Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Achiness/fatigue


tammy

Recommended Posts

tammy Community Regular

Does anyone else experience fatigue and achiness in the morning? The achiness is inconsistent but the fatigue is more frequent. Each day I keep a journal and make mental notes of how I can feel better. The fatigue is getting much better now. :lol: Yet sometimes I am achy in the morning, and I am just not sure why. Although I am not allergie to nuts, I did eat a very generous portion of nuts before bed the other night. The next morning I felt so achy. So I am on yet another mission. I will rotate my diet and exclude nuts for a few days. My menu options are limited, but there is only so much one can do with their vegetables :P I make a point to eat fresh green salads, cucumbers and peppers. I eat low carb and so nuts are my treats.

Can anyone relate?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest dlf1021

tammy-

i can relate to both of those, though i'm still searching for answers. i often wake up in the morning with a terrible back ache, but i haven't determined whether it's a problem related to celiac or just a too-firm mattress.

as far as fatigue, it seems as though i'm just always tired. the morning is generally worse, as are times when i ingest gluten. i can always tell almost immediately whether i've contaminated my system because within an hour i'll more or less fall asleep where i stand. i doubt your fatigue is due to gluten ingestion though.

Lily Rookie

I get the achiness and tiredness. My joints will inflame something terrible along with muscle aches at times. For me, this is my signal that I've picked up gluten somewhere. After I've accidentally ingested, I'll start the aches a few days later and it will last 2-3 weeks. My doc says these are classic celiac symptoms, because when we ingest that poison, it attacks our joints. I eat nuts too, but make sure I get them from the health food store. I haven't found one I can tolerate that has been processed/canned. What about salad dressing? You say you have a lot of salads. I use Annie's Naturals, but I have found I also feel better when I make everything myself.

Good luck Tammy!

Lily

seeking-wholeness Explorer

tammy,

What brand of nuts did you eat? I (and my baby) have reacted to Planter's dry-roasted unsalted peanuts, so I am having a hard time trusting nuts right now.

I also tend to wake up fatigued with an achy torso, especially if I have recently had an "accident." I have noticed that the aches are much worse if I roll onto my back as I sleep, so I try to stay on my side as much as possible.

The morning fatigue has been improving fairly steadily since I went gluten-free, most likely assisted by the porcine thyroid supplement my naturopath put me on. I was on it before I went gluten-free, too, but it didn't work at all until my antibody levels started going down (at least, I'm assuming that they have gone down :) ). Do you track (or even spot-check) your basal temperature? If it's low (below 97.8, if I'm remembering correctly), you might want to look into some form of thyroid supplementation. (Or are you already being treated for hypothyroidism? I can't remember....)

I hope you can track down the reason for your troubles, so you can start feeling better. Good luck!

gf4life Enthusiast

Hi Sarah,

Do you know if the low basal temp. is the same for children? Could it be a thyroid problem in a child (age 7)? I chart my son's temp. daily at least 3 times and he is often below 97.8, and after a high fever episode (he has a recurrent fever syndrome of some sort) his temp drops down to 96 and sometimes as low as 94.9. Scares me a lot. The doctors don't seem to pay much attention to it when I show them the chart, but he is now seeing a rheumatologist/infectious disease specialist that is running a bunch more tests on him. He also has joint pains and often is very achy and tired in the mornings and doesn't want to get up for school. When I do get him up he is very grumpy.

Do you think it might be thyroid related? I am hoping that it will get better as soon as I can get him feeling good on the gluten-free/casein-free diet. His fat malabsorbtion was 272, which is borderline normal(normal is less than 300), but seems a lot for a child so young. He does not eat a super high fat diet, so I don't know why it would be so high. Mine was 54, my 9 year old was 55, and my 4 year old was 148 (which I also think is high). Anyhow, let me know what you think. I know you like to do research like I do, but I am at a loss with him, (at least until the test results come back and point me in a new direction!)

God bless,

Mariann

seeking-wholeness Explorer

Mariann,

I would look into thyroid testing, if he were my child. I seem to remember reading that celiac disease-related antibodies can cross-react with thyroid tissue, leading to decreased thyroid function. I'm sure most doctors would assume that there hasn't been enough time for significant damage to occur in your son, but given that he seems to have TWO potentially serious/lifelong conditions, I wouldn't rule out the possibility. His body must certainly be under an astonishing amount of stress just dealing with daily functioning, and as we humans are finally learning, stress can compound ANY health problem!

OK, I just searched for the article I read, and my memory was a little bit off (the article I was remembering pertained to the PARAthyroid gland). I DID find this article abstract here on the site, though, which you may find interesting.

I hope the gluten-free/CF diet works its magic for your son and that his doctors can actually figure out what exactly is causing his fever disorder. Good luck to you both!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    2. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,412
    • Most Online (within 30 mins)
      7,748

    Susan Marble
    Newest Member
    Susan Marble
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.