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Celiac Disease & Gluten-Free Diet Blogs

Gluttened Twice & More Blood Tests

Three weeks ago I ate two cookies with gluten, thinking since they were Midol, they were gluten free. No wonder they were so good. LOL. Later discovered the mistake before I ate anymore. Four days later I accidently got cross contaminated. Needless to say I have not felt good since then. Start to feel better and then I am sick again. Yesterday I went to the lab and had nine vials of blood drawn to check out all of the vitamins. Came home and slept for almost three hours. I just want the

mouse

mouse

August 25, 2005

I've been sooooo busy! Son is working in one town 70 miles away and playing football in a different town 65 miles away and we're in school already. I've not had much time for internet or anything else lately.Gluten free is going really well. I've been surprised at how easy it is once I got into it. I've shed some of my prednisone weight which is nice. The RA is doing better I believe. The first two weeks after going off prednisone were horrible. RA factor more than doubled and boy, could

Ann1231

Ann1231

Chebe Chebe Bobebe Fo Fana Fana Fo Febe

Hey, I finally rec'd my Chebe bread order. Last night I used the original mix to make hot dog buns. They weren't like any bun I've every had, but they were good. Since the instructions said to flatten them out to about 1/2 inch, I thought they might rise. But no, they were still 1/2 inch thick when they finished cooking. They were crusty on the outside and kind of chewy on the inside. I sliced them in half lengthwise so we could put our hot dogs and bratwurst inside them. I ended up just

Mosaics

Mosaics

Approx 2.5 Weeks Of Gf

the food component of my consumption has been gluten-free, but wondering about some of my enzymes - Q-zyme by garden of life? Also some members of this group seem to think that even well washed baking trays previously used with wheat is not good enough. Just read a post here yesterday that mentioned wooden miking spoons, hmm put them in the dishwasher would have thought thats good enough - i'll change them on the weekend.my paralysed stomach continues to operate and gives me a reminder with a li

Mr J

Mr J

Some Background Info And Posts To The Yahoo Group

not planning on making this a continuous blog but using this as a description of my condition.gastroparesis is an awful paralysis of the internal smooth muscles of the stomach. A normal persons stomach will automatically contract at regular intervals helping to churn and digest food. When the nerve impulses to perform this involuntary activity slow down or even cease then severe digestive distress will result. Sometimes the cause is known eg. stomach surgery accidentally severs the vagus nerve.

Mr J

Mr J

Post #3 To Gastroparesis Yahoo Group

From: "mikej253" <mikej253@yahoo.com> Date: Thu Aug 4, 2005 4:18 am Subject: UPD: getting tested for gluten/ celiac disease mikej253 Offline Send Emailnot going cold turkey on gluten, down to just 1/2 a donut's worth ofgluten per day. Started on sunday so too early to notice anything.Sending back the mail order gluten test to enterolab.com today - theysay that short periods off gluten hardly affects their test and theycan test after longer too, so thought i'd make a start on the weeke

Mr J

Mr J

No 2 To Gastoparesis Yahoo Group

From: "mikej253" <mikej253@yahoo.com> Date: Mon Aug 1, 2005 7:44 am Subject: Re: getting tested for gluten/ celiac disease mikej253 Offline Send Emailthank you for that info Sari, removing gluten is a drastic stepconsidering i'm alreadytaking drastic steps with my food, so i need a good reason to reallygo for it. if this test isnegative then i'll follow you advice and try blood test and requestbiopsy. i just recentlylurked on www.celiac.com message board and a number of them usedenter

Mr J

Mr J

My First Post Regarding Celiac Suspicion

From: "mikej253" <mikej253@yahoo.com> Date: Mon Aug 1, 2005 6:28 am Subject: PER: getting tested for gluten intolerance/celiac disease mikej253 Offline Send Emailapparently there is not a classic set of celiac disease symptoms, insteadindividuals exhibita subset of various possibilities, some vague. I exhibit a classic case of thisvaguepossibility. I'm not going to pin all my hopes on my prblems being wheat relatedbut ibeleive worth a go considering that:- my ideopathic gp has just gr

