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Celiac Disease Foundation Receives $250,000 PCORI Award for Patient Participation in Research


The Celiac Disease Foundation has received an award to promote patient researcher interaction. Photo: CC--Military Health

Celiac.com 05/20/2016 - The Celiac Disease Foundation (CDF) has received an award from the Patient-Centered Outcomes Research Institute (PCORI).

The PCORI Eugene Washington Engagement Award will help the CDF to create a national network of advocates trained in patient-centered outcomes research (PCOR), known as the Patient Engagement Celiac Disease Network (PECDN).

The project is aimed at patients and caregivers who may be eager to participate in research, but who may feel unprepared to work with researchers, as researcher expectations and terminology can be confusing.

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Through this network, CDF will train patients and caregivers to become more involved in research in ways that will impact the treatment of their disease.

The first training program for patients and caregivers will be offered at Celiac Disease Foundation's National Conference April 30, 2016.

Read more at: Bezinga.com

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There are plenty of people that have gone gluten free without the official diagnosis because a gluten challenge would make them too sick. I think you are the only one that will know if it's right for you. There are some benefits to getting diagnosed as either celiac or NCGS. 1. If you are...

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thank you guys. I'm hoping the Gi will call back tomorrow. I'm getting the kitchen totally gluten free, except for a few things my sister who is a bit disabled is going to have. But no bread, flour, pasta and most other things will not have gluten. And my daughter doesn't go to school, she d...

Unprocessed food is great, but a life without chocolate no way! Am sure you will find a suitable brand. I don't eat Lindt, think they may use barley, others may know more. The Moser Roth are Aldi own brand. Looks like Aldi aren't in CR so not an alternative for you sorry. Maybe chec...

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