Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Celiac Disease & Gluten-Free Diet Blogs

armetta's Blog

Vision & Scleroderma

I cannot believe how dumb I can be at times. I noticed AGAIN that the next to last posting was not published and so I click on the mouse and publish it. Now my last blog is further down the line. I think I did this once before. I hate when I do something like this without thinking it through.   My vision has been really bad on and off today. When it is a little better, I then pick up the book I am reading and hold it about 6 to 8 inches from my face. But at least I can read. Yesterday m
mouse

mouse

0
bobhayes1's Blog

Celiac Doctor Says He Has 100% Cure!?

Hello, This is my first time using a forum and hope I get it to work.   Question...Is there a CURE for Celiac disease?   There is a doctor advertising on this site. His name is Dr. Skip Snow. He says, in his site that he can and does cure Celiac disease, as well as other diseases.   It will cost me a lot of money, that I don't have, in order to try him.   Has anyone had any experience with him? Any success or failure to report?   Thanks, Bob
bobhayes1

bobhayes1

3
CeLiAc CeLeBrItY

Long Time...

Wow, between this, Livejournal, Myspace, and other internet toys, I really haven't been on here. I figured I'd drop a few lines.   The only thing I miss now that I'm a Celiac is the quickness and convenience of meals. That is, only when Thai Kitchen and other gluten-free packed food isn't available. I miss Krispy Kremes and Combos, badly. I wish that cooking breakfast and lunch didn't take so freaking long. It takes me almost an hour to cook, and when one of my friends asked my roommate where
Guest

Guest

0
G-Free's Blog

Diagnosis

I have to say it's been interesting, as well as painful. This is not the worst thing that could happen to a person, but it is oddly inconvenient as I'm frequently on the road. Because of this being gluten free will be a challenge. I have had the most common syptoms for aproximately six years, but I suspect that I have had celiac disease for a much longer period of time. Frequent childhood illnesses, vaque allergies lack of energy. I have been trying to maintain a gluten-free diet since bei
G-Free

G-Free

2
armetta's Blog

Vision, Scleroderma, Google & Brain Fog

Yesterday was kind of a cruddy day. I did some errands in the morning and on the way home I noticed that I could not see the signs very well. And when I closed my left eye, my right eye vision was all blurred. I got home and my husband said to call the eye doctor. They wanted me in within 30 minutes which really upset me. They were concerned about the possiblility of a detached retina. I had had one in my left eye in the late 60's or early 70's (what does my memory know LOL) and I can tell
mouse

mouse

0
Ann1231's Blog

January 16, 2006. Day One Again.

dang. I had gluten last night. That really aggravates me not only for my intestines but for my RA. Now I have to start all over with today as Day One.   Today is a strict vegan, gluten-free day!
Ann1231

Ann1231

0
Ann1231's Blog

January 15, 2006

constipation is getting a little better, no bleeding today! I'm still eating vegetarian. It helps with both gluten and RA. I've been eating a lot of raw foods lately, fruits, including figs, dates, raisins, bananas, and lots of carrots, cucumbers, celery. I'm still very fatigued this week. I got the ok to lower my MTX to 6 a week instead of 7. PA said I was having a bad reaction to that high of a dose. She also thinks I'm anemic so I'm going in the first week of February for a blood tes
Ann1231

Ann1231

0
Ann1231's Blog

January 11, 2006

yesterday turned out well. I had rice, carrots and cucumbers for dinner last night. Today I have a really bad headache, probably gluten withdrawal. I did a full qigong workout last night, felt wonderful. Today son starts his drama class for the semester so we'll be traveling and eating out. I'm going to take him to Hu Hot, they have an allergy sheet you can get that tells what has wheat, peanuts and other allergens in their foods and sauces. I'm also going grocery shopping tonight for
Ann1231

Ann1231

0
Ann1231's Blog

January 10, 2006

full day 2 without gluten. Feeling better on that front, I've been eating a lot of fresh vegetables and lean meats, pecans, raisins and prunes. My increase in mtx. is awful, I feel drugged again this week and can hardly stay awake and when I sleep, I have a terrible time waking up.   I thought about ordering a pizza for an easy dinner...duh. It's so easy to have gluten and not even think about it. I have to be much more diligent.
Ann1231

