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Non Coeliac Gone Gf-strange Symptoms


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4 replies to this topic

#1 nikki-uk

 
nikki-uk

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Posted 17 June 2005 - 09:41 AM

I don't know if this is in the right place-bare with me.
My husband was dx with celiac disease 9 months ago.
My youngest child has recently been dx with dyslexia with severe behavioral/emotional dfficulties.He's been expelled from school.
There are quite a few links out there with dyslexia and other problems improving on the gluten-free diet.Thought I'd try him on it as we've nothing to loose.

To encourage my son into this I told him'If you do it,I'll do it'(gluten-free diet)
We are 3 weeks in,no noticable signs of improvement for my son as yet.
However I noticed weird things start happening to my body(this is so weird!)
First of all,within a week of going gluten-free the ezcema I have had on my face ,and scalp has completely cleared.My skin hasn't been this clear for years.
Also I have always suffered from constipation ,now (gluten-free)I'm a once a day girl(from a once a week if you're lucky.)
I seem to be eating a larger quantity of food but I've lost 8 pounds without trying.
All sounds great,but when I go to my friends house once a week,we always eat chicken and salad in a pitta bread.Not a problem you'd think as I'm not a coeliac.

Here's where it gets weird.The first week after the pitta bread I ended up in bed for 2 days with a migraine & vomiting.Just a coincidence?
The second week after the pitta bread,I woke up the next day with a banging headache and can only describe the feeling as akin to a monster hangover,but I didn't drink any alcohol.
Week 3 after the pitta bread,I woke this morning with these symptoms:
Headache,nausea
'Hungover' but had no alcohol
Racing heart
Massively sore tongue,eyes stinging.
The most scariest thing was 2 hours after the bread I came over red hot,sweating profusely,with nausea ,and the strangest 'tingling in my tongue and hands'
Now what's this all about?I don't know if it's the wheat or the gluten,allergy or intolerance.Never expected this to happen.My hands are still trembly and I want to sleep for a week.
Help!
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It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki



Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

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#2 MySuicidalTurtle

 
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Posted 17 June 2005 - 09:51 AM

Humans in general don't take well to wheat. So, it isn't too crazy that you saw health improvements. You could have an allergy or problems with gluten.

Going back on gluten will be harsh for your system, like you described. Just because you went without it and it is hard on humans systems.
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#3 Carriefaith

 
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Posted 17 June 2005 - 09:52 AM

There are quite a few links out there with dyslexia and other problems improving on the gluten-free diet.

Really? would you mind posting them, I am very interested in this since celiac runs in my moms side of the family and her niece (my cousin) has dyslexia. Has the diet helped your sons dyslexia?

Anyway... back on topic.

I think you could have a sensitivity to wheat/gluten, an allergy wheat/gluten, or possibly celiac based on your symtoms and reactions. Have you been tested for celiac or wheat allergy?
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Carrie Faith

Diagnosed with Celiac Disease in March 2004
Postitive tTg Blood Test, December 2003
Positive Biopsy, March 3, 2004

#4 nikki-uk

 
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Posted 17 June 2005 - 11:08 AM

I'll try and post a linkhttp://www.fabresearch.org/view_item.aspx

http://www.allergyco...childrenfr.html

http://www.kidscanlearn.net/artdli.htm

As I say,no visible signs of improvement yet,but we'll try anything,cos boy is that boy hard to handle!
Docs won't test him for celiac disease as he has no bowel symptoms,so I'd be refused if I were to ask for one.(nhs system in uk doesn't allow you to choose your doctor)He'd think I was paranoid 'wanna be Coeliac!'(LOL)
Maybe I'll start with skin prick allergy testing,see how much it costs ....
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It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki



Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

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#5 Carriefaith

 
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Posted 17 June 2005 - 07:18 PM

Thanks!

Docs won't test him for celiac disease as he has no bowel symptoms,so I'd be refused if I were to ask for one.(nhs system in uk doesn't allow you to choose your doctor)He'd think I was paranoid 'wanna be Coeliac!'(LOL)

That's too bad :( he should understand that you just want to help your son. Of course you don't want him to have celiac disease. You just want to help him get better.

I don't understand how some of these people become doctors. They are smart but some of them have no people skills and they don't think outside the box. "Well if my outdated textbook doesn't have it then it's not true".

Don't get me wrong here... I know there are many wonderful doctors :) My doctors are in the wonderful category compared to some of the stories I have heard.
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Carrie Faith

Diagnosed with Celiac Disease in March 2004
Postitive tTg Blood Test, December 2003
Positive Biopsy, March 3, 2004




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