Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Metabolism?


PadmeMaster

Recommended Posts

PadmeMaster Apprentice

I'm *not* a big eater. I'll snack (a lot) but I have a tendency to do things like one week on one week off jsut because of money issues. Lately, though, I've been eating 2-3 meals a day.. By 10pm I'm absolutely staving, so go to bed to avoid eating a late night snack. Then, Saturday, my body went haywire. I typically will have a spell of unending hunger for one day once a month (and normally I attempt to satisfy that hunger, too). But it's not been one day and it's not the right time of month. So... Also, I've had a headache since about this time yesterday. It went away with caffeine (extreme; I had a Monster Energy drink) but is now returning. It feel like a miniature migraine (as strange as that may sound).

So I'm confused and not sure what to do.. Last time I had this kind of hunger, I was 14 and could eat 4 servings of whatever without gaining weight. Now I'm 18, have gained a ton (over 50 pounds since I was 14, though initially because of medicine) of weight, and am already limited to foods with a higher fat (or fruit/veggies. Brothers need higher fat and almost every processed food I pick up has higher fat).

To give an example on how crazy it is: This morning I ate approx 2.5 cups of farmer's pie (meat, a lot of peas, and mashed potatoes made extra fatty). It was about 30 minutes later that I felt hungry, and less than an hour when my stomach growled. For lunch, I have as many cherries as I wanted (my stomach gave signs of being done, so I stopped) and then less than a minute after putting up the cherries, my stomach demanded food, so I poured myself a bowl of pretzels (I'm getting 4 bowls out of my "family" sized bag of Glutino pretzels.. I don't share, either). I ate those and one gummy worm (Left over from last night.). I probably finished eating around 2 o'clock. My stomach is talking to me rudely (growling pretty loud and some minor pains) as if I haven't eaten since yesterday! I'm about to go bulk up our homemade chili and will probably eat two huge helpings of that, too. Oh, and calorie addition on there, I had that monster energy, too (at 7am). Yesterday was just as bad (I ate two huge servings of the farmer's pie for dinner at 7:00, and was still hungry before I went to bed at 9:30).

Part of my concern is feeding into this, even with mostly healthy foods (unlike today :P ) and gaining a lot of weight. I'm CURRENTLY 40-50 pounds overweight, and am wearing my mom's pants that she can't fit into anymore because everything I have is too small. So I can't gain enough more to knock me into 18s! But this constant hunger is bugging me..

Also: I have been CC'd in the last week, and am currently feeling the repercussions of having milk in the last few days (*cough* yesterday), but I've never had extreme hunger from the one before (and the other is new).

TIA!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



organicmama Contributor

How long have you been gluten-free and CF?

Link to comment
Share on other sites
PadmeMaster Apprentice

I've been gluten free for a year (as of sometime this month). Cf is casein? I've not managed cf yet. Goal is to not touch it again. I'm having a little trouble but will get on track. I'll go to whole foods sometime this week, which will help.

Link to comment
Share on other sites
Marilyn R Community Regular

I had ravenous hunger for a few months after going gluten-free. Instead of empty snacks like pretzels, you might like to try whole nuts for a snack. The really satisfy the hunger and quiet the beast. (Your stomach.) I'm underweight but really sensitive, so the gluten-free Foods at the grocery didn't work for me.

Another wierd thing that I discovered is that I crave meat from the bone. There is something strangely satisfying about eating bone marrow or any meat on the bone. Or you can boil meat bones with veggies to make your own stock to cook rice in, or make soups.

I suspect that it has something to do with a need for calcium, which I couldn't absorb previously. Have you had your vitamin levels checked lately? That might be worthwhile.

Link to comment
Share on other sites
PadmeMaster Apprentice

No, I haven't had my vitamin levels checked, although mom was reading something the other day and commented about our D intake.. So I might get it checked because I just read something that said too much D was dangerous.. lol

Thanks :)

Link to comment
Share on other sites
eatmeat4good Enthusiast

When I looked at gummy worms for my son, they had gluten in them. Read that package.