Ann1231

0
num1habsfan's Blog

Blah

I wonder what else is truly wrong with me. I'm serious already, the arthritis, rib pain, mysterious stomach pain, constant flu-like symptoms, and worst of all: Jeans falling off!! If I lost weight again I'm going to scream. Maybe I should just scream anyways...
num1habsfan

num1habsfan

0
Ann1231's Blog

January 09, 2006

I'm feeling better this morning. I still had some pain in the right side area last night but I slept very well and don't feel as fuzzy minded this morning. Today is my MTX day so that will change   I don't have a clue what I want to eat for breakfast. I'm not even hungry but I have to eat to take my meds. If I can still function after that I think son and I will go to the zoo. It's cold so there shouldn't be too many people there; we can take our time at the exhibits and do some school
Ann1231

Ann1231

0
Ann1231's Blog

January 08, 2006

oh, what a year! I've neglected my diet for celiac disease trying to get my RA straightened out. I was bedridden much of late summer and felt awful the rest of the time. I have never been in so much pain as I've been this year. In October I finally saw a rheumatologist who gave it to me straight, either take the meds or die about 15 years younger than the 'expected' life for a U.S. female. I am now on Methotrexate, prednisone (nice weight gain ), naproxyn, folic acid and he's now talking a
Ann1231

Ann1231

0
Mosaics' Blog

Walmart Root Beer

We had our Christmas dinner on Monday the 26th this year. I am certain that I didn't have anything to eat that contained gluten, but I was sick all Monday night. The only thing questionable that I consumed was a Sam's Choice (Walmart brand) root beer. The only questionable ingredients on it's label are caramel coloring and natural flavoring. I have a call in to Walmart to find out if their root beer contains gluten or not. I really want to find out if I had a gluten episode or if it was jus
Mosaics

Mosaics

0
Mosaics' Blog

Hellllooooo!

Is anybody out there in blogland!?   I had a good gluten-free Thanksgiving. No gluten contamination. Last year I got something, still haven't figured out what it was, but it ruined my trip to see Cirque du Soliel.   Some of my family members brought some glutened foods, but I avoided them and all was A-OK. My sausage dressing was excellent this year. Remind myself next year to grind up part of the rice bread (brown and white rice) in the food processor a couple of days before and let i
Mosaics

Mosaics

1
zipy's Blog

Dinner 11/29

Soup! Yummy, easy...warm and delicious:   Swanson's chicken broth (2 cans, or 1 can broth, one can water), leftover diced up chicken breast, 1/2 bag frozen peas and carrots, 1/2 bay leaf, salt and pepper to taste, leftover rice. Heat it all up in a large pot.   Simple, yet good!
Guest

Guest

0
num1habsfan's Blog

Nearly Going To Give Up

Things are getting to the point where they just dont work out. I've been on this diet for 33 months, and most of my family is still un-supportive or just dont try to understand how Celiac works, what I can and cant eat, and just how sensative I am. I get laughed at and lectured if I admit that sharing a knife, fork, etc or double dipping is enough to make me really ill. I am slowly falling back into that mood where I am ready to say forget this, I dont care what happens, and stop the diet. And i
num1habsfan

num1habsfan

0
drewsant's Blog

Went To The Allergist.....

a couple of weeks ago, and found out I'm allergic to fish, chicken, soy, tree nuts, and wheat. So I guess I'll still have to remain gluten free. I am really thinking it is due to allergies that I'm having all these problems. For the first 3 weeks or so going gluten-free, I ate only fruits and vegetables, because I was so afraid of getting glutened. I was fine until I started adding stuff back in, like eating chicken every day, fish every few days, etc. I'm going back to my doc in a few days and
drewsant

drewsant

0
Seosamh's Blog

Hunger In Literature

Hi there,I'm writing today, feeling fairly well. I wonder how other celiac's who were long undiagnosed got through it. Are other people as angry at the medical establishment as me? At themselves? I still often feel depressed, wishing that I could have led a healthy life up until now. I always knew something was wrong--I wish I would have figured this out so my body could have formed healthily. I get along really well with octogenarians--we have so many similar illnesses! Ah well--I'm not
Seosamh

