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Symptoms Of Recovery

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Posted 19 January 2011 - 09:03 PM

Some symptoms I am experiencing the past week (found out a week ago today that I am celiac):

- severe diarrhea one second, constipation the next
- internal bruising in stomach (like my tummy is bruised inside, weird)
- burning eyes (like tired feeling)
- bursts of energy that come and go
- feeling VERY dehydrated
- shaky
- day 6 of headache (two of those days were migraines)
- pain in stomach
- flu-like symptoms
- itchy skin
- restless sleeping (tossing and turning/diagnosed with Restless Leg Syndrome today, starting new meds)
- insomnia got worse
- skin on stomach sensitive to touch

Is anyone else going through this or gone through this? I feel crazy for feeling all this, but I know I am. Any insight would be great :)
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Posted 20 January 2011 - 06:07 AM

It can take some time to heal and ups and downs are not uncommon. Do make sure to check and make sure all meds you are taking are gluten free and take precautions against cross contamination. Go with whole unprocessed foods at first and it is helpful to also drop dairy. I hope your feeling better soon.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)

celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom

Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)



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Posted 20 January 2011 - 03:22 PM

I had 7 of those when I went gluten free. Things that helped:
1) Getting very strict about cross contamination
2) Drinking water or decaf tea instead of juice/soda. Sugary drinks and even too much fruit made the dehydration worse. I think it was a blood sugar imbalance I was triggering.
3) Rest (even if it wasn't sleep)
4) Time
5) Replacing my giant multivitamins with lots of protien shakes. (I could also have found chewable gluten-free vitamins if I had known where to look [Bellibar prenatals])
6) Stopping the NSAIDS and/or Asprin products

Congrats on the diagnosis and the beginning of recovery.
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