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Celiac Disease & Gluten-Free Diet Blogs

My Continuing Saga With Being Gf And No Sleep

Well I am two weeks completely gluten free, and no signs of improvement in my sleep. Have to give it more time I guess, although I think I have a bit more energy. Haven't found it that hard to stay away from the gluten, just have to more aware of what I am eating, and show more will power. Seems to do the trick.No word from my doctor on my prescription for tryptophan yet. Guess I will give her a call in the morning and see whats up.Started taking 1500 elemental units of Calcium a few days ba

marshlakemomma

marshlakemomma

Any Day Now

Our baby can come any day now. I think it will be sometime this week then again I don't think she will ever be born Last week we picked our pediatrictian. My husband is allergic to peanuts and I have celiac so I wanted a dr. that is familar with both. She said peanut allergies are not genetic. That was good to hear. He is very allergic and it is so scary. I know gluten is bad for me but it's not going to kill me if I eat it. I hope our daughter will not develop any of our problems.It is

KayJay

KayJay

New To This

I have never done this before so I hope I am doing it right. I have been gluten-free since Janurary of 04 and I am beginning to become tired of this whole thing. I am 8 months pregnant right now I am actually due in 3 weeks so that probably has something to do with being tired of being gluten-free. I became really swollen and my dr. told me to watch my salt and sugar intake. I just wanted to cry because I feel like I can't eat anything some days. I usually don't have a problem eating gluten

KayJay

KayJay

Cheating: On Purpose Or Not

This blog is inspired by Mosiac's tea cakes. I didn't used to get sick when I ate gluten before I was diagnosed (at least I didn't know I was getting sick, but I had thyroid, early menapause, osteopenia, etc). After a year gluten-free I find that my body does react when inadvertedly contaminated. Basically, I don't cheat. I thought I would (like when I visit my husband's family in Louisanna and his mama sets biscuits out on the table every morning) but I have found it easier than I thought it

lindylynn

lindylynn

Freezer Woes

Going through our huge freezer this weekend...cleaning out all the stuff that I can't eat...We donated 6 Sara Lee pies and 7 frozen pizzas, bags of rolls and biscuits, 2 loafs of bannana bread to our starving college student friends.The corned beefs that I bought at Safeway are gluten free! So tomorrow night is corned beef night. Stick it in the crock pot in the morning, get back from work and it's done!Bar-s products are almost all gluten-free, just not some of the Deli meats....those cheap h

Guest

Guest

Can't Sleep

I seem to be unable to get to sleep tonight. My husband is coming home tomorrow and I am so excited to see him after his being gone 6 weeks. He is in New Mexico tonight and will be here sometime early afternoon. Today is his 65th birthday and he was going to ride through Durango, Colorado to celebrate but he hit rain on his way up the mountains. So, he turned around and took to the highway and just headed the fastest way into New Mexico. I am sorry that his birthday was not what he hoped.

mouse

mouse

My First Post--last July.

Hello everyone!I'm a 21- year-old female who has exhibited many of the symptoms of celiac disease for the past five months. I have had an upper GI, countless blood tests (one of which caused me to pass out), a gallbladder untrasound, an X-Ray, and a stool card test (I never got the results on that one!). All of those tests were normal except for the final bloodwork I had done in June showing gluten antibodies. I have an EGD on Aug. 4th, and I'm not looking forward to being sedated while I swallo

Guest

Guest

The College Story.

After taking the tour in the spring of '02, I headed to Thiel to begin my freshman year that August (the 18th, to be precise). Cross Country camp starts early--I'll be there on the 21st this year (if I don't have to go to the country fair with the radio station for my internship). I was terrified, even though the campus is small, about numerous college awareness factors for young, single, vulnerable females. I remember waiting for my physical and literally gripping the wall. Initially (in high

Guest

Guest

To The Top

It's Saturday. I have nothing to say. I just wanted to put my blog at the top of the page.

Mosaics

Mosaics

Zzzz..or Not

something has to be wrong with me..its nearly 5 am and I am wide awake. I need to get up at about 9. stupid stress much be setting off Celiac, causing it to set off insomnia I guess. I hate it. Or maybe I am just thinking about certain guys too much.....

num1habsfan

num1habsfan

A Story Of Me.

I posted my diagnosis story a year ago in "Pre-Diagnosis and Testing," but I figured that I'd start with my life before I turned the gene on.Apparently, someone (whether Upstairs or otherwise) wanted me to have difficult challenges most of my life. I realize that I'm not the only one, but I thought that I'd share a few things.Sometime in 1983, before I was born, and until I was eight years old (1991), my father was a manager at the Allentown, Pa. UPS. One of his co-workers had a severe case of t

Guest

Guest

Hmm..

