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Hey, I'm New To This Message Board Stuff

blb1285

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blb1285 Newbie
blb1285
Posted

Hey, guys, My name is Bonnie and I'm 19. I just got started on this forum and omg is it confusing. Anyway, I live in Chicago and I just wanted to meet celiacs my age from my area or throughout the country. I've been diagnosed for 8 years, went to camp celiac in RI for two years, and I just attended the CSA conference in Virginia last weekend where I helped out with their new teen program. Someone from there suggested that I get started on this and post a message. I would have a picture, but for some reason it said i wasn't able to post a personal picture. Anyway, feel free to reply and talk to me. (maybe you can help me out on how to use this message board). :D

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MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Hello Bonnie! My name is Kristina and I am 20. The message board is a bit hard at first but once you play around it gets easier!

Janelson Apprentice
Janelson
Posted

Hey there guys my name is Janelle I am 20 years old as well and just diagnoised with Celiac 3 days before my 20 b-day...what a gift! LOL I know what you mean by this site being confusing! When I first joined (because my moms wishes) I never went on it because I couldnt figure it out! Now its like my best friend.... I mean all my other friends dont understand me so at least there all of you that do! Take care all!

Janelson Apprentice
Janelson
Posted

P.S. I have a new theory...Gluten is in the air! LOL I swear I breath and I am contaminated! I left my class early the other day because I was sick and tried to explain my situation to my professor...I think he thinks I was looking for pitty! Great that is all I need!

Carriefaith Enthusiast
Carriefaith
Posted

I'm 24, a little older, but I think I can help you with the picture problem. Click on your name and then click on Avatar options at the bottom and follow the instructions. Hope this helps.

KaitiUSA Enthusiast
KaitiUSA
Posted

Welcome!

I am 18 and diagnosed almost 2 years now....you can email me anytime...my email address is at the bottom of my signature.

fisharefriendsnotfood Apprentice
fisharefriendsnotfood
Posted

Hi, I'm Jackie and I'm fourteen years old. I'm a bit younger than most people here, but I like it. It's pretty easy to figure out, don't worry.

-Jackie

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quantumsugar Apprentice
quantumsugar
Posted

Hi Bonnie!

My name is Monica, and I'm 21. The board is a lot less intimidating once you get used to it (kinda like celiac disease itself). It's nice to "meet" you, and feel free to message me.

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    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
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      Disaccharide deficient, confusing biopsy results, no blood test

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      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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