Try filling up on protein not the potatoes. Protein is more satisfying and you can eat as much as you like or need without gaining weight. Cooked vegetables, fruit and veggies...if you stick mainly to that and minimize rice and potatoes (and pretzels) you won't gain so fast. Carbs have a way of making you want more. I try to keep it at around 30 g carbs a day and I feel way better. But if I eat a bunch of carbs...for sure the next day I am hungry as a bear...not for good food...but for carbs or sugar. Feed your body when it's hungry but not on carbs.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,505
    • Most Online (within 30 mins)
      7,748

    Afton Horvath
    Newest Member
    Afton Horvath
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • powerofpositivethinking
      I haven't been on this forum for a long time, but it was absolutely wonderful during the diagnostic process!  My path for celiac disease diagnosis was the following: -Had normal IgA level, and my only serology positive test was the DGP IgG -Deficiencies in both Vitamins D and K that did not increase at first despite massive supplementation -Diagnosis of fat malabsorption both total and neutral -Diagnosis of severe exocrine pancreatic insufficiency (EPI) -Testing was completed to rule out causes of EPI, and the only one not ruled out was celiac. -Both traditional endoscopy and pill capsule endoscopy yielded negative results for biopsy confirmation, but my GI doctor said that both procedures simply could have missed the damaged spots. -EPI and fat malabsorption resolved after taking Creon for 6 months since my EPI was caused by celiac -23 and Me said I don't have either of the two prominent genes for celiac disease   Remember that you might not have 'textbook' symptoms, but you still may have celiac disease.   Also, I am SO incredibly grateful for this site for all the learning it has allowed me to do. I have a senior dog, and these last few weeks with her were very scary! After two hospital stays, she finally received an IBD diagnosis after having gastroenteritis and pancreatitis. I know that celiac disease is not IBD, however, through reading this site, I learned more about it. I was relieved when I found out she had IBD and not cancer this past Wednesday. I know IBD can be managed thanks to what I've learned here!  So celiac.com, not only did you help me, but you helped my pup too! Thank you ❤️  
    • SuzanneL
      It was tTG IGG that was flagged high. I'm not sure about the other stuff. I'm still eating my normal stuff. 
    • cristiana
      Thank you for your post, @Nedast, and welcome to the forum. It is interesting to read of your experiences. Although I've not had TMJ, from time to time I have had a bit of mild pain in my jaw, sharp stabbing pains and tingling in my face which appears to have been caused by issues with my trigeminal nerve.  I read that sometimes a damaged trigeminal nerve in coeliacs can heal after adopting a gluten free diet.  I try to keep out of cold winds or wear a scarf over my face when it is cold and windy, those conditions tend to be my 'trigger' but I do think that staying clear of gluten has helped.  Also, sleeping with a rolled up towel under my neck is a tip I picked up online, again, that seems to bring benefits. Thank you again for your input - living with this sort of pain can be very hard, so it is good to be able to share advice.
    • Julie Riordan
      I am going to France in two weeks and then to Portugal in May   Thanks for your reply 
    • Nedast
      I made an account just to reply to this topic. My story resembles yours in so many ways that it is truly amazing. I also suddenly became lactose intolerant, went a little under 10 years attributing all my symtoms to different body parts, never thinking it was something systemic until much later. I had the same mental problems - anxiety, depression, fatigue, etc. In fact, the only real difference in our story is that I was never formally diagnosed. When I discovered that my myriad symtoms, that had been continuous and worsening for years, all rapidly subsided upon cessation of consuming gluten, I immediately took it upon myself to cut gluten out of my diet completely. I live in America, and had lost my health insurance within the year prior to my discovery, so I could not get tested, and I will never willingly or knowingly consume gluten again, which I would have to do in order to get tested now that I have insurance again. But that is not the point of this reply. I also had extreme TMJ pain that began within months of getting my wisdom teeth out at - you guessed it - 17 years old. I was in and out of doctors for my various symptoms for about 5 years before I gave up, but during that time I had also kept getting reffered to different kinds of doctors that had their own, different solutions to my TMJ issue, an issue which I only recently discovered was related to my other symptoms. I began with physical therapy, and the physical therapist eventually broke down at me after many months, raising her voice at me and saying that there was nothing she could do for me. After that saga, I saw a plastic surgeon at the request of my GP, who he knew personally. This palstic surgeon began using botox injections to stop my spasming jaw muscles, and he managed to get it covered by my insurace in 2011, which was harder to do back then. This helped the pain tremendously, but did not solve the underlying problem, and I had to get repeat injections every three months. After a couple of years, this began to lose effectiveness, and I needed treatments more often than my insurance would cover. The surgeon did a scan on the joint and saw slight damage to the tissues. He then got approved by insurance to do a small surgery on the massseter (jaw) muscle - making an incision, and then splicing tissue into the muscle to stop the spasming. It worked amazingly, but about three months later it had stopped working. I was on the verge of seeing the top oral surgeon in our city, but instead of operating on me, he referred me to a unique group of dentists who focus on the TMJ and its biomechanical