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Hey, I'm New To This Message Board Stuff


blb1285

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blb1285 Newbie

Hey, guys, My name is Bonnie and I'm 19. I just got started on this forum and omg is it confusing. Anyway, I live in Chicago and I just wanted to meet celiacs my age from my area or throughout the country. I've been diagnosed for 8 years, went to camp celiac in RI for two years, and I just attended the CSA conference in Virginia last weekend where I helped out with their new teen program. Someone from there suggested that I get started on this and post a message. I would have a picture, but for some reason it said i wasn't able to post a personal picture. Anyway, feel free to reply and talk to me. (maybe you can help me out on how to use this message board). :D


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MySuicidalTurtle Enthusiast

Hello Bonnie! My name is Kristina and I am 20. The message board is a bit hard at first but once you play around it gets easier!

Janelson Apprentice

Hey there guys my name is Janelle I am 20 years old as well and just diagnoised with Celiac 3 days before my 20 b-day...what a gift! LOL I know what you mean by this site being confusing! When I first joined (because my moms wishes) I never went on it because I couldnt figure it out! Now its like my best friend.... I mean all my other friends dont understand me so at least there all of you that do! Take care all!

Janelson Apprentice

P.S. I have a new theory...Gluten is in the air! LOL I swear I breath and I am contaminated! I left my class early the other day because I was sick and tried to explain my situation to my professor...I think he thinks I was looking for pitty! Great that is all I need!

Carriefaith Enthusiast

I'm 24, a little older, but I think I can help you with the picture problem. Click on your name and then click on Avatar options at the bottom and follow the instructions. Hope this helps.

KaitiUSA Enthusiast

Welcome!

I am 18 and diagnosed almost 2 years now....you can email me anytime...my email address is at the bottom of my signature.

fisharefriendsnotfood Apprentice

Hi, I'm Jackie and I'm fourteen years old. I'm a bit younger than most people here, but I like it. It's pretty easy to figure out, don't worry.

-Jackie


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quantumsugar Apprentice

Hi Bonnie!

My name is Monica, and I'm 21. The board is a lot less intimidating once you get used to it (kinda like celiac disease itself). It's nice to "meet" you, and feel free to message me.

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    • trents
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      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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