Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Achiness/fatigue


tammy

Recommended Posts

tammy Community Regular

Does anyone else experience fatigue and achiness in the morning? The achiness is inconsistent but the fatigue is more frequent. Each day I keep a journal and make mental notes of how I can feel better. The fatigue is getting much better now. :lol: Yet sometimes I am achy in the morning, and I am just not sure why. Although I am not allergie to nuts, I did eat a very generous portion of nuts before bed the other night. The next morning I felt so achy. So I am on yet another mission. I will rotate my diet and exclude nuts for a few days. My menu options are limited, but there is only so much one can do with their vegetables :P I make a point to eat fresh green salads, cucumbers and peppers. I eat low carb and so nuts are my treats.

Can anyone relate?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest dlf1021

tammy-

i can relate to both of those, though i'm still searching for answers. i often wake up in the morning with a terrible back ache, but i haven't determined whether it's a problem related to celiac or just a too-firm mattress.

as far as fatigue, it seems as though i'm just always tired. the morning is generally worse, as are times when i ingest gluten. i can always tell almost immediately whether i've contaminated my system because within an hour i'll more or less fall asleep where i stand. i doubt your fatigue is due to gluten ingestion though.

Lily Rookie

I get the achiness and tiredness. My joints will inflame something terrible along with muscle aches at times. For me, this is my signal that I've picked up gluten somewhere. After I've accidentally ingested, I'll start the aches a few days later and it will last 2-3 weeks. My doc says these are classic celiac symptoms, because when we ingest that poison, it attacks our joints. I eat nuts too, but make sure I get them from the health food store. I haven't found one I can tolerate that has been processed/canned. What about salad dressing? You say you have a lot of salads. I use Annie's Naturals, but I have found I also feel better when I make everything myself.

Good luck Tammy!

Lily

seeking-wholeness Explorer

tammy,

What brand of nuts did you eat? I (and my baby) have reacted to Planter's dry-roasted unsalted peanuts, so I am having a hard time trusting nuts right now.

I also tend to wake up fatigued with an achy torso, especially if I have recently had an "accident." I have noticed that the aches are much worse if I roll onto my back as I sleep, so I try to stay on my side as much as possible.

The morning fatigue has been improving fairly steadily since I went gluten-free, most likely assisted by the porcine thyroid supplement my naturopath put me on. I was on it before I went gluten-free, too, but it didn't work at all until my antibody levels started going down (at least, I'm assuming that they have gone down :) ). Do you track (or even spot-check) your basal temperature? If it's low (below 97.8, if I'm remembering correctly), you might want to look into some form of thyroid supplementation. (Or are you already being treated for hypothyroidism? I can't remember....)

I hope you can track down the reason for your troubles, so you can start feeling better. Good luck!

gf4life Enthusiast

Hi Sarah,

Do you know if the low basal temp. is the same for children? Could it be a thyroid problem in a child (age 7)? I chart my son's temp. daily at least 3 times and he is often below 97.8, and after a high fever episode (he has a recurrent fever syndrome of some sort) his temp drops down to 96 and sometimes as low as 94.9. Scares me a lot. The doctors don't seem to pay much attention to it when I show them the chart, but he is now seeing a rheumatologist/infectious disease specialist that is running a bunch more tests on him. He also has joint pains and often is very achy and tired in the mornings and doesn't want to get up for school. When I do get him up he is very grumpy.

Do you think it might be thyroid related? I am hoping that it will get better as soon as I can get him feeling good on the gluten-free/casein-free diet. His fat malabsorbtion was 272, which is borderline normal(normal is less than 300), but seems a lot for a child so young. He does not eat a super high fat diet, so I don't know why it would be so high. Mine was 54, my 9 year old was 55, and my 4 year old was 148 (which I also think is high). Anyhow, let me know what you think. I know you like to do research like I do, but I am at a loss with him, (at least until the test results come back and point me in a new direction!)

God bless,

Mariann

seeking-wholeness Explorer

Mariann,

I would look into thyroid testing, if he were my child. I seem to remember reading that celiac disease-related antibodies can cross-react with thyroid tissue, leading to decreased thyroid function. I'm sure most doctors would assume that there hasn't been enough time for significant damage to occur in your son, but given that he seems to have TWO potentially serious/lifelong conditions, I wouldn't rule out the possibility. His body must certainly be under an astonishing amount of stress just dealing with daily functioning, and as we humans are finally learning, stress can compound ANY health problem!

OK, I just searched for the article I read, and my memory was a little bit off (the article I was remembering pertained to the PARAthyroid gland). I DID find this article abstract here on the site, though, which you may find interesting.

I hope the gluten-free/CF diet works its magic for your son and that his doctors can actually figure out what exactly is causing his fever disorder. Good luck to you both!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    2. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    3. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    4. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal

    5. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,347
    • Most Online (within 30 mins)
      7,748

    Emhope1107
    Newest Member
    Emhope1107
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.