United States - Doctors

February 20, 2008

THANK YOU. What a blessing!

March 4, 2008

There are not doctors listed for the state of Florida? I'm am the mother of a celiac and she has the most wonderful doctor, Dr. George at Nemours childrens clinic 904-390-3600

April 27, 2008

I'm so glad I finally found this site. Now I need a recommendation to a good Celiac physician in Alaska (for a near relation who has all the worst symptoms of Celiac Disease but whose physician refuses to test).

June 11, 2008

I too wish I saw some Florida doctors listed. I live in Southwest Florida and would sure love to find a good one tuned into diagnosing possible celiac.

July 8, 2008

Looking for physicians in Arizona...does anyone know of a good one who knows about Celiac?

August 21, 2008

Thank you for helping me find a doctor in my area.

August 24, 2008

Looking for a celiac doctor in Connecticut. Any suggestions are greatly appreciated!

January 10, 2009

Thank You So Much! Although I don't see any doctors in my state, I will travel when I am able. I have never been so sick in my life. I have just been recently diagnosed by a resident in my local hospital. NOT by MY PHYSICIAN! This Resident was AMAZING! He would not let up on the testing till he found the facts and test results to back up his suspicions that I had Celiac Disease. He tested and retested! He has no desire to open a family practice. That is such a Huge Frustration for myself and I know others in our state that I know have this horrible disease that are going undiagnosed as I was! I am in deep need of much more knowledge and help! I have never been so sick in my life! I have been down with this totally disabled for over four years now!! I cannot go anywhere due to the massive cramping and diarrhea and bleeding and the nausea is unbearable! Every medication they have tried me on I have been allergic too! HELP!!

March 4, 2010

Looking for a celiac doctor in Connecticut. Any suggestions are greatly appreciated!

If you find any let me know!

April 1, 2010

Thank You So Much! Although I don't see any doctors in my state, I will travel when I am able. I have never been so sick in my life. I have just been recently diagnosed by a resident in my local hospital. NOT by MY PHYSICIAN! This Resident was AMAZING! He would not let up on the testing till he found the facts and test results to back up his suspicions that I had Celiac Disease. He tested and retested! He has no desire to open a family practice. That is such a Huge Frustration for myself and I know others in our state that I know have this horrible disease that are going undiagnosed as I was! I am in deep need of much more knowledge and help! I have never been so sick in my life! I have been down with this totally disabled for over four years now!! I cannot go anywhere due to the massive cramping and diarrhea and bleeding and the nausea is unbearable! Every medication they have tried me on I have been allergic too! HELP!!

Hi Cindy, This might help. When I was first diagnosed I was as sick as you. It took 10 years, and several doctors, before I found out what it was. By then I weighed 98 pounds (I'm 5'8) and I couldn't leave my house, even to pick my kids up from school, in fear that I wouldn't make it home in time to use the bathroom. By the time I was finally diagnosed, my villi was so damaged, my gastroenterologist feared I had infractory sprue or intestinal lymphoma because I continued to lose weight and was still sick even on the diet. I was put on Prednisone, a few specific vitamins and ate nothing but boiled potatoes and bananas for several weeks. If I tried rice, or baked potatoes for example, I became ill. A nutritionist told me that I might have other food allergies in addition to my celiac sprue, which sent me into a tale spin. Luckily, my doctor was educated enough in the disease to tell me that when villi starts to heal (especially when it was as damaged as mine) all foods (especially dairy) can aggravate it. So, I stayed on my boiled potatoes (plain) and bananas for a long time, then I added a little chicken, etc. If something made me sick, I would back off, go back to the potatoes and bananas then work up again. Happy ending. Within a year, I was off all medicine, was eating whatever I wanted (minus gluten) and had gained 30 pounds. Now, 15 years later, I am so healthy, I eat out all the time and travel world-wide, on a regular basis. This is not a disease to play around with. You must not cheat, you must be extremely diligent in the first year especially. It will get better. Good Luck

July 16, 2010

Looking for physicians in Arizona...does anyone know of a good one who knows about Celiac?

I am also looking for a physician in Arizona....

August 27, 2010

For anyone in Portland, Oregon I highly recommend Dr. Debra Glasser. She is an incredibly thorough, caring, compassionate doctor whom was able to diagnose my celiac after 2 years of suffering. She herself has celiac disease so she is very knowledgeable on the subject. To anyone suffering with the disease, never lose hope, you can find help!

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