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Not Celiac - So How Do I Know If I'm Still Gluten Sensitive?


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32 replies to this topic

#31 Katrala

 
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Posted 23 October 2011 - 06:42 AM

Anyone who has been off gluten for awhile may have a reaction when they reintroduce it (this goes for many different foods as well.)

Some people have immediate reactions. Some are more of a built-up reaction. It's really hard to say when / how you will react (if you do react at all.)

Is your doctor going to keep looking for causes?

Could there be any other type of food intolerance going on that you're suspicious of?
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Positive Celiac (Blood & Biopsy) - April 2011
Peanut Allergy

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#32 AMaine

 
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Posted 23 October 2011 - 01:00 PM

My doctor has now ruled out pretty much everything else - the GI specialist has decreed it IBS. Which, I understand, doesn't mean that I don't have a problem with gluten. I was actually told that I had IBS a few years ago (after an insufficient celiac test and not being informed that not having celiac isn't assurance that you can eat gluten comfortably). In the past 2 years I have therefore tried cutting out pretty much everything BUT gluten to no avail. The only thing that I discovered that really bothered me was sugar alcohols, especially sorbitol.

So, I ate some bread (and a cookie) last night and had no immediate reaction. I actually feel pretty fine today too, but I did have a minor migraine this morning for the first time in weeks (lack of migraines has been one indication that has made me feel like the gluten free diet could be working) and while I haven't had major stomach problems, I've been feeling generally like I have mild menstrual cramps. Except, of course, I don't.

So I've decided to stay mostly gluten free, but to stress about it less. I don't mind doing it at home at ALL - the only thing has been ordering when we eat out (which my husband and I like to do a lot) and not being sure if something might have a slight gluten ingredient in it. So with such a mild result, and knowing that i don't have celiac or some other situation that would make eating small amounts of gluten hazardous to my overall health... when we go out, I'll order the most gluten-free item on the menu and not stress if there's something a LITTLE in it. This plan makes me feel MUCH better. I can live with this, even without the 100% certainty that I have a gluten intolerance (still wish I could have that certainty).

I'm also very pleased with myself for having found a bread pan that is long and narrow to hopefully create the perfect sandwich size bread. Feeling a lot calmer and less frustrated!
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#33 kendon0015

 
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Posted 23 October 2011 - 06:00 PM

I just posted on another thread....PLEASE be sure to have a stool test. I am now being treated for C Diff, a nasty bacterial infection in the intestines. I was on Cipro for three UTI's in a row, and it caused this bacterial overgrowth. Have you been on antibiotics in the last several months?

I'm not a doctor, but MY advise is to start on a good probiotic right away.
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