Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Two Different Answers From Same Company!


Guest gillian502

Recommended Posts

Guest gillian502

Over the past month I have noticed a disturbing trend when calling the food companies to check on their products: I am getting two different answers depending on who I talk to!

A month ago I had severe diarrhea after eating two types of Jimmy Dean sausage-the pre-cooked and the uncooked. I called the company and was re-assured the pre-cooked was gluten-free, as well as the uncooked. I asked them to send a lettter stating all of their gluten-free sausage. Well, the letter came, stating, "Our uncooked sausages are gluten-free, however, our pre-cooked sausages are NOT gluten-free." The people on the phone told me one thing, the letter said the total opposite.

Then, I called Kaopectate to check on their gluten-free status. The lady on the phone assured me it was gluten-free. I waited, called back a few days later, and a second person told me she would research that because there was no information available. She called me back to inform me kaopectate is NOT gluten-free!

So...what are we supposed to think, here? I feel like I can't trust ANY of the products now. And companies like Kraft who tell you to just look at their labels because they will put stuff in parenthesis if it comes from wheat just make me nervous. I prefer a product by product answer. Anyone else encounter this kind of inconsistency?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SadiesMomma Apprentice

I know it sounds like a pain in the rear... but trust NO ONE! Most people dont understand how important it is for us to remain gluten-free, and many could really care less sadly to say. Its their job, no ones perfect...

I stick to this theory:

"If I dont know 100% that it wont make me sick, I wont eat it"

I have learned not to trust anyone but other celiacs because you guys and gals understand the importance it is... Good luck!

Guest gillian502

But then how do we eat anything? I always thought calling the company was the safest method, as well as checking the ingredients list. Now I feel like these companies don't know their own products, so, that leaves no food for the rest of our lives except fresh meat, vegetables, and fruit, and I know I can't go too long without at least some canned or frozen foods. It's so frustrating!

Guest Libbyk

It seems to me that getting a company to send you a WRITTEn list of their gluten-free products is a more reliable way of getting the info. the person on the phone may not care, or be tired, or read it to you wrong, but if they put it in writing, a company tends to be a lot more particular about the details. If nothing else, because in our litigious society, writng things down puts them at risk for a lawsuit if it wrong. Just my theory

Libby

Guest jhmom

Libby,

I was thinking that very same thing. The problem is sometimes we are in such a hurry we just call their 800#, I think I will try to start planning ahead more often and get it in writing.

Guest gillian502

I just wish more companies would put in in writing. About 70% I've spoken to so far won't, probably because they are afraid of a lawsuit. If I'm given two opposing answers about a product as I have been given lately, I don't even take the chance anyway. It just makes me wonder how many times I've taken a representative's word for something that is wrong and haven't realized it!

Guest Libbyk

what I have done is to call the 800# (I am pretty lazy, jhmom) and ask my question AND ask for any written info they have. Not all, but a number of companies (hormel, wild oats, etc) have offerd to email or mail me a written list of their gluten-free products.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Confused about HLA-DQ Celiac gene test result

    2. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Confused about HLA-DQ Celiac gene test result

    3. - knitty kitty replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      38

      Blood results

    4. - knitty kitty replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Confused about HLA-DQ Celiac gene test result

    5. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,466
    • Most Online (within 30 mins)
      7,748

    Bigbear
    Newest Member
    Bigbear
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Remember that damage to the small intestine can be microscopic and patchy. Deficiency in Thiamine can result in Gastrointestinal Beriberi.  The symptoms are the same as a glutening!    Clinical profile of patients presenting with thiamine-responsive upper-gastrointestinal upset: A pointer toward gastric beriberi https://pubmed.ncbi.nlm.nih.gov/35810577/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Dental problems can result in vitamin and mineral deficiencies due to Malabsorption in Celiac Disease. The Role of Vitamin B Complex in Periodontal Disease: A Systematic Review Examining Supplementation Outcomes, Age Differences in Children and Adults, and Aesthetic Changes https://pubmed.ncbi.nlm.nih.gov/40218924/
    • trents
      Of course, I thought about the OP not being consistent with the gluten-free diet and about cross reactivity. But you would think those things would show some damage in the biopsy, especially as severe as the symptoms seem to be. SIBO? Perhaps. But then we are probably leaving a celiac diagnosis and that is the question.
    • knitty kitty
      Processed meats and formed meats, like sausage, sandwich meats, chicken nuggets, contain "meat glue" to hold their shape.   This "meat glue" is produced by bacteria and called microbial transglutaminase.  It's the same structually as tissue transglutaminase that our bodies produce in response to gluten.  Microbial transglutaminase provokes the same autoimmune reaction in our bodies as if we had eaten gluten.   Microbial transglutaminase is also used in dairy products like yogurt.   Bacon is high in histamine.  Eating high histamine foods can cause continuing gastrointestinal symptoms.  A low histamine diet helps. Processed gluten free processed foods are not enriched with vitamins and minerals like gluten containing products are.   Deficiencies in Thiamine B1, Niacin B3, and  Vitamin C can also result in gastrointestinal symptoms.   Blood tests for B vitamins are not accurate because they don't measure the amount of a vitamin stored inside cells.  The blood is a transportation system delivering vitamins from the digestive tract around the body.  What's on a truck doesn't tell you that the warehouse is almost empty.   Supplementing with B vitamins is important! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/
    • knitty kitty
      How clean is her gluten free diet?  Is dairy included? Does she eat out?  SIBO?  Thiamine deficiency presenting as Gastrointestinal Beriberi?
    • knitty kitty
      There's more essential vitamins than B12 and Vitamin D!   Thiamine is B1.  Thiamine deficiency causes insomnia. Thiamine deficiency causes changes in brain function resulting in anxiety, insomnia, depression and dementia.  The brain uses more thiamine when stressed emotionally or physically.   Interesting Reading: Subclinical Thiamine deficiency causes anxiety, insomnia and depression... https://www.psychiatryredefined.org/running-on-empty-subclinical-thiamine-deficiency-is-common-and-causes-depression/#:~:text=Early signs of low thiamine,low appetite%2C and sleep disruption. Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Sleep and indolamine alterations induced by thiamine deficiency https://pubmed.ncbi.nlm.nih.gov/6182942/ Thiamine deficiency-induced disruptions in the diurnal rhythm and regulation of body temperature in the rat https://pubmed.ncbi.nlm.nih.gov/9804367/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.