relationship to teeth occlusion (i.e. how the teeth fit together). This is what your dentist did, and what he did to you was boderline if not outright malpractice. There is a dental field that specializes in doing this kind of dental work, and it takes many years of extra schooling (and a lot of money invested into education) to be able to modify teeth occusion in this manner. Just based on the way you describe your dentist doing this, I can tell he was not qualified to do this to you. Dentists who are qualified and engage in this practice take many measurments of your head, mouth, teeth, etc., they take laboratory molds of your teeth, and they then make a complete, life-size model of your skull and teeth to help them guide their work on you. They then have a lab construct, and give you what is called a "bite splint." It looks and feels like a retainer, but its function is entirely different. This is essentially a literal splint for the TMJ that situates on the teeth. The splint is progressively modified once or twice per week, over several months, in order to slowly move the joint to its correct position. The muscles spasm less, stress is taken off the joint, as the joint slowly moves back into its proper position. The pain reduces each month, each week, sometimes even each day you go in for a visit. The joint has to be moved in this manner with the splint BEFORE the modification to the teeth begins. They then add to your tooth structure with small bits of composite, to keep the joint in its proper place after it has been sucessfully repositioned. Subtracting from your teeth, by grinding down bits of your natural tooth structure, is done very conservatively, if they have to do it at all. This process worked for me - after six months, my face, jaw, neck all felt normal, and I had no more pain - a feeling I had not had in a long time. It also made my face look better. I had not realized the true extent that the spasming muscles and the joint derangement had effected the shape of my face. The pain began to return after a few months, but nowhere near where it had been before. This immense reduction in pain lasted for a little over two years. The treatment still ultimately failed, but it is not their fault, and it is still the treatment that has given me the most relief to this day. Later on, I even went about three years with very, very good pain reduction, before the joint severely destabilized again. This field of dentistry is the last line treatment for TMJ issues before oral surgery on the TMJ. There aren't as many denists around who practice this anymore, and the practice is currently shrinking due to dentists opting for less espensive, additional educations in things like professional whitening, which have a broader marketability. Getting this treatment is also very expensive if not covered by insurance (in America at least). My first time was covered by insurance, second time was not, though the dentist took pity on me due to the nature of my case and charged like a quarter of usual pricing. Most cases seen by these dentists are complete successes, and the patient never has to come back again. But occasionally they get a case that is not a success, and I was one of those cases. A little over a year ago, I began seeing the second dentist who keeps my TMJ stable in this manner. The first dentist retired, and then died sadly. A shame too, because he was a truly amazing, knowledgable guy who really wanted to help people. The new dentist began to get suspicious when my joint failed to stay stable after I was finished with the bite splint and his modifications, so he did another scan on me. This is ten years after the first scan (remember, I said the surgeon saw "slight" damage to the tissue on the first scan). This new scan revealed that I now no longer have cartilage in the joint, on both sides - complete degeneration of the soft tissues and some damage to the bone. The dentist sat me down and had a talk with me after these results came in, and said that when he sees damage like this in cases like mine, that the damage to the joint is most likely autoimmune, and that, in his experinece, it is usually autoimmune. He has sent patients with cases like mine to Mayo Clinic. He said he will continue to see me as long as the treatment continues to offer me relief, but also said that I will probably have to see a dentist for this type of treatment for the rest of my life. He is not currently recommending surgery due to my young age and the fact that the treatment he provides manages my symptoms pretty well. I still see this dentist today, and probably will see this kind of dental specialist for the rest of my life, since they have helped with this issue the most. I did not inform him that I am 100% sure that I have celiac disease (due to my complete symptom remission upon gluten cessation). I didn't inform him because I thought it would be inappropriate due to not having a formal diagnosis. I was disappointed, because I had believed I had caught it BEFORE it had done permanent damage to my body. I had never suspected that my TMJ issues may be related to my other symptoms, and that the damage would end up complete and permanent. Luckily, I caught it about 6 months after my other joints started hurting, and they stopped hurting right after I went gluten free, and haven't hurt since. I of course did the necessary research after the results of the second scan, and found out that the TMJ is the most commonly involved joint in autoimmune disease of the intestines, and if mutliple joints are effected, it is usually the first one effected. This makes complete sense, since the TMJ is the most closely related joint to the intestines, and literally controls the opening that allows food passage into your intestines. I am here to tell you, that if anyone says there is no potential relationship between TMJ issues and celiac disease, they are absolutely wrong. Just google TMJ and Celiac disease, and read the scientific articles you find. Research on issues regarding the TMJ is relatively sparse, but you will find the association you're looking for validated.
×
×
  • Create New...