Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,066 topics in this forum

  1. seebeeeeeeeeee
    cyclinglady

    Want to get diagnosed, but unable to eat gluten without becoming violently ill for days

    By seebeeeeeeeeee, Last action:
    • 2 replies
    • 784 views
    • cyclinglady
    • cyclinglady
  2. Roxas162
    cyclinglady

    DH? Celiac? Just eczema? Opinions?

    By Roxas162, Last action:
    • 1 reply
    • 1.1k views
    • cyclinglady
    • cyclinglady
  3. MamaMae
    squirmingitch

    Pushing for screening- need 2nd opinion?

    By MamaMae, Last action:
    • 5 replies
    • 1.1k views
    • squirmingitch
    • squirmingitch
    4. Celiac.com Sponsor (A8):
    Celiac.com Sponsor (A8):

    Celiac.com Sponsor (A8-M):


  4. **Liz**

    Cold like symptoms related to coeliac?

    By **Liz**, Last action:
    • 2 replies
    • 747 views
    • **Liz**
    • **Liz**
  5. AnnieRoa
    tessa25

    Best way to present concerns to doctor and ask to be tested? DH? NCGS? celiac disease?

    By AnnieRoa, Last action:
    • 1 reply
    • 718 views
    • tessa25
    • tessa25
  6. chrissy-b

    Celiac Gene & Gluten Challenge Sucks -- Now what?

    By chrissy-b, Last action:
    • 0 replies
    • 669 views
    • chrissy-b
    • chrissy-b
  7. ktyler44
    chrissy-b

    Celiac Gene and NCGS

    By ktyler44, Last action:
    • 2 replies
    • 896 views
    • chrissy-b
    • chrissy-b
  8. bmarsh28
    squirmingitch

    The Usual Question: Help Needed on Test Results

    By bmarsh28, Last action:
    • 4 replies
    • 818 views
    • squirmingitch
    • squirmingitch
  9. redclover22
    cyclinglady

    Doing a gluten challenge, getting more miserable each day... is testing worth it?

    By redclover22, Last action:
    • 1 reply
    • 1.1k views
    • cyclinglady
    • cyclinglady
  10. Celiac.com Sponsor (A10):
    Celiac.com Sponsor (A10):
  11. SammWA

    Confused about Lab Work Results

    By SammWA, Last action:
    • 4 replies
    • 785 views
    • SammWA
    • SammWA
  12. jd6735

    Could this be Celiac? Symptoms return after 5 years at steady-state. Freaking out that I have refractory sprue. Need some insight.

    By jd6735, Last action:
    • 8 replies
    • 2.1k views
    • jd6735
    • jd6735
  13. Tg1998

    Opinions on screening results

    By Tg1998, Last action:
    • 3 replies
    • 642 views
    • Tg1998
    • Tg1998
  14. Alfiemama

    Are there more bloods to come?

    By Alfiemama, Last action:
    • 3 replies
    • 574 views
    • Alfiemama
    • Alfiemama
  15. SLPRunner
    cyclinglady

    Positive Blood Work, Negative Biopsy in 4 year old?

    By SLPRunner, Last action:
    • 3 replies
    • 580 views
    • cyclinglady
    • cyclinglady
  16. meycita
    cyclinglady

    Confused as how to proceed

    By meycita, Last action:
    • 5 replies
    • 1.4k views
    • cyclinglady
    • cyclinglady
  17. Esmith
    Ennis-TX

    6 year old with symptoms

    By Esmith, Last action:
    • 4 replies
    • 1.3k views
    • Ennis-TX
    • Ennis-TX
  18. Josie Jo
    squirmingitch

    Stomach pains every few days

    By Josie Jo, Last action:
    • 2 replies
    • 1.2k views
    • squirmingitch
    • squirmingitch
  19. Mads11
    GFinDC

    Celiac Panel

    By Mads11, Last action:
    • 2 replies
    • 889 views
    • GFinDC
    • GFinDC
  20. Jakel93
    plumbago

    New here, need opinions on symptoms

    By Jakel93, Last action:
    • 2 replies
    • 724 views
    • plumbago
    • plumbago
  21. amanda3
    squirmingitch

    Biopsy done today - low iron, DH, autoimmune kidney disease

    By amanda3, Last action:
    • 10 replies
    • 1.7k views
    • squirmingitch
    • squirmingitch
  22. valeRD
    cyclinglady

    tTg 14 a year and a half ago, 21 this year. Awaiting biopsy results but GI said everything looked normal..

    By valeRD, Last action:
    • 4 replies
    • 571 views
    • cyclinglady
    • cyclinglady
  23. NStock
    beemerw

    What Do My Test Results Mean?

    By NStock, Last action:
    • 7 replies
    • 38.7k views
    • beemerw
    • beemerw
  24. kg51

    Low positive tTG blood work, negative biopsy, doctor says eat gluten-free...feeling crummy tonight

    By kg51, Last action:
    • 14 replies
    • 2.8k views
    • kg51
    • kg51
  25. Gabby372018
    cyclinglady

    Can’t gain any weight and hair thinning i had an ulcer what’s wrong now??

    By Gabby372018, Last action:
    • 3 replies
    • 635 views
    • cyclinglady
    • cyclinglady
  26. Tash
    Ennis-TX

    Help please!

