Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Pregnancy Complications And Lactating
0

7 posts in this topic

WHat are the chances my son has celiac sprue as I was undiaganosed and untreated all through his pregnancy? He certainly suffered w/ my malabsorbtion since he only weighed 5lbs 11oz (my daughter was born 9lbs 4 oz 6 yrs. ago)and has grown quite fast in the past four months to catch up to normal baby weight. I'm happily nursing and his pediatrician supports my doing so but has suggested he start baby cereal in addition to nursing to ensure he is getting enough iron and calcium. Now that I'm starting my son on cereal I'm really nervous since the rice binds him and I'm not sure what to look for as a reaction to other grains when I introduce them. I've only recently found out that I have celiac sprue and I'm just learning to identify my own subtle signs of intolerance. The obvious gas, bloating and diahrea are easy to spot----it's the itchy skin, slight rash, nose sores, joint pain and cramps that I never realized had to do w/ my diet. Any suggestions on what to look for in my baby? Any ideas of how common it is for parents to have children w/ it? Does it matter if you're gluten-free or not during a pregnancy? Do both parents have to have it to pass it on to children. Thanks for any answers.

Suzanne

0

Share this post


Link to post
Share on other sites


Ads by Google:

I have seen everywhere that if you haveceliac in the family that the babyshould stay gluten free for at least six months if not more!

Doesn't gerber make a rice cereal with bananas? If not they are generally mild enough to add or use on their own..or pears are also mild on the system to help with contipation. Also what cereal are you using? Many of them use barley malt or barley malt flour in the rice cereal so they are not gluten free, so read labels!!!!! Celiac can make a child constipated too..

As far as a correlation between your son's birth weight and you not being gluten-free it could be just your malsorption effecting his weight..

Celiac is genetic 10-30% of first degreerelatives of a person with celiac generally have it, and a person is 30-40% more likely to have it when a person in their family has it. If both parents have it that likelyhood probably doubles..

Some signs to look for in him.. not sleeping.. or only sleeping short periods of time, irratibility,spitting up including projectile spitting up.. then the odvious signs you mentioned.

0

Share this post


Link to post
Share on other sites

Here are a feeeeeew symptoms of a gluten consuming celiac child:

In children:

Failure to thrive

Irritability

Paleness

Fretfulness

Inability to concentrate

Emotional withdrawal or excessive dependence

Nausea

Pale, malodorous, bulky stools

Frequent, foamy diarrhea

Wasted buttocks

Anorexia

Malnutrition:

*With protuberant abdomen (with or without painful bloating)

*Muscle wasting of buttocks, thighs, and proximal arms

*With or without diarrhea

And, colic

Of course, there are more...

You could start a food/symptom diary for him to keep a record of how new foods affect him. That really will tell you a lot! Remember it can take hours or days for symptoms to appear--that's why it works so well to write it all down. ;)

Good luck!

Connie

0

Share this post


Link to post
Share on other sites

Oh, and don't beat yourself up over not being gluten-free during your pregnancy!

Since it's genetic, he either had it, or not, before he was even born!

You're doing the best you can for him now, and that is what is important. :D

Connie

0

Share this post


Link to post
Share on other sites

:D Thank you for your replies. It's so comforting to have people who can give answers and quiet my fears and guilt. So far my son has not shown any signs, thank God, and hopefully he will not have celiac. I've been sticking w/ Beech Nut Naturals because as far as I can see on the labels, there's nothing but rice flour for the rice cereal and oat flour for the oatmeal. It's so tough reading labels and knowing what exactly every indgredient really is. Knowing what to look for helps me feel less fearful but :angry: I hate waiting to see if there's a negative reaction to something i eat or he eats. Thanks again.

Suzanne

0

Share this post


Link to post
Share on other sites




Hi Suzanne,

It's certainly possible your son (and daughter) could have sprue as it is a genetic disease. I doubt your pregnancy has caused your baby to have celiac, he either has it or he doesn't. I was pregnant while on a gluten diet for three of my four children. Two of those three children are confirmed celiac. We found out by doing antibody and gene tests for celiac. While all carry the gene for celiac, one son does not currently have any antibodies to gluten suggesting he is not celiac...yet. My last child was not tested because I have never fed him any gluten. He is now 18 months old and was born after three of us were diagnosed and on a gluten free diet anyway.

I chose not to feed him gluten because, as a celiac myself, I know that the damage can be horrible. Sure, the villous damage may heal but what about secondary damages? I have trouble with gastritis because my stomach sphincters are all messed up from years of undiagnosed celiac. I have to be on acid medicine my enire life or risk hemmorhagic gastritis and damage to my esophagus. My celiac children had trouble with chronic ear infections leading to scarring of their ear drums and possible hearing loss (hopefully temporarily). My four year old (who has been gluten free for two years ) still has malabsorption as well as acid reflux as determined by intestinal biopsy. Also, exposure to gluten (if you are a celiac) may trigger other autoimmune conditions. Is it worth taking the chance? Also, so many people are asymptomatic with celiac, it's tough to know whether your baby will even show symptoms. My four year old suffered as a baby before his diagnosis. He was cranky and bloated and it made life very hard. My other celiac child was asymptomatic in infantcy. In other words, you won't necessarily know if your baby is a celiac until after damages show up. He could be asymptomatic and grow poorly, or have ear infections, or reflux. Everyone reacts differently.

