Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Two Different Answers From Same Company!


Guest gillian502

Recommended Posts

Guest gillian502

Over the past month I have noticed a disturbing trend when calling the food companies to check on their products: I am getting two different answers depending on who I talk to!

A month ago I had severe diarrhea after eating two types of Jimmy Dean sausage-the pre-cooked and the uncooked. I called the company and was re-assured the pre-cooked was gluten-free, as well as the uncooked. I asked them to send a lettter stating all of their gluten-free sausage. Well, the letter came, stating, "Our uncooked sausages are gluten-free, however, our pre-cooked sausages are NOT gluten-free." The people on the phone told me one thing, the letter said the total opposite.

Then, I called Kaopectate to check on their gluten-free status. The lady on the phone assured me it was gluten-free. I waited, called back a few days later, and a second person told me she would research that because there was no information available. She called me back to inform me kaopectate is NOT gluten-free!

So...what are we supposed to think, here? I feel like I can't trust ANY of the products now. And companies like Kraft who tell you to just look at their labels because they will put stuff in parenthesis if it comes from wheat just make me nervous. I prefer a product by product answer. Anyone else encounter this kind of inconsistency?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SadiesMomma Apprentice

I know it sounds like a pain in the rear... but trust NO ONE! Most people dont understand how important it is for us to remain gluten-free, and many could really care less sadly to say. Its their job, no ones perfect...

I stick to this theory:

"If I dont know 100% that it wont make me sick, I wont eat it"

I have learned not to trust anyone but other celiacs because you guys and gals understand the importance it is... Good luck!

Guest gillian502

But then how do we eat anything? I always thought calling the company was the safest method, as well as checking the ingredients list. Now I feel like these companies don't know their own products, so, that leaves no food for the rest of our lives except fresh meat, vegetables, and fruit, and I know I can't go too long without at least some canned or frozen foods. It's so frustrating!

Guest Libbyk

It seems to me that getting a company to send you a WRITTEn list of their gluten-free products is a more reliable way of getting the info. the person on the phone may not care, or be tired, or read it to you wrong, but if they put it in writing, a company tends to be a lot more particular about the details. If nothing else, because in our litigious society, writng things down puts them at risk for a lawsuit if it wrong. Just my theory

Libby

Guest jhmom

Libby,

I was thinking that very same thing. The problem is sometimes we are in such a hurry we just call their 800#, I think I will try to start planning ahead more often and get it in writing.

Guest gillian502

I just wish more companies would put in in writing. About 70% I've spoken to so far won't, probably because they are afraid of a lawsuit. If I'm given two opposing answers about a product as I have been given lately, I don't even take the chance anyway. It just makes me wonder how many times I've taken a representative's word for something that is wrong and haven't realized it!

Guest Libbyk

what I have done is to call the 800# (I am pretty lazy, jhmom) and ask my question AND ask for any written info they have. Not all, but a number of companies (hormel, wild oats, etc) have offerd to email or mail me a written list of their gluten-free products.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MicG replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Test interpretations

    2. - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Test interpretations

    3. - MicG posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Test interpretations

    4. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      how long does it take for the genetic blood test for celiac to come back?

    5. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,655
    • Most Online (within 30 mins)
      7,748

    Murdy3
    Newest Member
    Murdy3
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • MicG
      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
    • MicG
      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
    • catnapt
      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood work comes back negative for the genes, then I will cancel the endoscopy. If positive, I will try the 2 week gluten challenge and get the endoscopy done. If I can't manage the gluten challenge (I had HORRIBLE symptoms last time and quit after 12 days) then we'll just assume it's celiac disease and go from there. She says she does a full nutrient panel on all her pts every year, that was nice to hear.I'm on so many supplements it would be nice to only have to get the ones I truly need! so yeh, really anxious about the test results for the genes!! I have an identical twin sister so I'd need to tell her if it's positive, she'd prob want to get tested too. *interesting note: when I said if the blood work comes back that I don't have the genes, then I'm in the clear - she said, well,,,,,,not necessarily. But she didn't want to go into as we had a lot to go over. I did make a  mental note of that comment and will ask her when I see her next time.   she was very thorough! I was impressed! she even checked- up on some lab work I had done that my Endo ordered. I like her, I am looking forward to seeing her again. I think I'll get some good advice and info from her she also complimented me on my diet.   said it was a very gut friendly and healthy diet 
    • Scott Adams
      I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should be able to contact Kaiser for those records.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.