Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Endoscopy And Colonoscopy On Monday! Anyone Have Second Biopsy +

bekkaz

Recommended Posts

bekkaz Apprentice
bekkaz
Posted

I have been violently sick with stomach pain, GERD major acid in stomach that is not getting under control since Nov.  Have had 2 negative blood tests for Celiac, one I was off of gluten in the weeks prior to the test.  My last endoscopy came back negative for celiac.  I had enterolab test my stool, it came back positive for Gluten intolerance at a 53.  I was also IGE skin prick tested and came back positive to soy, corn, chicken and a 3 reaction (4) highest to dairy.  My enterolab came back negative for caesin.  I am so sad to go in yet again for more testing but my stomach acid is so bad again that it's effecting my life so bad, I can't work or do the things I once enjoyed.  I have also lost 30 lbs in the past couple months...not overweight to begin with.  Has anyone had a negative biopsy for celiac the first time, and the second positive?  My last endoscopy was in Jan. and it showed Gastric Erosion, my stomach was inflammed and the lining was eroding. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

I hope so much this new round of testing will prove helpful.  From what I have read of biopsies they can be false negative.  The small intestine is full of surface area.  They should take 8 samples I believe people say.

 

Diana

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,856
    • Most Online (within 30 mins)
      7,748
    Skindy
    Newest Member
    Skindy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Refractory Celiac disease - what to do

      By Scott Adams · Posted

      Your doctor is most likely correct here, and if you had high tTg-IGA and villous atrophy you likely have celiac disease and need to be gluten-free. If regular small amounts of gluten get in your diet, it will prevent recovery. Eating out in restaurants is the primary source of such contamination.
    • Scott Adams
      Supplements for those Diagnosed with Celiac Disease

      By Scott Adams · Posted

      Mostly trial and error and noticing the effects of the supplements over time. It's important to look at the bottom of my original post in this thread to see nutrients that can be toxic in higher does, especially over long periods of time.
    • Scott Adams
      Refractory Celiac disease - what to do

      By Scott Adams · Posted

      As @trents mentioned, removing gluten if you have celiac disease would be key to villi recovery, and if you still are having issues trying to identify other triggers would be the next step, even though the additional intolerances will not likely contribute to villi recovery. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:      
    • trents
      Refractory Celiac disease - what to do

      By trents · Posted

      Well, it certainly seems reasonable to get checked for Crohn's since you have a family member with it and SIBO. You might also consider talking to your physician about a trial on an immunosuppressant, like prednisone, to see if numbers go down and symptoms subside. Sometimes, just interrupting the inflammatory cycle can effect a reset and put you on the road to health.
    • ehb
      Supplements for those Diagnosed with Celiac Disease

      By ehb · Posted

      I am wondering how you developed this supplementation regimen? Was it just through trial and error? Did you base this trial and error on blood tests or symptom improvement? It cost me $300 for the blood tests, so I would prefer not to do those regularly
×
×
  • Create New...