How Many Of Your Gi Doctors Were Willing?
Posted 08 March 2004 - 10:46 AM
Mine took months worth...three months worth
Posted 08 March 2004 - 11:29 AM
Posted 08 March 2004 - 12:24 PM
My family doctor is still a schmuch...... but since I am on state assistance I cant choose my doctor. Its a whole messed up situation.
Anyway, My doctor says I do not have Celiac because she tested me for it with blood work eventhough I told he odds of it coming out positive were slim since I was alreay on a gluten-free diet. She insisted that it would come out with accurate results either way and that shes right and that I had been mis-informed.
I pretty much diagnosed myself with the help of a dietition since starting a gluten-free diet was the only thing that helped. My dietition has helped with the start of my recovery but I can only get so much help with the medical field till I can prove to them the way I feel is got to be Celiac sonce nothing else helps.
Still my doctor wont do anythign about it. my next appointment is the 25th of this month and she wont bump it up as an emergency one.. which means if I dont get a note saying whats wrong with me the caseworkers and my boss are going to go against me and take away my state money. and then how am I going to pay my bills....
Ive been losing jobs, no one understands... I need doctors notes for work and the DSHS people... What am I supposed to say so that they'll understand??????? Its like no one believes me!!! AHHHHHHHHHHH
Anyone having this problem???????? I wanna work but i am too sick all the time to. And no one believes me!
Living gluten-free, Egg, Dairy, Nut, Soy, and Corn Free since Winter/Spring 2003
Fathers be good to your daughters,
Daughters will love like you do,
Girls become lovers who turn in Mothers,
So mothers be good to your daughters too.
Posted 08 March 2004 - 03:44 PM
Get a new Dr- if your current one is so horrible, why are you sticking around? I too had to beg my Dr for the bloodwork. I took the test on June 10 2003 and called the office for 2 weeks straight to find out the results. They did not call me back until July 3rd. When I asked them to fax me a copy of my bloodwork, it indicated that they recevied the results back on June 13. They waited 3 weeks just to call and give me my results. So, I changed Dr's and I am so much happier now.
Posted 08 March 2004 - 04:20 PM
Posted 08 March 2004 - 04:33 PM
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 08 March 2004 - 04:44 PM
It would not have bothered me if he didn't accept it because I was there to see him for other problems and would NEVER go back on gluten to satisfy him or any other doctor.
Posted 08 March 2004 - 07:56 PM
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Posted 09 March 2004 - 05:58 AM
Especially since the 10th of Feb my little guy has had exactly 5 formed bms.. the rest.. ick.. so we are back where we started.. mabye now he will listen.
But I knew before I went to this guy he was a tough sell.. I wanted to deal with the children's hospital so I pretty much have little choice in the doc..
Posted 18 March 2004 - 04:50 PM
Posted 18 March 2004 - 06:29 PM
I was so sick I thought I had a stomach virus. I had lost 10 lbs by my third visit so I think he caught on. But talking to my GI he told me if I hadn't been so sick it probably wouldn't have been picked up on.
My problem now is my GI (whom I like and respect) keeps hinting around that I have Crohns. Can't they do a test for that? I already had a colonoscopy and he found some inflammation not related to celiac disease or he thinks not related to celiac disease.
It does seem every time I see a doctor I walk away with more questions than answers.
Posted 19 March 2004 - 11:22 AM
I remain forever grateful to her.
Blessings to all.
Posted 20 March 2004 - 11:17 AM
And call it what you will, i do blame this doctor. My mother had to beg for a colonoscopy even though the danged tumour was big enough that you could feel it from the outside. Her oncologist wrote up the doctor since it was his firm belief that if it had been caught even 6 months prior we could have had a fighting chance. Instead, she died 6 weeks later.
Posted 23 March 2004 - 01:15 PM
I'm new to this forum, so please excuse and correct any wrong behavior.
I had become convince I had celiac disease by reading "Dangerous Grains", so I got the name of a GI doctor in San Francisco from the list on this website. He was great and did the endoscopy and biopsy, which was positive. However, he said that he spends a lot of his time training other doctors and labs in how to read the biopsy reports, because they commonly misdiagnose if they haven't been really trained to spot celiac disease. As a matter of fact, I got a copy of the biopsy report (I always try to get copies of all my tests), and it said that based on the percentages, it was negative for celiac disease. But my GI had written on there that my score was actually high enough to indicate celiac disease. Now, how many other doctors, who don't specialize in celiac disease, would have just read the report and sent the patient to a psychiatrist (which happened to me)?
I got the wrong diagnosis from about 20 different doctors for 51 years, but then, most of this info is brand-new, and I didn't have the classic symptoms. When I was a kid, in 1966, I worked as an aide in nursing homes. I remember a poor old woman who I now believe must have had celiac disease. Every time she ate, it went right through her, immediately. It was just awful. Besides the pain and being sick all the time, she was just humiliated and so apologetic every time. If I have to have a disease, this is the one to have. All I have to do is watch what I eat and I can have a normal life. I'm really amazed because I have been sick for so long. I'm so glad to have found this message board, I was feeling pretty isolated before this. Thanks!
Posted 25 March 2004 - 09:11 PM
Now the story has changed. Boy, we are sorry. You have probably had CF all your life as it is inherited. I have rhumitoid arthritis and a tumor on the thyroid they are watching, not to mention something swollen under my right chin the size of a ping pong ball(it has been this way for 3 years.) Three different doctors have looked at the same CAT scan, and each one says it is something different. One said it is a cluster of Lymph nodes, one said it is a bone, and one said it is saliva glands which have melfultioned because of the arthritis.
Anyone know a good Celiac Doctor in Cedar Rapids, Iowa?
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