Posted 22 June 2010 - 10:14 AM
Posted 22 June 2010 - 11:39 AM
IMHO you would be better off getting a celiac panel done through your doctor. If you have been seeing one for these issues they may be able to order the test and you could pick up or have the lab slip mailed to you without having to pay for an office visit. You do need to keep eating gluten until all testing is finished. There is also about a 20% risk of a false negative with the blood tests and biopsies so if you do go that route do go gluten free after the tests are done. Your body will give you the answer.
There are people here on the board who are 'self diagnosed' as you really don't need a doctors permission to be gluten free. However if you do go gluten free any tests you want done later will be negative without a gluten challenge of about 3 months. The challenge will make most of us very sick if we need to be gluten free as the body will really not like having those antibodies reactivated.
You could also go the Enterolab route, they do gene testing for all the 9 genes but IMHO the more valuable part of the testing is the stool test for antibodies. You can check out their web site for prices and also check out some of the posts here about Enterolab to make an informed decision on whether you want to do their tests or not. Some do not like Enterolab because they haven't had their testing procedures 'peer reviewed' but others consider them to be a valuable part of the diagnosis.
Read as much as you can here as the diet does involve more than just food. Ask any questions you need to.
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
Posted 22 June 2010 - 12:32 PM
If you think gluten is your issue, consider either trying the diet, or exploring other testing.
- James Watson
My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant
Leap, and the net will appear.
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