Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If It Doesn't Say In Contains Gluten Does This Mean Its Definitely Gluten Free


lucylooo

Recommended Posts

lucylooo Rookie

I have just started my gluten free diet which I am finding okay but I am confused! So the food labels normally state if it contains gluten, if it doesn't say it contains gluten or wheat on the label then is this 100% gluten free? As someone told me they do a pataks curry sauce which doesn't contain gluten BUT I looked at all the labels on pataks range and none of them say they contain gluten. I hope this makes sense, I'm just really confused on how to know if they contain gluten for sure.

If you can help me that would be great!

Thank you!

x


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

This is a decision every celiac confronts. Are they going to eat only those processed foods that make the gluten free claim, or are they going to read the ingredients list and if they find no gluten listed, will they buy it? I personally eat several processed foods that do not claim to be gluten free, but I am not very high up the sensitivity scale. You rather have to learn from experience how sensitive you are and what you can and cannot tolerate. Along the way you may even find another food sensitivity you were not aware of, but I hope not. If there is wheat in a product sold in the U.S. it must be clearly stated on the label. The same is not true for rye or barley. If you see malt it may or not specify whether it is from barley or corn. This is where you get on your cellphone and call the manufacturer and ask.

Likewise, you will have to discover, when you see that a product is made in a shared facility, or even on a shared line (which is thoroughly cleansed between runs), whether or not you are sensitive to this. Some are, some aren't. Many people on here will eat only products made in a dedicated facility. So there may be a glutening or two in store for you along the way until lyou determine your own level. :)

Also, if you do react to a product, do keep in mind that it might not be the gluten you are reacting to. Many of us discover after eliminating gluten that we have other intolerances. It is often suggested to keep a food and symptom diary so you can track down reactions. This is most useful if you don't add a whole bunch of new foods all at once.

Darn210 Enthusiast

I just want to clarify that you won't see the term "gluten" listed as an ingredient. You need to look for "wheat", "rye", "barley", and "oats". Those are the biggies, but other terms can be used such as "malt" which is commonly derived from barley.

There is a FAQ section here that addresses safe/unsafe ingredients:

https://www.celiac.com/celiac-faq/

There are many mainstream products that are free from gluten ingredients but are not labeled as gluten-free. My daughter enjoys many of them. In the beginning of the diet, it is best to go with as simple of a whole foods diet that you can manage (I know, sometimes you've got to treat yourself). You'll have good days and bad days as your gut heals and it may not have anything to do with what you ate. If you try something that doesn't settle well with you, eliminate it for a while. Let your gut have some more healing time and try it later down the road.

Emily30 Newbie

when my first son went gluten-free we had to avoid everything that didn't specifically say gluten free. After he has healed we have found many things to add-even some with a manufactured in a facility with wheat labels. I would avoid for awhile and let yourself heal and then do some trail and error from there.

elizabethh Newbie

Unfortunately even if things say gluten free they aren't necessarily safe. Amy's brand is the first one that comes to mind. Ugh makes me want to barf just remembering those disasters, mine as well as the whole bunch of other people I know who have gotten sick from it. You also have to be cautious of CC, and some companies such as Food For life which I JUST learned have bad practices also, they'll say gluten free when they actually aren't, which is terrible! It depends on how sensitive you are though, but it's always good to research what you are eating and look it up to make sure it's safe. I always type the item in the search bar of this forum and read the posts and stuff to make sure other people have not had bad experiences with it.

MrsVJW Newbie

Trader Joe's is the one that irked me early on. Their "no gluten ingreidents" label is some of THE most misleading labeling I've ever seen. Just because it doesn't have ingredients that contain gluten does NOT mean it is free from cross-contamination (especially with things like cornmeal). After a reaction from their PLAIN potato chips, I was really angry. Got me so mad I pretty much stopped shopping there and what little I buy is NOT their store brand name products.

When I shop, I look at the entire range of products that are available from a company, including the ingredients, packaging, etc. If it looks like anything else with wheat may have been processed on the same line as something wheat (which is why I look at packaging... anything else in the same packaging was probably processed on the same lines) I'll usually put off the purchase until I can find out more, because I am highly sensative and will react to a lot of things other people may not react to (like Van's waffles).

If you don't have to be that cautious, be happy. But sadly, you can either be that cautious from the start, or go through some trial and error.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Reverse Osmosis (RO) Water

    2. - Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

    3. - Scott Adams replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Great Value Veggies cannot be trusted.