Mr J

Mr J

About Burping

From: "mikej253" <mikej253@yahoo.com> Date: Tue Jul 19, 2005 11:54 am Subject: Re: PER: Burping, MED: Zelnorm mikej253 Offline Send Emaili think everyone in this group is weird as our stomachs aren't normal, howeverto answeryour other question I too have had a lifelong inability to burp. In my youngerdays notreally an issue. The only time that i have ever done a decent burp is whenretching (notcoz of gp)instead if my stomach is working (younger non gp days or using a motility drug)wha

Mr J

Mr J

Brekky And Lunch

From: "mikej253" <mikej253@yahoo.com> Date: Fri Aug 5, 2005 12:47 pm Subject: Re: UPD: getting tested for gluten/ celiac disease mikej253 Offline Send Emailthats good to know Jeannette,I did a brief search and looked at some of your posts on that subject. I thinkgood info, i'llgo thru it in more detail on the weekend.so far managing on corn tortilla, baked beans, banana, nut butters, no modneeded for myevening meat or fish and vege juice meal. usually have sticky rice with maybe afew

Mr J

Mr J

Dinner 8/24/05

Tonight it's steak! Yummy! Marinated in Lawry's Chipolte marinade. Called up Lawry's and they're sending me a list of their gluten-free products. I'm also on their mailing list so now they'll send me updates and changes regarding their gluten-free foods.So: Steak, corn on the cob, frozen mixed veggies, and applesauce for dessert.Gooooood dinner!!!

Guest

Guest

All About Christi

Hi all.Just heard of blogs not so long ago so I figured I would start one. I am 31 years old and a mother of 3 kids, Autumn 14, Asia 11 and Graeden 7 (dont do the math ). I have been gluten free since Feb 05 and feel lots and lots better. I have tested negative on the blood panel but know better. I was pretty much gluten free when I had the testing. My daughter Asia may be like me. She has associated bloated feelings when she eats wheat and oatmeal. We have started the testing and am mixe

christicrete

christicrete

Home Again Today

Tried to go into work again today, and only made it 45 minutes this time. Got REALLY sick. Guess I need to stop eating for a day or two until my system calms down. It is nice to know though that it is Celiac, and I can for the most part control this. And it is better than it was 2 months ago. Not one week could pass without missing at least a few hours because of the diarrhea. I've made it almost 3 weeks now.

drewsant

drewsant

My Health Story

Hey everyone! I have always had a problem with stomach aches. Although they were not bad, they were still there. In sixth grade they started getting worse. The summer between sixth and seventh grade, I started getting acid and some kind of burping. It was horrible. Every night after dinner, it would almost sound like a fireworks show. Also one day at the beginning of summer, I got dizzy. Not just a little bit though, it was HORRIBLE! It wouldn't stop! All day I would just lay on the couch with a

PicturePerfect

PicturePerfect

Drum Roll Please...

The patio is finished.   The before shot:   <img src="http://img.photobucket.com/albums/v191/Mosaics/Patio1.jpg" alt="Image hosted by Photobucket.com">   The after shot:   <img src="http://img.photobucket.com/albums/v191/Mosaics/Patio2.jpg" alt="Image hosted by Photobucket.com">   I painted a stream along the back edge of the patio. Here's a part of that:   <img src="http://img.photobucket.com/albums/v191/Mosaics/Patio3.jpg" alt="Image hosted by Photobucket.com">

Mosaics

Mosaics

Dangerous Stomach Motility Drugs

>From: "mikej253" <mikej253@...>>Reply-To: gastroparesis@yahoogroups.com>To: gastroparesis@yahoogroups.com>Subject: Re: Gastroparesis: BeeDee-What the Professor said...>Date: Wed, 20 Jul 2005 03:14:39 -0000>>hope you don't mind me commenting but i can empathise with what some of>your brother>is going thru. From reading previous posts i always considered him in a>more physically>complex and much worse state than me so it wasn't fair to comment, but what>y

Mr J

Mr J

My Vast Array Of Supplements And My Skateboard

From: "mikej253" <mikej253@yahoo.com> Date: Thu Jul 21, 2005 12:31 pm Subject: Re: Gastroparesis: Mike-What the Professor said... mikej253 Offline Send Emailhello Adam,here was yesterday's routinegot up 5am downed one extremely powerful pro-biotic from www.healthfree.com -callediFlora with one glass+ of room temp spring waterdrove to beach and went surfing.took one 20strenght OTC pepcid antacid with a little waterpulled out 1 flask of strong coffee, cooled a little, half-and-half inst

