Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Confused
0

6 posts in this topic

I saw thus article in my Facebook and now I an so confused and upset. I was dx in April with celiac and it has been a struggle eating since then. Now when I am just getting a little comfortable I read this!

New Glutens Discovered to be Harmful To Health

A new research study has led to the discovery of new gluten proteins responsible for generating immune damage in patients with celiac disease.

1

Share this post


Link to post
Share on other sites


Ads by Google:

There is an old chinese proverb that my boss told me years ago: a full bottle makes no sound. a half bottle sloshes around. This was in light of the idea that sometimes people make a lot of noise even though they don't have the full story.

The actual article listed as a reference above studied the differences between the reactions of celiacs to wheat with the reactions to rye and barley. The whole hail mary leap of faith, no longer even true statement about gluten being found in all grains comes from god knows where. And after that I tuned out the rest of the tirade because to my understanding they are no longer making true statements.

Honestly it pisses me off that people disseminate information that is mismatched and not appropriately researched. That's all I have to say about that.

I am interested to hear the reactions of others on this board...

1

Share this post


Link to post
Share on other sites

Wow, whoever you are following on FB has some sort of anti-grain agenda. That's one of the worst cases I've ever seen of totally taking a scientific study out of context. Unfollow/unfriend and ignore!

Some celiacs need to avoid oats, and some need to avoid dairy, but most celiacs have a full intestinal and health recovery after eliminating just wheat, rye, and barley. Stick to the gluten-free diet and you will probably be fine. If you find you still have GI trouble after a few months, we'll help you track it down.

0

Share this post


Link to post
Share on other sites

I guess on Facebook they posted it from an article that was on a site called (Company Name Removed - They Spammed This Forum and are Banned)

I'm feeling better by the posts here. Thanks.

I'm sure I have more allergies than just the gluten but I don't always react. One day I react to milk and then I dont. I know my next step is elimination diet but I'm still grasping the gluten free diet. I also don't know if my issues is just part of the healing process or something I'm eating. It has only been since April. I see dr fassano in October for my first apnt after being dx. Hopefully he will shed some light.

I'm very grateful for the support on here. I do not know anyone in person that has this so I feel very alone. People who don't have to watch what they eat can't understand the depression and frustration that comes with this. Life revolves around food and now it's hard.

0

Share this post


Link to post
Share on other sites




Dr. Haas had all of his celiacs in the first half of the 20th century avoid all grains because there was not awareness at this time that gluten was the harmful protein. It scares me that people are using his research so out of context.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,099
    • Total Posts
      920,354
  • Topics

  • Posts

    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,134
    • Most Online
      1,763

    Newest Member
    Alinapep
    Joined