    4. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

    5. - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,442
    • Most Online (within 30 mins)
      7,748

    Peggy Vorell
    Newest Member
    Peggy Vorell
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Known1
      I am hesitant to post this as I have seen many people here recommending RO water.  With that said, I want to share my experience and how RO water now impacts me.  Three or four years ago a local store installed a RO water refill station.  I had been buying gallons of distilled and spring water prior to that.  I switched over to using the RO water refill station saving money by brining in my own clean empty gallon jugs.  Every 6-months I would replace the jugs by buying new gallons of distilled water.  This RO water is the only water I would drink while at home.  Two huge glasses every morning before work and two more after work.  I would also use the RO water to make coffee and hot coco. This past December, prior to my celiac diagnosis, my gut was making more noise than anything I had ever experienced.  Seriously, it was crazy, almost like fire works going off in my stomach.  I happened to pick up some distilled water for my 6-month jug rotation.  Literally, as soon as I started drinking the distilled water my stomach settled a great deal.  I could honestly feel the difference after the first glass of water.  I thought that maybe the RO water from the store's refill station was contaminated with some sort of cleaning agent.  I swore to myself I would never drink from that RO refill station again.  Instead I went back to buying distilled along with gallon jugs of spring water.  No issues with either of those as far as an upset stomach is concerned.  Cost, well that's a different story all together. After being diagnosed marsh 3c, I went shopping at Aldi's for the first time in my life.  I noticed they also sell water by the gallon.  Over the course of the last few weeks, I have purchased a total of 6-gallons of their water.  (Thankfully they were out on two of my visits.)  After having my stomach starting to make noises similar to mid-December again, it dawned on me, maybe its the Aldi water?  Initially I had contributed my bubble gut to some sort of gluten exposure or cross contamination.  Even though everything I have put into my stomach is naturally gluten-free or has been labeled gluten-free / certified gluten-free.  I had assumed that the Aldi water was spring water.  Come to find out, that was a bad assumption.  Looking close at the label it says purified by RO or distillation (or something like that). Again, I switched to different water.  Just like last December, the non-RO water instantly calmed my stomach and even felt better going down the hatch.  This was earlier today by the way.  Prior to creating this post, I did a few searches via Uncle Google.  I bumped into a thread on Reddit (where I am not a member) that has multiple people complaining of GI issues related to RO water.  So my initial thoughts on a cleaning agent in the refill station RO water were likely not correct.  Unfortunately, it seems the RO water itself causing me problems.  I am not sure if we are allowed to post links to other sites and hopefully I will not get into trouble for doing so.  I did try printing the Reddit thread to a PDF file.  Unfortunately, the file is 2MB in size, which is well over the 500KB file attachment limit here on this amazing forum.  Again, hopefully this is ok.  🤞  Here is the Reddit thread. This may not be a popular opinion here, but personally, I will not willingly drink another glass of RO water for the remainder of my life.  Who knows, maybe drinking RO water for the past several years is part of what activated my celiac?  No proof, but just a thought.  Come to find out RO water is well known to leech minerals from your body.  With people like us often lacking minerals to begin with, RO water does not seem like a wise choice.  As the Reddit thread mentions, there are RO water filtration systems that will inject minerals back into the water.  However, those systems are likely not being used at the grocery store refill stations nor by the bottling companies producing RO water for sale at your local store. Please do not shoot the messenger as I am just sharing my personal experience and letting others know that most RO water will leech minerals from your body. God bless and stay well, Known1
    • Known1
      My neighbor's mom was diagnosed with celiac disease 16 years ago.  She is a very kind person and has shared some info about local grocery stores and daily (soon to expire) meat deals.  This evening she brought over 2 slices of Papa Murphy's gluten-free pizza.  It looks to be topped with chicken and spinach.  I asked, "aren't you concerned with cross contamination"?  She said no and apparently eats it on a somewhat regular basis. I found an old article here along with another thread pertaining to Papa Murphy's gluten-free pizza.  The article is quite old, so I do not think it holds much weight nowadays.  The thread I found was also a bit dated, but certainly more recent and relevant.  The information in the thread I found was a bit inconclusive.  Some said they trust Papa Murphy's gluten-free pizza and others were a big no way.  One person even took time to train their local franchise on how to ensure the pizza remains gluten-free without cross contamination. Anyway, being recently diagnosed as marsh 3c, I am currently working on week 3 or 4 in my new gluten-free journey.  I do not want to be rude and toss the pizza out, but I also do not want to have a reaction.  Since she has celiac and obviously ate much or at least some of the pizza, I am leaning towards eating the two slices for lunch tomorrow.  As this thread's title states, what would you do?  Would you eat it or toss it out?  I suppose I could also just give it back to my neighbor to polish off. I look forward to reading your thoughts. Thanks, Known1
    • Scott Adams
      That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—even on products we’ve trusted for years. A “may contain wheat” statement usually indicates potential cross-contact risk rather than an added ingredient, but for people with celiac disease that risk can still be significant. If you’ve been having symptoms, it may take days to weeks to fully settle, depending on the level and duration of exposure. In the meantime, switching to fresh produce or brands that clearly state gluten-free status is a reasonable step. It may also help to contact the manufacturer directly to ask when the labeling changed and what their current cross-contact controls are.
    • trents
      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it.  But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder. 
    • ainsleydale1700
      Thanks for the insight!  It has been a whirlwind...very overwhelming and frustrating at times.  But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.