Mr J

Mr J

Part 5

Well, the first time in almost a month that I had to leave work because I was sick. I got glutened on Saturday, and managed to get through yesterday, but it was a bad sign when I was in the bathroom 3 times within the first 1 1/2 hrs of work, so I just went home. At least now I know when I get sick, if I just be extra vigilant, it won't last very long. I used to get diarrhea for months on end. I was actually used to having it. Now that I haven't had it for a while, it's frustrating. More about m

drewsant

drewsant

Phone Company Morons

It's an established fact. Cell phone companies only hire morons. Non-morons need not apply. I won't say I'm sorry to any phone company employee that may be reading this. Every last one of them is a moron. If it isn't true...then prove it...act like you have a brain.Early this summer we went to get a cell phone for our son. I must preface this with: My husband is a long time customer with Sprint. He got his cell phone when they first started offering cell service about 10 yrs. or so ago an

Mosaics

Mosaics

New Business And New Glasses

My son bought the lawn mowing business. Well...my husband and I loaned him the money for it. He's been working hard already contacting customers, becoming acquainted with the equipment and getting it all ready to go, setting up his schedule, etc. I think he'll be going out to mow for the first time tomorrow. I'm excited for him since this will probably be a life-changing experience...I hope for the best. My husband and I made the concrete pads to bolt the gazebo supports on to. Hopefully,

Mosaics

Mosaics

Dinner 8/21/05

Rice and Shrimp with veggies as a side:2c. rice, 1 chopped onion, 1 chopped bell pepper and 1Tbl. minced garlic browned in 2Tbl. olive oil over medium heat.Then you add 1 can chopped tomatos with their juice and 1.5c. water. Bring it to a boil, add 2tsp. oregano, 1tsp. chili powder, frozen shrimp, and salt and pepper. Bring it down to low, cook rice until done.Frozen veggies on the side and tapioca for desert. ummm ummm ummm

Guest

Guest

Movie Review: The Island

I loved it! I like suspense/sci-fi. Very interesting plot twists: creating clones to harvest organs for the rich clients of an insurance company. It reminded me a little of The Matrix, or Total Recall. Anyways, if you like the thriller suspense movies then it's great. It wasn't as violent as The War of the Worlds. My husband didn't like it at all...he ended up taking the baby and walking in the hall for parts of it. Lol! Poor guy. We snuck in skittles and popcorn!Tomorrow is the last da

Guest

Guest

My Only Regret, I Did Not Drink More Champagne!

That is what I want on my head stone.Welcome to a world where confusion and chaos rain, (yes rain) in the mind of a wanna be anal-retentive. I am the chairman of the Albuquerque ROCK chapter.I have such a great imagination that I believe someone (me) who is an introvert, who knows very little about celiac and is pretty sure her 5-year old is smarter than her, can organize and run a support group for Celiac kids and their parents. In my 40+ years I have found that if I listen to people's opinio

abqrock

abqrock

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  • Blog Comments

    • Celiac16

      Oh my gosh I am reading my exact story… I just responded to a bunch of problems posts saying the same things… 

      I do pretty much atkins too (under 20g carbs) which has been lifesaving in addition to thiamine. Symptoms are gradually improving, POTS isn’t as bad, and haven’t had the vertigo or nausea I had every time I ate. I think blood sugar may have been my bigger issue but I was stuck navel gazing with the celiac’s diagnosis (so many unproductive GI visits and unhelpful tests and years of frustration ).
      I was doing keto for a bit but wasn’t eating enough meat and my carnitine levels fell very low so have to make sure I eat around 30% cal from protein.


      No pre diabetes or diabetes but I like to monitor my glucose at home and see how my symptoms correspond. Definitely think minimizing inflammation by keeping sugars low is my way of keeping my autoimmunity in check. More empowering as the patient too.

      keep spreading the word!! Wish I had found out ages ago

    • knitty kitty

      Thiamine Mononitrate is not well absorbed and not utilized well by the body.  

      Thiamine Hydrochloride and Benfotiamine are forms the body can utilized much easier.  Benfotiamine has been shown to promote intestinal healing.

      Thiamine needs magnesium to make some essential enzymes.  A magnesium citrate or magnesium glycinate supplement should be taken with Thiamine.

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