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Related Issues & Disorders
Discussions concerning the various associated health problems, including but not limited to pregnancy, sleep & weight issues.
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Recent Activity
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- trents commented on Scott Adams's article in Diagnosis, Testing & Treatment10Emerging Celiac Disease Treatments: Will Any Allow Gluten Consumption Again? (+Video)
@N00dnutt, can you find that article from the Mayo Clinic? That one would be a handy one to have for education purposes.- alternative
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- N00dnutt commented on Scott Adams's article in Diagnosis, Testing & Treatment10Emerging Celiac Disease Treatments: Will Any Allow Gluten Consumption Again? (+Video)
When I was diagnosed in 2013, I did some research and came across an article from the Mayo Clinic. It suggested that approximately 40% of the global population was walking around with undiagnosed Coeliacs or, some level of Gluten Intollerance. My Brother, exihibits the same external and Endocrynic patterns as I do, but! insists he is not a Coeliac and...- alternative
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- trents replied to KimMS's topic in Gluten-Free Foods, Products, Shopping & Medications8
Gluten free thyroid medications
It occurs to me that this might be a good application for gluten test kits, since the test kits seem to require samples in power form and pills can easily be rendered in that form. According to this article, and it seems to be current, there are three choices when it comes to gluten test kits: https://www.verywellhealth.com/gluten-detectors-and-test-kits... -
- maryannlove replied to KimMS's topic in Gluten-Free Foods, Products, Shopping & Medications8Gluten free thyroid medications
Same problem in Pittsburgh. Have Hashimato's so been taking Mylan (generic) levothyroxine for many years. Pharmicist tried to routinely order yesterday and called to tell me it's unavailable. That I could try to find elsewhere and have script forwarded to them. Just spent couple of hours online researching. What a pain for so many of us! Using http... -
- trents commented on Scott Adams's article in Diagnosis, Testing & Treatment10
Emerging Celiac Disease Treatments: Will Any Allow Gluten Consumption Again? (+Video)
Marish makes a good point. Even if there is an effective "pill" therapy developed, how expensive will it be and will insurances cover it?- 1
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It occurs to me that this might be a good application for gluten test kits, since the test kits seem to require samples in power form and pills can easily be rendered in that form. According to this article, and it seems to be current, there are three choices when it comes to gluten test kits: https://www.verywellhealth.com/gluten-detectors-and-test-kits-comparing-the-options-4126736 While it is not an inexpensive solution, at least it shouldn't be necessary to use very often once you establish a med either is safe or not.
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By maryannlove · Posted
Same problem in Pittsburgh. Have Hashimato's so been taking Mylan (generic) levothyroxine for many years. Pharmicist tried to routinely order yesterday and called to tell me it's unavailable. That I could try to find elsewhere and have script forwarded to them. Just spent couple of hours online researching. What a pain for so many of us! Using http://glutenfreedrugs.com/newlist.htm (which know is old and doubt updated) reminded me that long ago I used to take Sandoz brand. Just went on their website and appears they no longer make (maybe why switched to Mylan). Back to square one. Using chart from glutenfreedrugs.com says for manufacturers I'll list afterwards "Manufacturer doesn't knowingly add gluten, however since they don't do any final testing they won't guarantee it to be gluten-free but it is very unlikely that it is contaminated with gluten." Might be best I/we can do. Along with Mylan, those manufacturers on chart are: Lannett (per website still make) and Neopharma (didn't find on their website). Paloma Health's website says CERTIFIED gluten free are: Lannet brand of levothyroxine, Nature-Thyroid, Tirosint (expensive), WP Thyroid. Other thyroid meds that are gluten-free but not certified: Levoxyl, Synthroid, Euthyrax, Mylan Brand (wish could get), and Armor with a caution contains sodium starch glycate which may contain gluten. I'll submit Lannett to pharmacist. If successfull, will share. -
By somethinglikeolivia · Posted
Responding to both of your replies: thank you so much!! That makes a lot of sense and helps me feel better about it - I really appreciate the clarification and recommendations. You guys have been very helpful and this site is a gift. Thanks again! -
I think giving attention to the main sources of exposure such as direct consumption of gluten and gross cross contamination with reasonable attention to handwashing and thorough counter top cleaning and dishwashing should cover cross contamination issues. The biggest precautions would be eating in restaurants and at other's homes. Don't get paranoia over it and don't make trouble where there is none. As far a what you communicate with your physicians, just tell them what you know. Strongly positive antibody tests, negative biopsy, positive symptoms when consuming gluten with clearing of symptoms when gluten free.
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Occasionally we do see anomalies where celiac antibody tests are positive but biopsies are negative, and even visa versa. Sometimes, damage to the small bowel lining is patchy and unless numerous samples are taken from various areas, the damage can be missed. So, there's that issue as well. I think in your situation, the tell-tale indicator is the difference in symptoms between when you were off gluten and when you were consuming it.
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