Oh man I am not feeling good at all today. Thats what I hate about Celiac, that I dont know if whats wrong is the flu or cold or celiac. But its slowly been building up (the sickness) the last 4 days and today seems to be the worst. But thats not going to stop me from anything. If I get everyone else sick thats ok. But there is Centennial and class reunion in town starting today and I wont let a flu or whatever ruin it for me. For once, I have a chance to have some fun. Not many chances like tha

num1habsfan

num1habsfan

Todays Lab Tests

This morning I had my blood work done after fasting for eight hours. They will also check my white and red cells. Then I went to the place where I will have the CT scan of my abdomen and pulvis (sp) on Monday. Picked up the Barium junk I have to drink before the test and asked if it was gluten free. They checked and still were not sure. So, I am hoping it is gluten-free. If it is not, I suppose there is nothing I can do about that. I don't feel well this morning and the stomach pains I st

mouse

mouse

Again Grr..

My head is pounding I have such a headache. When you have to deal with hearing yelling all day and all night it gets to your head and then yeah, give a big fat headache and everytime you hear more yelling it gets worse. Even my closest friends are discussing among their family how much I need out of there. And I agree..

num1habsfan

num1habsfan

Gluten Reactions

I'm usually a stickler about not cheating on the diet even though I never had any really terrible reactions. But a couple of months ago I went to a tea that a friend had for the ladies at church. Of course, tea sandwiches were served. Lots of different kinds of yummy things on little tiny pieces of bread. I love that kind of stuff. I didn't want to NOT eat anything and all the ladies said, "Oh you can just scrape the bread off and eat the fillings." I knew that the gluten leeched into the

Mosaics

Mosaics

Cereal

Revised Aug 4, 2005 Alf's Natural Nutrition Corn Puffs (available at Wal-mart Stores) Atkin’s (Atkin’s) Atkin’s Morning Start Breakfast Bars (all varieties)Atkins Advantage Bars Creamy Lemon Chiffon; Creamy Berry Cheesecake; Almond Brownie; Banana Colada; Chocolate Coconut; Chocolate Macadamia Nut; Chunky Peanut Butter; Chocolate Peanut Butter; Chocolate Rasberry Barbara's Bakery (www.barbarasbakery.com) Cereal: Brown Rice Crisps, Corn Flakes, Honey Rice Puffins (made on same equipment as glut

amandasmommy2

amandasmommy2

Individual List

Revised April 1, 2005   Candy   3 Musketeers (M&M Mars) Full size, Snack Size, and Bite Size are all the same formula and gluten-free   After-Eight Dinner Mints   Airheads Airheads are gluten-free. They are the only product processed in the facility. However, the company can't guarantee what happens at their suppliers facilities with regard to cross-contamination.   Allan Candy Canes   Almond Roca Candy (Brown and Haley) gluten-free but produced on shared lines that are

amandasmommy2

amandasmommy2

Baking Supplies

Revised June 27, 2006   ACH Foods (ve=2/23/06) All Karo Syrups; Golden Griddle, Old Tyme, Beehive, Crown, Lily White and Old Colony; All Mazola Oils and Sprays; Argo Corn Starch; Kingsford, Benson’s and Canada Corn Starch; All Fleischmann’s Yeasts   Adluh Self-Rising Corn Meal (dedicated lines)   Albers Yellow Cornmeal; White Cornmeal; Quick Grits   Albertson's Imitation Vanilla (Carriage House/Redwing)   Ambrosia Semi-Sweet Chocolate Chips   Amero Foods Flourless

amandasmommy2

amandasmommy2

Baked Foods

Revised April 1, 2005 Authentic Foods Gluten-free flours made in a gluten-free environment Bi-Aglut baked goods Ener-g Foods French Almond Cookies; White Rice Bread; Tapioca Bread; Yeast-free, Gluten-free Brown Rice Bread; Yeast-free, Gluten-free White Rice Food For Life (frozen) Raisin Pecan Bread, Rice Almond Bread, Buthanese Red Rice Bread, China Black Rice Bread, White Rice Bread, Brown Rice BreadNote: Bread made on separate machinery then gluten products and baked on a different day. G

amandasmommy2

amandasmommy2

Baby Products

Revised April 1, 2005 Baby Magic All lotions and powder Beech Nut Naturals Baby FoodStage 1 - Starter SizeFRUITS: Golden Delicious Applesauce; Chiquita Bananas; Peaches; Bartlett PearsVEGGIES: Tender Sweet Carrots; Tender Sweet Peas; Butternut Squash; Tender Golden Sweet PotatoesStage 1INSTANT CEREAL: Rice CerealJUICES: Apple Juice from concentrate w/Vit.C; Pear Juice from concentrate w/Vit.C; White Grape from concentrate w/Vit.CFRUITS: Golden Delicious Applesauce; Chiquita Bananas; Peaches; B

