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Should I Pursue Testing?
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Started by Capegin,

4 posts in this topic

Posted

Hello,

My DD has had some stomach issues lately, and I'm wondering if I should pursue testing for Celuac, or if I'm way off base.

She is 15 months and has begun spitting up/vomiting regularly after dairy- esp. yogurt. We tried cutting out Lactose for the past wk, to no avail. This started about 6 weeks ago, though as an infant she had horrible reflux. She has been tested for food allergies and has none. She was in the 49th percential for weight at birth, but she was 3rd at 12 month checkup. In thd last week, she has gotten increasingly irratible, she occcasionslly screams as though in pain when we feed her, and she eats very little. She used to be a great eater. Also, she did have a milk protein allergy as an infant- not sure if that's relevant. Finnally, my husband commented tonight that her belly is starting to look like those pictures of malnourished babies.

As far as milestones, she is great. Walked early, says and signs several words, everything's on schedule.

Any thoughts?? She just serms miserable lately, and I want to find out what's wrong in order to help her!

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Posted

Testing certainly can't hurt, right? It starts with a blood panel. If it comes back negative and you don't want to pursue further testing, you can always try the gluten free diet for a few months and see if it helps.

Cara

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Posted

I would start with removing all milk (including hidden dairy and baked in) for at least a month. If after that there is no improvement I would think about testing but nothing you said really shouts out Celiac to me.

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Posted

I agree with other posts and would add that sensitivity to dairy/casein often accompanies celiac, but dairy/casein does not cause celiac, gluten is the irritant in celiac. Your post did not indicate how much gluten-containing food you feed her. Blood antibodies testing could result in a false negative if she is not currently ingesting much gluten.. If you do decide to do the test, I suggest you ask your doctor about how best to load her up with gluten foods so you get an optimal conditions test result...

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Go To Topic Listing Celiac Disease - Parents of Kids or Babies With Celiac Disease

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    • Kricket73
      So could I be right or is he just an idiot?

      By Kricket73 · Posted

      Ok, I can't seem to find my first lot of blood tests that were done for Celiac screening, they did include TTG I remember that much, and I am getting another copy of it but another test did come in today.  I don't know how different tests are done around the world and I don't get all the medical jargon but this is what it states, ******************************************************************************* HLA DR/DQ Genotyping for Coeliac Disease, Specimen type : EDTA blood Method : Detection of sequence-specific oligonucleotides (Gen-Probe). HLA-DR - 1, 13          DRB1 - 01, 13 HLA-DQ - 5,6        HLA-DQA1 - 5,6      HLA-DB1 - 05, 06 Interpretation : No genotype susceptibility for coeliac disease.  The DQ2 and DQ8 antigens associated with increased risk of coeliac disease were not identified in this patient.  In the absence of these antigens, coeliac disease is extremely unlikely.   *******************************************************************************   I have read the horror stories of blood tests and scope biopsies not be done right or flawed but here is what I do know as of now, At the moment the most non invasive test I can have done say negative.  I have double scopes (endoscopy and colonoscopy) booked for the 12th of October with results from biopsies expected a week or two after. Chances are they will show, a) signs of coeliac disease (even if the odds are low it can still happen), b) show signs of something else entirely and we will be busy dealing with the ramifications of that or c) it will show no signs of coeliac but I will still be suffering from gluten sensitivity (which is harder/impossible to measure clinically). My GP has told me that stress and anxiety can be a cause of all the symptoms I have been experiencing and suggests if the scopes show nothing that I may benefit from something to treat anxiety, i.e. antidepressants.  Not in a, "Oh we don't know what it is so have these," kind of way, he agrees with the thought that the scopes could indeed show coeliac, something else or even be negative. I did tell him that I could have a sensitivity and that even without benefit of clinical results, some people have gone on a gluten elimination diet for a period of time to see if they get any relief.  My question is this, if the scopes come up negative and I try eliminating gluten, how long would it be before I saw any results or improvements?  I have read enough here and elsewhere to know that everybody is different, some see results within days, some see results longer but are there any guidelines for how long a test like this should be undertaken for?  I have heard everything thing from two weeks to two months.  All of this is entirely moot at this point but I know that even if the results said clear, there would always be a little part of me that wonders if it could be a sensitivity that is the problem.  Any thoughts or advice greatly appreciated, and a thank you to all those who have taken the time to respond and offer advice and encouragement so far.        
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    • Gracey
      Taking Advil to cope with pain?

      By Gracey · Posted

      Thanks I never heard of that dye before, I guess I have to find more natural meat thanks for the suggestion. 
    • Gracey
      Taking Advil to cope with pain?

      By Gracey · Posted

      Yes, I only eat one meal a day. Sometimes salad or fries or whatever I can find. And thanks for the replies again.
    • cyclinglady
      Ttg Iga

      By cyclinglady · Posted

      A colonoscopy is not used to diagnose celiac disease.  An endoscopy is used to obtain biopsies in the small intestine.  

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