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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- Scott Adams replied to Barcino's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease2
Antibodies went up
You are correct in looking closer at her diet, as there may still be trace amounts of gluten, even from a gluten-free bakery (are their ingredient suppliers certified gluten-free?). You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version... -
- Scott Adams replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
How many grams is there in one slice of wheat bread?
Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
- Scott Adams replied to Kathleen JJ's topic in Traveling with Celiac Disease1
Ski trip with Celiac son - preparation advice please
You're doing an amazing job planning ahead for your son's first ski trip with celiac disease! It’s great that the hotel and organization are supportive, which makes a big difference. For dinners, consider simple gluten-free meals like pre-cooked rice or quinoa bowls with a protein (like grilled chicken or turkey slices) and steamed or roasted vegetables. ... -
- Scott Adams replied to disneyfamilyfive's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Test result insight
Unfortunately many doctors don't know the proper protocol for a screening for celiac disease. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
- Kathleen JJ posted a topic in Traveling with Celiac Disease1
Ski trip with Celiac son - preparation advice please
Hi all, Two weeks ago we learned our 7 your old has Celiacs and we are of course finding our way in his diet. However, we booked a skitrip a few months ago that will take place in February. We're going to the same hotel we went last year. The trip is non refundable so now I'm already starting to think how we will do this. I've contacted...
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