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One More Tie


Razzle Dazzle Brazell

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Razzle Dazzle Brazell Enthusiast

I swear if anybody in myhouse eats my food one more time I am gonna go to the store and buy my own refregerator, nuwave cooktop and nuwave oven. I will fix all my stuff in my room. They just don't care but them eating my food means there is a day I go without supper. I can't just go to a snack machine or just fix a microwave dinner. All my food is budgeted. They know it makes me sick if I eat something else,m they just don't care. I have to work to pay for my food and one day I cave in because I am starving and weak and running on fumes at work, means I spend the next week ill.

Am I the only one who sometimes feels as if the people who are supposed to love you the most don't care if they make you ill? On top of this, one of the very few people in my life who listens and cares about me just died in a car accident and I am beginning to feel that I wish it were me instead. Of her. This suffering seems endless and a lost cause. I am on a rollercoaster of anger, hurt, depression and I don't know how long I can hold onto hope :'(


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mushroom Proficient

I am sorry for the loss of your friend :( Some people are very special and make such a difference in our lives. Hang in there, and don't let the grieving get you down too far.

Family can be very thoughtless and inconsiderate. Try to be rational with them rather than angry, if you can. Print our your post here and give it to them, so that they can understand in a moment of reflection what they are doing to you and how bad it makes you feel. Chin up a bit, Razzle, you can do this !!

Adalaide Mentor

Awww ((((hugs)))) hang in there! Losing a friend is always a terrible thing, but we're all glad to still have you here. :wub:

You aren't the only one to get mad, or upset about stuff like that. I about blew my top this evening when I found a bunch of my stuff in the "deli" drawer of the fridge. You know... the one everyone else in the house gets into while handling bread. But eating my stuff? I'd lose it. You're right, we don't have options. I try to talk to people about things like this when I'm not mad, that way I don't freak out and make them not listen to me. It is possible that they just don't realize they are being inconsiderate jerks. Of course, you need to be all PC and not actually use those words when you talk to them, no matter how appealing. :P

  • 2 weeks later...
Razzle Dazzle Brazell Enthusiast

Thanks to the both of you for your encouragement. Tried to post sooner but had problems with replying so I gave up. My brother is psycho...literally. He has gone crazy and there is no talking to him. It is like talking to a drunk. If i get stern he could fly off the handle and punch a hole in the wall or who knows what. Not being able to assert myself with someone who is very selfish and egocentric leaves me feeling trapped. Yesterday I came home and my coconut milk is completely empty because he drank all their milk then mine. He makes excuses and says he doesnt know whats mine. Really?! when in our entire life has mom ever bougt coconut milk or anything besides dairy? When has she bought brown eggs? When has mom ever made burgers out of turkey meat?

There is absolutely nothing I can do about it but it causes anxiety when I think about him messing with my stuff. I am a CNA and if i get glutened bad enough I dont want to lose my job because my stupid brother got into my crap as if there is not enough food in this house for him to eat. Hhh I am thinking about asking my aunt if I can move in with her because there is also mold all in this house making me ill

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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