How Food Impacts the Lives of People with Celiac Disease: A Summary of New Research on Food-Related Quality of Life

Celiac.com 06/20/2025 - Celiac disease is an autoimmune condition triggered by eating gluten, a protein found in wheat, barley, and rye. For people with this condition, the only effective treatment is a strict, lifelong gluten-free diet. While this diet can help control symptoms and prevent long-term damage to the small intestine, it also introduces significant lifestyle challenges. One of the most important, yet often overlooked, areas affected is a person’s relationship with food and how it impacts their everyday life. This new study explores exactly that—how food affects quality of life for people living with celiac disease.

What Is Food-Related Quality of Life?

Food-related quality of life is a term that refers to how food and eating influence a person’s social, emotional, and psychological well-being. It includes everything from enjoying meals with friends and family, to feeling confident when eating out, to the stress and anxiety of avoiding foods that could cause serious illness. For someone with celiac disease, these issues become especially complex. Every bite they take must be carefully monitored to avoid gluten exposure, which can not only trigger symptoms but also lead to long-term health damage.

Celiac.com Sponsor (A12):
This study set out to measure food-related quality of life in adults with celiac disease using a specialized questionnaire designed just for this purpose. It also explored which factors—such as age or the number of symptoms—might influence how a person feels about food in their daily life.

Who Participated in the Study?

A total of 138 adults with medically diagnosed celiac disease took part in the study. They answered a questionnaire designed to assess how their condition affects their relationship with food. The group included a mix of ages and slightly more women than men. The average age of participants was just over 52 years old, but people of all adult age groups were included.

In addition to the questionnaire, participants shared basic information about their health and symptoms, including how many ongoing gastrointestinal issues they were dealing with.

What Did the Study Find?

Overall, the research confirmed that food-related quality of life is noticeably affected in people with celiac disease. However, the impact is not the same for everyone. Some groups reported a much more difficult experience than others.

Younger Adults Reported the Most Challenges

The study found that younger adults—especially those between the ages of 18 and 35—had the lowest food-related quality of life scores. These individuals may be at a stage in life where social events often revolve around food and dining out, which can be especially challenging when living with dietary restrictions. Their average score was significantly lower than older adults, who seemed to manage the dietary limitations more easily or had adapted better over time.

More Symptoms = Lower Quality of Life

People who reported having more gastrointestinal symptoms also scored lower on the food-related quality of life scale. Those with four or more ongoing symptoms had a particularly difficult time, suggesting that continued symptoms despite following a gluten-free diet can make eating even more stressful. This might be due to worries about hidden gluten, anxiety over possible contamination, or ongoing damage from past gluten exposure.

Social and Emotional Impact

While the study focused mainly on data and scores, it reflects deeper emotional and social realities. People with celiac disease often face food-based isolation. They may avoid restaurants, travel, or even family gatherings out of fear of getting sick. Some report feeling like a burden or different from others, and many struggle with the constant vigilance required to stay safe. These experiences can take a toll on mental health, self-esteem, and overall enjoyment of life.

What Can Be Done to Improve the Situation?

This study highlights the need for more support for people living with celiac disease—support that goes beyond diet advice. While dietitians can help patients identify safe foods, many people may also benefit from psychological support to cope with the social and emotional effects of their condition. Counseling, support groups, and public awareness efforts could all play a role in helping people live more fully and comfortably with celiac disease.

In particular, younger adults may need targeted support as they navigate school, dating, and social events—all areas of life where food is often a central part. Likewise, individuals who continue to have symptoms despite their best efforts at following a gluten-free diet may need more in-depth medical evaluations and tailored advice to improve their experience with food.

Why This Research Matters for People with Celiac Disease

Celiac disease is often seen as a “diet-managed” condition, but this study shows that the impact of the disease goes far beyond what is on the plate. Food is deeply connected to identity, culture, and community. For people with celiac disease, the constant need for caution can lead to emotional stress, social isolation, and reduced quality of life.

Understanding how food impacts well-being gives healthcare providers and researchers a better starting point for offering real help. This could mean developing better educational tools, creating more inclusive food options, or investing in psychological services for those who need them. By paying closer attention to food-related quality of life, the medical community can improve how celiac disease is treated and understood—not just medically, but also personally.

In short, this research sends a clear message: improving life with celiac disease means more than just removing gluten. It means supporting people in every aspect of how they live, eat, and connect with others.

Read more at: onlinelibrary.wiley.com