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Additional Concerns
This category covers everything from dealing with celiac disease, schools, hospital stays, quality of life issues, camps, pets and gluten, dealing with relatives, and much more.
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Recent Activity
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- ehb replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease31Refractory Celiac disease - what to do
@knitty kitty thank you I am exploring these options, I really appreciate all the suggestions and info. I am only slightly below the normal range for folate, zinc and copper. And in the low end of the normal range for B12, ferritin, and vitamin A. I’m good for carotene magnesium and iron, but I’ve been taking 400 mg magnesium daily -
- Alibu replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8Waiting on biopsy after positive bloodwork, but also not really believing this is real
I just had my endoscopy the other day and the doctor took 12 samples because he said if we're going to find something we're going to find it today LOL. But when he got down there, he said everything looked good. So I have it in my head again that it's going to be negative because everyone I've heard of who had a positive biopsy had their endoscopies where... -
- trents replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Virus, celiac disease or both?
That's just it. When they are doing an EGD, even with biopsy, if they aren't thinking about celiac disease they may miss it. They should take several samples from both the duodenum and the duodenum bulb. Damage can be patchy and easily missed if sampling isn't through. And patch damage may explain lack of dramatic symptoms. Let me assure you that we... -
- knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease36Supplements for those Diagnosed with Celiac Disease
Blood tests are affected by what you've had to eat in the previous day or two and any vitamin supplements you've taken in the past month or two. If you have been taking vitamins before the time of the blood test, the vitamins supplements could mask a deficiency. So get the tests before supplementing, or allow eight to twelve weeks for the supplements to... -
- Shining My Light replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Virus, celiac disease or both?
Thank you @trents! This is all sound advice. In 2022 I did have a biopsy done with the EGD: SPECIMEN: (A) DUODENUM, BIOPSY (B) GASTRIC BIOPSY(C) GASTRIC POLYP, BIOPSY(D) ESOPHAGUS BIOPSY (E) ESOPHAGUS BIOPSY This would have been when the candida was found. If I understand right it’s the duodenum they take a biopsy of. Nothing was mentioned a...
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