Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did It Take You To Feel Better?


CaliSparrow

Recommended Posts

CaliSparrow Collaborator

I began this journey last October. Although the beginning of this was quite eye opening and a lot of terror (waiting for the troll with the big stick to appear everytime I ate!), I feel I have crossed the line from Newbie to _________ (insert next level here). My skin is something I can actually be proud of (since it's an organ, it is encouraging that the healing has started) and my face looks very different. People are commenting that my eyes are bigger & that even my brow is lifting. What a trip.

My mind is much clearer and I no longer have the emotional swings that leave me vulnerable. I am coming out of this with a greater understanding of mental illness and how vulnerable it can leave a person. I've found myself even taking my own strength and pulling back on it so as not to run people over. People, in general, seem more vulnerable to me now. This is all good and positive. It feels like a miracle has been handed to me and a new beginning at life.

Physical status: On my good days, it is catch-up time since everything around me suffers from neglect and my amazing partner does as much as possible (guilt abounds here). In a perfect world, I would not live this way. So, I am typically over eager to get as much done as possible. The few days following the "good" day, I am very fatigued, achy & weak. Then I begin to recover and spend my "good" day doing as much as possible again. This follows a four-day cycle or longer. It seems as if my muscles are just weak and in need of repair. Sometimes I question what I eat. In the beginning, I only ate the gluten-free food because I did not have the energy to cook (and still don't many days but have solved the problem of where to get healthy, SAFE food). Soy & dairy have also been eliminated from my diet. I am still using the hair dryer stand (it holds the blow dryer) so I'm not exhausted if I do my hair, if that's any indication of physical status...

Sometimes, I wonder if I'm too strict on the diet but am so ready to move on with life and contribute to society that the faster I can heal, the better so I've just taken out anything that doesn't feel quite right or causes the sore organs & soft tissue (or so it seems). There are times I wonder if food is still going into my bloodstream and that it is TIME that will unveil what is safe or unsafe. But the gluten, NO DOUBT, is the biggest offender by far. I want to get this show on the road and if I think I need to eliminate something in order to heal faster, I will!

All that being said, please share how long it took for you witness your own physical renewal. You will not disappoint me if it was a lengthy amount of time. Rather, it will give me the opportunity to relax and give myself the chance to heal without false hope or unrealistic expectations.

If you exercise, please add how you began this again and at what point. Did you push yourself or let it occur naturally as your energy returned?

Cali


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

I go through the one good day followed by several bad days too.  It is truly a pain and I get so annoyed at the recovery process with all of this.  I want a quick fix.  Like an antibiotics to an infection kind of result.  

 

The 2 things that went away for me are the horrible joint pain and migraines.  I am dealing with raw and sore intestines and bowel issues and muscle weakness and a lack of stamina.  

 

I do push myself some.  I keep the house clean and make myself go out for a walk almost daily.  It might just be to down on the corner for a newspaper but it still keeps me doing something.

 

Hopefully, we both start having more and more of those good days.

 

-MO

RyeSnake Newbie

When I first went on the diet after diagnosis, I went 6 months and thought I could cheat with some pudding with bread in it.  I paid a most memorable price I can remmber 9.5 years ago. Saw a nutritionist who told about flavoring and things I thought she was being over picky about.  I found for myself that over the years I have become more sensitive.  Effected my thyroid and since I am on the meds I have lots of energy now.

Since I have been more wary in watching the ingredients I've this most surviable as time goes on. Still miss one now and then and pay for it but now qute as bad as I've gone 10 years and still going.

 

Rye

jordan shulak Rookie

I was diagnosed in April 2012 and went gluten-free immediately - I am now just comfortable with my diet (gluten & lactose free). It took a long time to get comfortable eating outside of my own kitchen. I question everything; max & ermas had a "gluten-free Salmon" however when I asked about the suspicious sauce I was told it had soy sauce in it (hidden gluten). I immediately notified the store manager and had the menu updated to reflect the salmon with NO SAUCE! It seems like all the good extra stuff always had hidden gluten (sauces, toppings, dressings, etc. ) I know you may feel frustrated but its very important to continue with the gluten-free diet even if you are still healing (research leaky gut and celiac). Good luck!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

    2. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    5. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Florence Lillian
      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.