-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
Publications & Publicity
Share stories, news, and articles here.
16,608 topics in this forum
-
- 0 replies
- 494 views
-
- 0 replies
- 466 views
-
- 0 replies
- 530 views
-
- 0 replies
- 647 views
-
- 0 replies
- 559 views
-
- 0 replies
- 467 views
-
- 0 replies
- 561 views
-
- 0 replies
- 544 views
-
- 0 replies
- 628 views
-
Celiac.com Sponsor (A10):
Celiac.com Sponsor (A10):
-
- 0 replies
- 574 views
-
- 0 replies
- 780 views
-
- 0 replies
- 520 views
-
- 0 replies
- 663 views
-
- 0 replies
- 488 views
-
- 0 replies
- 551 views
-
- 0 replies
- 558 views
-
- 0 replies
- 707 views
-
- 0 replies
- 1.4k views
-
- 3 replies
- 1.1k views
-
- 0 replies
- 1.2k views
-
- 0 replies
- 555 views
-
- 0 replies
- 633 views
-
- 0 replies
- 618 views
-
- 0 replies
- 822 views
-
- 0 replies
- 516 views
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8-M):
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8results from 13 day gluten challenge - does this mean I can't have celiac?
If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue. I have eaten a supposedly high lectin diet (I say supposedly because lectin... -
- knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8results from 13 day gluten challenge - does this mean I can't have celiac?
@catnapt, Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract. They can stimulate IgG antibody production as your blood test shows. Even beans have lectins. You've simply eaten too many lectins and irritated your digestive tract. You may want to allow your digestive tract... -
- knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease49
My journey is it gluten or fiber?
I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. ... -
- catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
results from 13 day gluten challenge - does this mean I can't have celiac?
good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again. -
- catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
results from 13 day gluten challenge - does this mean I can't have celiac?
I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding. I will have my first appt with a GI dr on March 4th I will not eat gluten again - at least not on purpose ...
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Celiac.com Sponsor (A22):
-
Forum Statistics
-
Total Topics121.6k
-
Total Posts1m
-
-
Celiac.com Sponsor (A21):
-
Who's Online (See full list)
-
Upcoming Events
-
0February 10, 2026 11:30 PM
Until
February 11, 2026 12:30 AM
-
0February 18, 2026 11:15 PM
Until
February 19, 2026 12:15 AM
-
-
Posts
-
If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue. I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO. while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.
-
By knitty kitty · Posted
@catnapt, Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract. They can stimulate IgG antibody production as your blood test shows. Even beans have lectins. You've simply eaten too many lectins and irritated your digestive tract. You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/ -
By knitty kitty · Posted
I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since. Tryptophan and Vitamin A help heal the intestines as well as improves skin health. I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset. So I'm healing the outside as well as the inside. I take one 1000 mg Tryptophan before bedtime. With the Thiamine HCl, take 100 mg to start. If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement. Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended. If you've been thiamine insufficient for a while, you do notice a big difference. It's like the start of a NASCAR race: Zoom, Zoom, turn it up! This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine. I took 1000 mg all at once without food. It kicked in beautifully, but I got a tummy ache, so take with food. I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing. So cool. You may feel worse for a couple days as your body adjusts to having sufficient thiamine. Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough. Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement. You can reach a plateau, so stay there for several days, then try bumping it up again. If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD. It's like being your own lab rat. LoL Yes, take one Benfotiamine at breakfast and one at lunch. Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well. I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals. You may want to add in some zinc. I take Thorne Zinc 30 mg at breakfast at the beginning of the meal. Are you getting sufficient Omega Threes? Our brains are made up mostly of fat. Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that. Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful. @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes. He's also had dramatic health improvement by supplementing thiamine. You're doing great! Thank you for sharing your journey with us. This path will smooth out. Keep going! -
good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.
-
I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding. I will have my first appt with a GI dr on March 4th I will not eat gluten again - at least not on purpose they are going to have to come up with a test that doesn't require it.
-
