Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Is this Celiac Disease common?

Cerda394
 Share

Recommended Posts

Cerda394 Newbie
Cerda394
Posted
(edited)

My EMA test came out NEG 2x

Transglutaminase IG A POSITIVE 2X

Endoscopy Biopsy no Evidence for Celiac. Negative

When eat I get an extreme morphine high I really mean it.. Gluten free foods do not even work for me. Everything I eat is triggering this.

When this began. Jan 2018. I mixed and overdosed on supplements to get extreme morphine sedative effects. It has not gone away for 8 months. Is morphine effect a common symptom of Celiac? An extreme morphine high and painkilling sedative effects? Sometimes aggression and burst of energy? This even happens with certain brands of water. I think those supplements are stuck. Are doctors missing something?

 

Edited by Cerda394
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted
(edited)
7 hours ago, Cerda394 said:

My EMA test came out NEG 2x

Transglutaminase IG A POSITIVE 2X

Endoscopy Biopsy no Evidence for Celiac. Negative

When eat I get an extreme morphine high I really mean it.. Gluten free foods do not even work for me. Everything I eat is triggering this.

When this began. Jan 2018. I mixed and overdosed on supplements to get extreme morphine sedative effects. It has not gone away for 8 months. Is morphine effect a common symptom of Celiac? An extreme morphine high and painkilling sedative effects? Sometimes aggression and burst of energy? This even happens with certain brands of water. I think those supplements are stuck. Are doctors missing something?

 

I am not sure what you mean by a morphine high.  My experience on the drug morphine after surgery was pain elimination and sleepiness.  No euphoria.  

You had two positives on the TTG IgA. I can share that I never have had positives on the TTG or EMA.  I only test positive on the DGP IgA.  So, do not discount your TTG test results.    It was good that you moved forward and had the endoscopy.  Unfortunately, it is easy to miss damaged patches as the small intestine is vast (the size of a tennis court).  Your damage may be closer to the large intestine or just starting.  How many biopsies were actually taken.  More than four is recommended.  Get copies of all your records.  It is your right!  

Not much is known about celiac disease and the brain.  Gluten may be impacting your brain, or you might have a mental illness that is unrelated.  

Stay on the gluten free diet, do not take supplements unless your doctor prescribes them and you have verified that they are gluten free.  Talk to your doctor about your mental illness issues.  You might need medication (be sure it is gluten free).  

Read our Newbie 101 thread under the Coping section of the forum.  

I hope you feel better soon!  

Edited by cyclinglady
Cerda394 Newbie
Cerda394
Posted
  • Author
(edited)

Thanks it is good to know it could start at other regions of the small intestine. They have ruled out psychological. People hesitate when I say it. I mean what I say. Keep in mind... This occurs with anything I ingest. Thank you for your input though. Closer to figuring it out.

Edited by Cerda394

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr. https://my.clevelandclinic.org/health/diseases/morgellons-disease
    2. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    3. trents
      - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    4. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      Hello Russ! Thank you so much for your reply. I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal...
    5. Russ H
      - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,046
    • Most Online (within 30 mins)
      10,442
    Urquhart
    Newest Member
    Urquhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Skin issues

      By Aretaeus Cappadocia · Posted

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      Celiac flare years after diagnosis

      By trents · Posted

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      Celiac flare years after diagnosis

      By Russ H · Posted

      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
×
×
  • Create New...