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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Neurological Symptoms
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4 posts in this topic

For those with neurological symptoms from gluten, how long does it take for them to subside after being glutened? How long did it take to feel better after going gluten free?

My 8 yr old daughter is suffering (and in turn me too). I don't know for sure it's the gluten since she has another medical condition too. But I am desperate for information to try to help her. She's been gluten free for 1 1/2 years but I could be better regarding the cross contamination or hidden gluten. I know she's been glutened recently several times from my stupidity.

Susan

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I've been gluten-intolerant since getting the flu last September. CC results in my GI tract purging and minor lethargy, but being slapped upside the GI tract by a bit gluten hit results in a stronger reaction. I suspect everyone has different reactions, rate of reactions, and recovery times. For me, a heavy gluten hit results in depression, mood swings, and lethargy that take about 5 days to go away. GI symptoms take about 3 days. My emotions aren't severe, especially because they are due to gluten, rather than being tied to life experiences. I can ignore most of it, but that is an advantage of age, too. If I was young I think the mood swings would hit me harder, especially with the feelings of isolation that come with "not fitting in" and not being able to eat some of what most people do. There are so many unknowns and what-if's with gluten intolerance, that it takes an emotional toll even without the gluten-induced mood swings. Best wishes on your research. It takes a lot of strength to question and look for answers.

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I personally have really strong Neurological side effects from gluten, including: feeling irritable, depressed, "out of it" tunnel vision, inability to focus and pay attention, quick tempered, etc. For me, it partially depends on how much gluten I have ingested. For instance, if it were cross contamination, I would experience symptoms within an hour or so and may feel the Neurological symtpoms for a couple hours. If it was something more substantial (such as a cro

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It took 6 months before the neuro symptoms were noticably improved. I still have significant problems though 2 years later. Every time I get cross contamination, I get 5-7 days of terrible neuro symptoms and then 2-4 weeks of diminishing neurosymptoms. Unfortunatly, I'm hypersensitive and manage to CC myself every 6 weeks or so.

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    • 3 months gluten-free still feeling cramps
      Glad to help!   Never stop advocating for your health.  Be patient (that's the really hard part), but it is possible to feel well and recover from celiac disease.  Of course, you'll always have to avoid gluten as if it were rat poisoning, but there are worst things to worry about!    It is nice to have a resource like Celiac.com.  It is anonymous, so you don't have to be embarrassed about asking what you may think are dumb questions.   Hang in there!  
    • Ghirardelli Chocolate Chips
      Well, that is just wheat. Their bars/squares might be wheat free, as well, but the culprit there is barley.    Also I just got this reply: For legal reasons the information that has been provided is the only information we are authorized to provide you with.  To reiterate, our products are not certified as being gluten free. FDA requires products to be tested to confirm that gluten level is below 20ppm. Currently, Ghirardelli products have not been tested to this requirement and therefore, we do not make any gluten free claims for our products. Sincerely,  Ghirardelli Consumer Services
    • Ghirardelli Chocolate Chips
      They seem to be good about saying things may contain wheat when their products are made on shared equipment, for example their ground chocolate which I no longer use.   This is the reply I got a year ago (March 2015) when asking about their 60% cacao chips. "Dear Consumer, There is no wheat in our 60% chips and no wheat in our chips facility, as such, no wheat is run on the same line as any of our chips. Sincerely, Consumer Affairs Response Team"  
    • 3 months gluten-free still feeling cramps
      Thank you so much for the info, I did replace all my cooking wares and I did just recently stop dairy (about 3 weeks ago). I guess I have to keep it going, thank you once again, this give me more courage to continue my quest in feeling better.
    • Ghirardelli Chocolate Chips
      Hey guys,  I emailed Ghirardelli to ask about their updated allergen information because I had heard that people stopped recommending most of their products. I was specifically asking about their chocolate chips because my understanding is that they are free of gluten and not made on the same lines as that one bar/square that contains barley. This is what I received back:
      "Thank you for contacting Ghirardelli Chocolate Company.  We appreciate your interest in finding out about the ingredients in our products and your interest in a gluten free product.

      At this time we do not offer any "gluten free" products, but appreciate your interest in seeing whether Ghirardelli offers one.  Our products are not certified as being gluten free. FDA requires products to be tested to confirm that gluten level is below 20ppm. Currently, Ghirardelli products have not been tested to this requirement and therefore, we do not make any gluten free claims for our products. Please reference the ingredient information, on our packaging for any Ghirardelli product that you are interested in, to determine if it is suitable for you.

      Please know you are a valued consumer and we do appreciate your interest in our products.

      Sincerely,

      Consumer Affairs Response Team"   I asked them to please clarify - are your products testing over 20ppm? Or you don't test them at all? I also asked about the lines that the chocolate chips are made on because the ingredients do not indicated any problems. The customer service rep sent me the exact same message back with one of the lines underlined. I emailed again, and they don't seem to want to disclose any more information.   Has anyone else had any luck talking with them lately? Insights on the chocolate chips?
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