My plan is to keep my child gluten-free until I can gene test him (with four children, it's hard to get to the Celiac Center for testing) or better yet, find someone to perform a rectal gluten challenge. The RGC is a test that can be done on a gluten free person. A tissue sample from the rectum is infused with gluten under a microscope and if lymphocyes flood the area, voila, that person is a celiac. No need to feed anyone gluten. The trouble is, it's experimental still and hard to find someone who can/will do it. If the gene test comes back positive, it doesn't mean my child has celiac, it only means he has the ability to get it. If it's negative, there's basically no way he can ever develop the disease and then I can safely feed him a gluten diet with no worries. In the meantime, I can cross my fingers and hope a different test will come along which will help me know if my son is a celiac before he ingests gluten. If the gene test is positive and I can't find someone for the RGC, at age three I will feed him gluten and test him after six months. If he comes up negative, like my oldest son, I will retest every two years to make sure it hasn't triggered in the meantime.

For my son, I have to think he's not missing much on a gluten-free diet. Wheat can kill. I can't see how it can be good for anyone if it can do devastating things to so many people. Birthday and pizza parties are tricky but I'll take the trickiness over having a sickly child anyday.

Good luck. I hope all my rambling helped.

Winnie :

0

Share this post


Link to post
Share on other sites

Winnie,

Good for you! :) I think that was a wonderful explanation!

I'm pregnant right now (30 weeks) and my unborn child will probably never eat gluten. We dicovered celiac disease when our first was only 3 months old (luckily!) and have been gluten-free for 6 years.

If you ever need to have a test done, I understand that Enterolab

http://www.enterolab.com/Who_Should_Be_Screened/

has a non-invasive stool test.

Keep up the good eating!

Connie

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,636
    • Total Posts
      918,422
  • Topics

  • Posts

    • Celiac Night Vision
      Scotomas returned for the 7th year on the 24th February despite liver pâté and have varied since with 3 brief gaps. I have always had migraine, latterly occurring more than once a month, usually of basilar or retinal type with aura (but no headache) lasting less than 5 minutes. A recent bout looked like a TIA and led to a CT scan which revealed clear major vessels but old cerebellar infarcts, so maybe migraine accounts for poor memory too. The scotomas are very different from migraine eye symptoms - stationary, irregular in shape and lasting hours. I think food is excluded as the cause but seasonality, gaps, variation with wind direction and rain mean that pollen is still a possibility. Scott Adams did a marvellous thing founding this site so celiacs could enlighten each other. Please post if you have anything like these scotomas!
    • healthy bread recipe?
      Eat what you eat at lunch or dinner.  I am happy with a fried hamburger patty, fish, or chicken (I know it needs to be fresh or frozen for the histamine diet).  Yes, I eat veggies for breakfast!   Wanted to add that I was glutened in July (GI ordered follow-up antibodies testing and it was high)  and it took me 3 months to recover.  Picked up a histamine intolerance and became lactose intolerant again.  Luckily, when I healed, the histamine thing went away (or  Diminished ) and the lactose intolerance resolved.    I was getting hives, rashes and itching (not DH), vomiting, etc.  So, her intolerances may be just temorary!  
    • Could this be celiac or is it really just IBS?
      Are you sure you had the complete celiac panel?  Here are the tests:   -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test)     -endoscopic biopsy - make sure at least 6 samples are taken   VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.     (Source: NVSMOM -- 😊)   Here is more information from a reputable site (and not just info from a crazy cyclist on the Internet!):   http://www.cureceliacdisease.org/screening/   IBS, in my opinion, means "I Be Stumped!"  It is just a cop out!  So is the "stressed" thing.     I also had my GB out too.   It was a non-functioning (0% per HIDA scan), no stones, and rotting.     You seem to have many celiac disease symptoms.  Verify (obtain copies of your lab tests) to see if you got the complete panel. You might just have had the TTG IGA and TTG IGG tests.  Good for screening but it does not catch all celiacs.  My TTG tests are always negative even on follow-up testing.  The DGP test catches a positive for me.  My biopsies revealed moderate to severe damage.  If my celiac-savvy GI did not order the complete panel, my celiac disease diagnosis would never have been caught.   if celiac disease is really ruled out, research mast cell disorders.  The flushing and GI upset sound familiar!  You can have more than one thing going on!  But I would put my money on celiac disease!            
    • tightness in throat after eating gluten?
      I've noticed that if I accidentally eat gluten, for the next few days I have this tightness in my throat. It feels like my throat is closing. It's not constant, but comes and goes throughout the next 1-3 days. My hands have also been itchy. Is this a normal symptom for celiac or gluten intolerance, or could it possibly be an allergy? I haven't been tested or diagnosed with celiac or anything yet, so I'm still not entirely sure. All I know is that gluten makes me very sick.. But especially with the itchiness and tight throat.. I'm allergic to acetaminophen and my reaction is similar, so it just makes me wonder. What do you think?
    • Diagnosis and Test Results
      I am sorry that you are sick!  😔.  I think you need to find out which celiac antibody tests were given.  Often just the TTG Is ordered for initial screening.  This test catches most, but not all celiacs (like me!)   You also need to see if they gave you the igA deficency test too.   Here are the tests:   -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA  -total serum IgA and IgG (control test)   -endoscopic biopsy - make sure at least 6 samples are taken   VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.     (Source: NVSMOM -- 😊)     http://www.cureceliacdisease.org/screening/ You can go gluten free, but knowing if you have an autoimmune disease is helpful.  celiac disease is genetic (you have the genes, but so does 30% of the population and that's why the gene test is used only to exclude celiac disease and not diagnose it).   All family members should be tested even if they are symptom free.   I hope you figure it out and I am sorry that you had such a horrible experience.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,727
    • Most Online
      1,763

    Newest Member
    Kal
    Joined