Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dizziness/brain Fog...questions?

jamiecasabellameeks

Recommended Posts

jamiecasabellameeks Apprentice
jamiecasabellameeks
Posted

Okay...I am still awaiting biopsy results, but I have been gluten free for 7 days.  Though I can say that I have noticed some change, I still get dizzy at times throughout the day and experience complete brain fog. Should this be diminishing after no gluten??  Will I feel like this for a while? Why do I feel like this if I am not eating ANY gluten?  Could it be something else in addition to gluten (like other food allergy)?  Could I be experiencing cross-contamination.

 

I told my husband I was just ready to give up...I'm seriously not; it's just all so frustrating.  I don't have my f/u appointment for 3 weeks.  I'm wondering if I should have other tests run in the mean time.  

 

Has anyone else had to miss work because of similar symptoms? I just don't know how to best describe this to "non-celiacs"...They just don't seem to understand!  

 

Hoping some more experienced readers will be able to help/give advice! THANK YOU!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

Welcome J!

 

Seven days isn't long in the grand scheme of removing gluten.  It is possible you are getting some from cross-contamination - it is possible what you are experiencing is gluten withdrawal symptoms.  

 

IMO it is way too early to look to other food intolerances - unless you can pinpoint a reaction to a certain food.  A detailed food/symptom log is your best tool if you are not improving with just removing gluten.  And I do not mean to sound dismissive, but there is no way we got all sources of gluten out of our house in the first week.  Make sure you have read the Newbie 101 thread and keep asking any questions you may have.

 

As for missing work...maybe I'm not the best person to ask -- I had to sell a thriving property mgmt business ten years ago when docs could not figure out what the hell was wrong with me -- and then I got really sick :(  Many miss work...hopefully you will be feeling much better very soon!

 

Hang in there :)

Lisa Mentor
Lisa
Posted

Lisa  (^that one)  has offered some great advice you should consider. 

 

But I must say...I got dizzy just  reading your post :rolleyes:

Takala Enthusiast
Takala
Posted

Oh, believe me, we get this.  It's only been a week, and it takes time for your immune system to quit attacking your own body, including your brain, over this.  You may want to try to stick to eating as much unprocessed food as possible, in other words, food that looks like how it was harvested, instead of coming out of a box.  Make sure anyone kissing you has a clean mouth, re the cross contamination.  You can experiment with ditching dairy and soy flour for a few days to see if that makes any difference, this may be a temporary dairy problem that will resolve over time, (celiac damaged gut has trouble processing lactose)  and some people just can't do soy flours.  You will feel better after some more time has passed, and most of the brain- fuzz people are very highly motivated to not experience this again. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748
    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Redanafs
      Diagnosis and further testing Celiac

      By Redanafs · Posted

      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...