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Celiac Disease Foundation Receives $250,000 PCORI Award for Patient Participation in Research


The Celiac Disease Foundation has received an award to promote patient researcher interaction. Photo: CC--Military Health

Celiac.com 05/20/2016 - The Celiac Disease Foundation (CDF) has received an award from the Patient-Centered Outcomes Research Institute (PCORI).

The PCORI Eugene Washington Engagement Award will help the CDF to create a national network of advocates trained in patient-centered outcomes research (PCOR), known as the Patient Engagement Celiac Disease Network (PECDN).

The project is aimed at patients and caregivers who may be eager to participate in research, but who may feel unprepared to work with researchers, as researcher expectations and terminology can be confusing.

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Through this network, CDF will train patients and caregivers to become more involved in research in ways that will impact the treatment of their disease.

The first training program for patients and caregivers will be offered at Celiac Disease Foundation's National Conference April 30, 2016.

Read more at: Bezinga.com

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Then she has already been diagnosed. Dh equals celiac, although I never heard of a MILD case. It's usually quite extraordinarily disturbing.

I would stick to a very basic gluten-free diet as recommended by Dr. Fasano and other celiac experts. It would not hurt for a short amount of time and might get him through his exams. This is the study about dealing with Trace Amounts of Hidden Gluten (not saying your son has non-responsi...

Yes do follow up with testing, once confirmed we can help you along the road. Other intolerance and allergies are very common with this disease. Lactose is broken down by enzymes produced by the tips of your villi in your intestines, they are normally the most damaged and in some cases just gone....

Please follow the advice of celiac experts and get your daughter tested before going gluten free, Your doctor, like many, is woefully misinformed. You should be tested too (all first degree relatives), even if symptom free, and especially since your mother was recently diagnosed. Learn more a...

We in the UK he takes a pack lunch and have asked for a health plan so wait and see. Not easy when he taking his gcse and he wants to do well. Thanks for the advice