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I was diagnosed with gluten intolerance in feb this year. I've been struggling staying on the diet. I have a serious addiction to good gooey gluten. I normally do well, but I keep falling lately. I feel like since I didn't get an official diagnosis of celiac that all the issues I have are in my head. I eat gluten and then I pay for it, and my family does too. I get really severe headaches and have no energy after I eat it. I wish I could just accept this in my head.
I guess I struggle with all of this because I'm such a picky eatter I'm a vegitarian so my meal/food options are limited and feel like I'm eatting the same thing repeatedly.
The rest of my family eats gluten so it's too easy to fall off. I try to buy things that I do not like for them so the temptation is not there.
I wish that there was a test that sys "yes" this is what you have. I feel mental. Sigh. Thanks for listening,
2 replies to this topic
#2
ravenwoodglass
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Advanced Community Member
Posted 05 June 2012 - 12:44 PM
If eating gluten gives you a headache and makes you exhausted it may be affecting your brain and nervous system. The antibodies are mounting an attack against all your organs. I do hope you can find the willpower to keep yourself healthy and on the diet. It is hard but you don't want to end up with damage that can't be undone. GI is no less serious than celiac and both need to be strict with the diet. Can you try to keep some safe treats on hand for when you get tempted?
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#3
Takala
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Advanced Community Member
Posted 05 June 2012 - 02:15 PM
You will discover you will get more and more sensitive to gluten cross contamination and "accidents" over time.
THIS is your PROOF that it's not "all in your head."
Ask yourself what you would be doing if you were not sick all the time.
Consider changing your diet to reflect what you need, not what you think you need. Vegetarian is designed for grain eaters, and is frequently too high carbohydrate and too starchy for gluten intolerants, especially if they have blood sugar issues, shown by cravings, then crashing and burning after consumption of too many high carb grain products.
Find a gluten free calcium and magnesium supplement, and a gluten free B complex, to help with the cravings.
THIS is your PROOF that it's not "all in your head."
Ask yourself what you would be doing if you were not sick all the time.
Consider changing your diet to reflect what you need, not what you think you need. Vegetarian is designed for grain eaters, and is frequently too high carbohydrate and too starchy for gluten intolerants, especially if they have blood sugar issues, shown by cravings, then crashing and burning after consumption of too many high carb grain products.
Find a gluten free calcium and magnesium supplement, and a gluten free B complex, to help with the cravings.
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