Seosamh

0
zipy's Blog

It's Been Awhile Since I Last Posted

My daughter was diagnosed with Type 1 Juvenile diabetes, also an autoimmune disorder, and that has just consumed our lives....ack! Like manageing one diet wasn't hard enough. We're still waiting the results to see if she has celiac as well...keep a good thought for our family! At least it has cooled off, no more 100+ days! THANK GOODNESS!
Guest

Guest

0
zipy's Blog

Death By Guinea Pig, And Other Ways To Go.

This is going to be the title to the book I'm going to publish for Celiacs about unsuspecting things that can get them sick...So my husband brings home a guinea pig and all of its "stuff" first five ingredients on the food are all wheat things...4 days after he's in the house, it's as if I've eaten a bowl of cheerios for breakfast...man o' man was I sick. We scrubbed the whole house, because we have a 2 year old that carts that thing everywhere, and bought alfalfa for him. Who would have thunk
Guest

Guest

0
armetta's Blog

I Can't Think Of One-brain Is Foggy

I guess it is time to add to my blog. I almost feel that I am obligated to do this for myself. So, I can look back and see where I was and where I am now. I am still fighting depression over the lack of energy. I have a doctor appointment next Monday for that specific thing. I don't want to go on anti-depressents, if they are going to make me into a bigger slug then I am. I am under a great deal of stress with our almost 18 granddaughter (who lives with us) and don't know what I can do to
mouse

mouse

0
Mosaics' Blog

Dead Blogs And Hidden Gluten

This Blog board has been pretty dead these past few weeks. Seems after the initial flurry of activity, we've run out of things to say and hardly any new entries are posted.About three weeks ago I went out to eat lunch with a friend at a place called Cafe Max. It's a very popular place with the business lunch crowd and serves soups and salads. I used to eat there years ago, but hadn't been in a long time...even before my diagnosis. I had the Ceasar salad and the seafood salad. I asked before
Mosaics

Mosaics

0
zipy's Blog

Dinner 9/16

Yummy, the house smells wonderful!Oven roasted chicken stuffed with celery and onionBaked potatosGreen saladSliced cucumbersDrink? Maybe we'll open a bottle of wine! After all, yesterday was payday and today is Friday! Goin' all out!~Cheers
Guest

Guest

0

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Blog Comments

    • Celiac16
      Thiamine Deficiency Disorders

      Oh my gosh I am reading my exact story… I just responded to a bunch of problems posts saying the same things… 

      I do pretty much atkins too (under 20g carbs) which has been lifesaving in addition to thiamine. Symptoms are gradually improving, POTS isn’t as bad, and haven’t had the vertigo or nausea I had every time I ate. I think blood sugar may have been my bigger issue but I was stuck navel gazing with the celiac’s diagnosis (so many unproductive GI visits and unhelpful tests and years of frustration ).
      I was doing keto for a bit but wasn’t eating enough meat and my carnitine levels fell very low so have to make sure I eat around 30% cal from protein.


      No pre diabetes or diabetes but I like to monitor my glucose at home and see how my symptoms correspond. Definitely think minimizing inflammation by keeping sugars low is my way of keeping my autoimmunity in check. More empowering as the patient too.

      keep spreading the word!! Wish I had found out ages ago

    • knitty kitty
      Thiamine Deficiency Disorders

      Thiamine Mononitrate is not well absorbed and not utilized well by the body.  

      Thiamine Hydrochloride and Benfotiamine are forms the body can utilized much easier.  Benfotiamine has been shown to promote intestinal healing.

      Thiamine needs magnesium to make some essential enzymes.  A magnesium citrate or magnesium glycinate supplement should be taken with Thiamine.

×
×
  • Create New...