-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
Publications & Publicity
Share stories, news, and articles here.
16,608 topics in this forum
-
- 0 replies
- 451 views
-
- 0 replies
- 509 views
-
- 0 replies
- 471 views
-
- 0 replies
- 472 views
-
- 0 replies
- 453 views
-
- 0 replies
- 519 views
-
- 0 replies
- 628 views
-
- 0 replies
- 851 views
-
- 0 replies
- 577 views
-
Celiac.com Sponsor (A10):
Celiac.com Sponsor (A10):
-
- 0 replies
- 668 views
-
- 0 replies
- 528 views
-
- 0 replies
- 602 views
-
- 0 replies
- 496 views
-
- 0 replies
- 564 views
-
- 0 replies
- 842 views
-
- 0 replies
- 535 views
-
- 0 replies
- 574 views
-
- 0 replies
- 511 views
-
- 0 replies
- 448 views
-
- 0 replies
- 469 views
-
- 0 replies
- 387 views
-
- 0 replies
- 465 views
-
- 0 replies
- 594 views
-
- 0 replies
- 527 views
-
- 0 replies
- 587 views
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8-M):
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease44My journey is it gluten or fiber?
If you haven't noticed a difference yet, bump up your Thiamax. Add in another Thiamax with breakfast and lunch. Increase the NeuroMag as well. You can add in another Benfotiamine, too. Thiamine is safe and nontoxic even in high doses. Taking more is fine. I had to bump mine up several times when first starting. It's a matter of finding what... -
- knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease13
Insomnia help
Hello, @hjayne19, About half of the people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all. Reacting to Casein is not the same as lactose intolerance nor a dairy allergy. Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy.... -
- trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease13Insomnia help
You may be cross reacting to the protein "casein" in dairy, which is structurally similar to gluten. People assume lactose intolerance is the only problem with dairy. It is not, at least for the celiac community. -
-
- hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease13Insomnia help
Hi @knitty kitty Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially w...
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Celiac.com Sponsor (A22):
-
Forum Statistics
-
Total Topics121.5k
-
Total Posts1m
-
-
Celiac.com Sponsor (A21):
-
Who's Online (See full list)
-
Upcoming Events
-
0January 21, 2026 11:15 PM
Until
January 22, 2026 12:15 AM
-
0January 27, 2026 11:30 PM
Until
January 28, 2026 12:30 AM
-
0February 04, 2026 11:00 PM
Until
February 05, 2026 12:00 AM
-
Posts
-
By knitty kitty · Posted
If you haven't noticed a difference yet, bump up your Thiamax. Add in another Thiamax with breakfast and lunch. Increase the NeuroMag as well. You can add in another Benfotiamine, too. Thiamine is safe and nontoxic even in high doses. Taking more is fine. I had to bump mine up several times when first starting. It's a matter of finding what works for you. Everyone is different. Stick with it. Some of the health improvements are very subtle and gradual. Keep going! You're doing great! -
By knitty kitty · Posted
Hello, @hjayne19, About half of the people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all. Reacting to Casein is not the same as lactose intolerance nor a dairy allergy. Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy. When the villi grow back, the villi can resume making lactase again. I react to casein. Keep in mind that part of the autoimmune response to gluten and casein is the release of histamine. Histamine causes inflammation, but it is also powerful excitory neurotransmitter, causing heightened mental alertness. Histamine release is what causes us to wake up in the morning. Unfortunately, excessive histamine can cause insomnia. Our bodies can make histamine, but foods we eat contain different amounts of histamine, too. Our bodies can clear a certain amount of histamine, but if overwhelmed, chronic high histamine levels can keep inflammation going and cause other health problems. I got very weary of playing Sherlock Holmes trying to deduce what I was reacting to this week, so I adopted the low histamine version of the Autoimmune Protocol diet, a Paleo diet designed by a doctor with Celiac, Dr. Sarah Ballantyne. Her book, The Paleo Approach, has been most helpful. The low histamine AIP diet cuts out lots of foods that are known to be irritating to the digestive tract. After a few weeks, when my system was calmer and healing, I could try adding other foods to my diet. It was much easier starting with safe foods, adding one thing at a time, and checking for reactions than trying to figure out what I was reacting to with so many variables. I learned to recognize when I had consumed too much histamine from different combinations of foods. Everyone is different and can tolerate different amounts of histamine in their food. B Vitamins help us make enzymes that break down histamine. Vitamin D helps regulate and calm the immune system. Supplementing with Thiamine helps prevent mast cells from releasing histamine. Keeping a food-mood-poo'd journal helps identify problematic foods. I hope you will consider trying the AIP diet. -
You may be cross reacting to the protein "casein" in dairy, which is structurally similar to gluten. People assume lactose intolerance is the only problem with dairy. It is not, at least for the celiac community.
-
Hi @knitty kitty Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else.
-
By xxnonamexx · Posted
I have taken the vitamins for a week. Haven't noticed any major changes but I will give it more time to see.
-
