in my legs and arms. Joints a little, but the muscles were in constant pain. One month ago they diagnosed me with Fibromyalgia. At this point I am not willing to accept that diagnosis.  They started me on Gabapentin and these last two weeks I have actually started feeling less pain in the muscles and my mind is bouncing back too. Although the muscle pain came back a bit Sunday, and has me a little concerned. I keep telling myself it has only been 4 months gluten-free, and that it will take time. But I have to admit, I do not have much patience and I want to start feeling better now.   I ran into an old Army friend a few weeks back, and he had been diagnosed in 2009. He told me everything he went through and other than diarrhea and an inflamed throat, his biggest symptoms were depression/anxiety and brain fog. He said his wife was so worried she sold all of his guns. He would sometimes find himself in the backyard just curled up in the grass wondering when it would end for him. Absolute craziness. When I shared the issues I was having he could relate 100%. He said he hasn't met anyone else that went through the same things as him and it was therapeutic for us both. He told me of some places that were Celiac friendly, and we agreed to let each other know when something new hits the market, or any other good news via text. Back in May I searched for a celiac support group near by, but no luck. I stumbled on this forum and it has helped me tremendously. Stories like yours helped to insure me I was not losing my mind. Which, I might add, I told many VA & civilian Psychiatrists that indeed I was. Thanks for your post, and I hope nothing but the best for you, here forward. Dharwood
    • cyclinglady
      Blood result! - Should I have my biopsy done tomorrow? HELP

      By cyclinglady · Posted

      It is enough for the endoscopy, but not for the blood panel.  It could be worth trying for the blood test, but there is a greater chance of it being negative.  I assume you have been gluten-free for a while.  I admire that you were able to do the gluten challenge!  (I guess I should have pulled up your previous posts, but I was busy getting my kid to school.)

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