amandasmommy2

amandasmommy2

Household Products

Revised April 1, 2005 Ajax (Colgate-Palmolive) All purpose cleaner (Lemon & Ammonia), Cleanser, Dish Liquids (All), Laundry Detergents (Powders & Liquids)Amway Dish Drops; L.O.C Amway Sa8 Bioquest Laundry Detergent.Arm & Hammer Dye and perfume-free laundry detergent (both power and liquid); Pure Baking Soda (can be used as an antacid) Cascade (Proctor & Gamble) All varietiesClorox and Clorox 2 Crystal White Octagon Lemon Dish Liquid (Colgate-Palmolive) All varietiesDawn D

amandasmommy2

amandasmommy2

School Products

Revised April 1, 2005 CRAYOLA ALL Crayola products are gluten-free EXCEPT Crayola Dough. This includes: Markers; Washable markers; 3D markers; Chalk; Oil pastels; Mess Free Color Wonder; Jumping Colors; Model Magic; Crayons (regular, washable and metallic); Colored Pencils; Glue Paint; Silly Putty NOTE: Washable Finger Paints contain Dextrins.ELMER ALL Elmer brand products are gluten-free EXCEPT Finger Paints which contain wheat. This includes: Tempera paints; Paint pens; All glue; Mucilage; A

amandasmommy2

amandasmommy2

Snack Foods

Revised April 1, 2005Atkins Cruncher Chips All flavors of the Cruncher's Chips are gluten free (BBQ, Plain, Nacho, and Sour Cream and Onion). Atkins Nutritionals The following bars are listed by Atkins as gluten-free: Almond Brownie, Chocolate Coconut, Chocolate Decadance, Chocolate Peanut Butter, Cookies and Creme, Smores. NOT gluten-free: Chocolate Mocha Crunch, Pralines and Cream, Golden Oats Granola, Wild Berry Granola, Peanut Butter Granola. Note: There are several baking products listed

amandasmommy2

amandasmommy2

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  • Blog Comments

    • dixonpete

      I asked a logical follow-up question to ChatGTP5:

      Can you estimate what percentage of celiac hookworm hosts like myself achieve full remission from the disease?

      ChatGPT said:

      Great question, Pete. Let’s be very clear here:

      There isn’t a single hard number published for “what percentage of celiacs with hookworms achieve full remission,” but we can triangulate from clinical trials and community data:

      Clinical Trial Evidence

      In controlled studies, 0% achieved true full remission when challenged with sustained moderate gluten (≥2 g/day or short bursts of 16 g/day).

      Even with 20–40 N. americanus, villous atrophy still occurred under those challenges.

      However, around 30–50% of participants did experience softer symptoms and improved quality of life at micro-exposures (≤200 mg/day).

      Conclusion from trials: Hookworms help reduce symptoms and inflammatory markers at small exposures, but do not produce full clinical remission under regular gluten intake.

      Community / Self-Reported Outcomes

      Among self-treating celiacs, reports of “functional remission” exist — meaning hosts can eat gluten without noticeable symptoms.

      Based on helminthic therapy support groups and survey-type accounts, this looks like a minority (maybe 10–20%) of long-term hosts.

      However, these cases are controversial because:

      Some people may be asymptomatic but still sustaining silent mucosal damage.

      Community reporting tends to over-represent strong responders.

      Putting It Together

      Clinical remission (no symptoms + no villous damage on gluten diet): Essentially 0% proven in trials with 20–40 worms.

      Symptomatic remission (no symptoms, but mucosal injury uncertain): Maybe 10–20% of self-reported hosts claim this.

      Partial benefit (improved tolerance, less severe symptoms, better quality of life, but still need a gluten-free diet): This is the most common outcome — probably 30–50% of hosts.

      👉 So if we phrase it plainly:
      The average celiac hosting 20 hookworms won’t reach full remission. A small minority (≈10–20%) say they can eat gluten freely without symptoms, but this is not supported by trial evidence and carries risk of silent damage. For most, worms act as a safety net for cross-contamination rather than a cure.

      Would you like me to give you a visual chart (clinical trial vs. self-reports: full remission, partial, none) so you can see the proportions side by side?

    • dixonpete

      8 hours ago, miguel54b said:

      Thanks, I am desperate to find a cure too.

      I should add that hookworms aren't a cure for celiac disease. Some people, and I couldn't tell you how many, stop evincing the symptoms of celiac disease while their hookworm colonies are healthy. Others have a reduction in the severity of their reactions to gluten, but should still stay well away from it. And other people don't seem to be helped much at all.

      My theory all this is because of the different root genetics of the individual's celiac disease. My cousin is also celiac, and I'm highly confident he would be put in remission with hookworms like I was, but he has no desire to try them, so I'll never know if I was right.

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