    By Tash, Last action:
    • 1 reply
    • 425 views
    • Ennis-TX
    • Ennis-TX
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,167
    • Most Online (within 30 mins)
      7,748
    JaneB
    Newest Member
    JaneB
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      calcium malabsorption that does not resolve with supplementation

      By knitty kitty · Posted

      @Allias, Do you have low magnesium levels?   "The serum levels of parathyroid hormone and magnesium depend on each other in a complex manner. The secretion of parathyroid hormone by the parathyroid is physiologically controlled by the serum calcium level, but magnesium can exert similar effects. While low levels of magnesium stimulate parathyroid hormone secretion, very low serum concentrations induce a paradoxical block. This block leads to clinically relevant hypocalcemia in severely hypomagnesiemic patients. The mechanism of this effect has recently been traced to an activation of the alpha-subunits of heterotrimeric G-proteins. This activation mimicks activation of the calcium sensing receptor and thus causes inhibition of parathyroid hormone secretion. In addition to the effects of magnesium on parathyroid hormone secretion, parathyroid hormone in turn regulates magnesium homeostasis by modulating renal magnesium reabsorption. The distal convoluted tubule is of crucial importance for parathyroid hormone-regulated magnesium homeostasis." Magnesium and the parathyroid https://pubmed.ncbi.nlm.nih.gov/12105390/  
    • Wheatwacked
      Problems

      By Wheatwacked · Posted

      I'm guessing it was Manic Depression. I was depressed for 30 years.  It did not go away until I increased vitamin D3 to 10,000 IU (250 mcg) a day.  Three days after going from 8000 IU to 10,000 IU a great dark cloud lifted. Unless you are deficient in Calcium intake from food, don't supplement with calcium.  A high Parathyroid Hormone PTH blood test would indicate insufficient vitamin D causing calcium absorption problems..  High intakes of calcium can be associated with coronary artery calcification. In one study, calcium and vitamin D supplementation accelerated vascular calcification. Thousands of studies of vitamin D supplementation without Calcium have shown that vitamin D is safe even as much as 20,000 IU a day. Vitamin D Is Not as Toxic as Was Once Thought That is confusing. Many gluten processed foods are fortified with vitamins that you no longer get with gluten-free foods.  Doctors don't recognize this as Knitty Kitty mentions. Sorry for the loss of your friend.   I see a pattern where a person with low vitamin D has a stressful situation, mentally or physically like Covid or a cold even allows the immune system to get out of control.  Low vitamin D is common in Celiac Disease.  You seem to fit the pattern. Low choline (eggs and meat) can cause problems digesting fat and Low Thiamine can cause gastrointestinal beriberi.  Iodine deficiency is a growing concern.  Low B12 can be the cause of anemial is you are vegan.
    • Wheatwacked
      calcium malabsorption that does not resolve with supplementation

      By Wheatwacked · Posted

      high levels of parathyroid hormone (PTH) can indicate a vitamin D deficiency. The "normal level" of 25(OH) D is 80 ng/ml (200 nmol/L). That is the level our body sets as it's normal limit when we don't limit sunshine.  For some people like me it takes 10,000 IU a day to maintain that.  Lack of enough sun and malabsorption of vitamin D orally.  
    • Allias
      calcium malabsorption that does not resolve with supplementation

      By Allias · Posted

      No, all this is related to calcium. Why would I then have a low ionized calcium level and a high PTH (hormone that controls the balance of blood calcium)? Your thiamine story doesn't hold up.
    • knitty kitty
      calcium malabsorption that does not resolve with supplementation

      By knitty kitty · Posted

      Welcome to the forum, @Allias, For the growth and maintenance of bones, more vitamins and minerals are needed than those you are taking.   Bones need calcium, as well as magnesium and iron, but also trace elements like zinc, copper, selenium, manganese, and boron.   Bones need vitamins like Vitamin D and Folate (not synthetic Folic Acid which the body doesn't utilize well), but bones also need Vitamin A,  Vitamin K, Cobalamine B12, Pyridoxine B6, Riboflavin B2, Choline B4, and Thiamine B1.   High PTH and high alkaline phosphatase (ALP) levels may indicate a deficiency in Thiamine B1.  The enzyme Alkaline phosphotase combines with Thiamine to make Adenosine Triphosphate (ATP), the "energy coinage" used in the body which is required to build bones or perform any body function.  Increased levels of ALP and PTH are produced when there's not sufficient Thiamine to meet the demands.  Bones, the liver, the thyroid and the gastrointestinal tract can all make ALP when there's a shortage of Thiamine in each of those organs.  The gastrointestinal tract makes ALP when increased thiamine absorption is required.  Thiamine is needed to attach to calcium so it can be absorbed.   Thiamine deficiency disorders include muscle spasms in muscles like the neck muscles, and neuropathy.   What is your Vitamin D level? Do talk to your doctor and nutritionist about supplementing with essential nutrients while recovering.   References: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7914453/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7352179/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/ https://pubmed.ncbi.nlm.nih.gov/4003329/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10568373/ https://pubmed.ncbi.nlm.nih.gov/36428888/ https://pubmed.ncbi.nlm.nih.gov/1156856/ https://pubmed.ncbi.nlm.nih.gov/38034619/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10398819/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/
×
×
  • Create New...