Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

False Positive?


the2ofus

Recommended Posts

the2ofus Rookie

My daughter has been diagnosed with Lactose Intolerance and Irritable Bowel Syndrom. These are both symptoms of Celiac. She had the blood test and it came back as a false positive. This means the IGG were irregular but the IGA and IGE were negative. Does anyone know exactly what this means. The doctor said it means she does not have celiac. Could he be wrong? Any information you can give me would be helpful.

Thank you

Robin


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

well, I guess you could call it inconclusive, but until you can otherwise verify that she's not celiac, you can't call it a false positive. celiac is NOT an IgE mediated response (from my understanding it can also cause an IgE response due to inflammation, but that's not the primary mechanism) (that's a "classic" allergy), and if he didn't do a total IgA count, a low IgA reading doesn't really tell you anything. The fact that the IgG was elevated suggests that she _could_ be positive. Based on a single raised IgG, my doc had me do a dietary test (which turned out positive).

Guest jhmom

Hi Robin- Welcome :)

In my opinion blood test are not conclusive or accurate. I suffered for over a year with the classic Celiac symptoms including losing 40lbs in 2 months and my doc still thought I had IBS. I had an endoscopy, which showed patchy inflammation and he STILL thought it was IBS because my blood-work came back negative! The docs think they have to see everything in black and white and when they don't they quickly dismiss celiac disease. Of course there are other docs who think celiac disease is so rare and they his/her patient couldn't possibly have it!!!

I finally decided to order the stool panel tests from Open Original Shared Link and received positive results and immediately began a gluten-free diet! This particular stool test is more sensitive than blood and you do not have to be on gluten for it to be accurate. I could tell a difference in the way I felt within days and very thankful that I took this route and do not have to live in pain on a daily basis!

Good luck to you and your daughter, I hope she feels better soon! :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    2. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    3. - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,807
    • Most Online (within 30 mins)
      7,748

    Aron2
    Newest Member
    Aron2
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.