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spokethewind

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spokethewind Newbie

Hello everyone. I'm new here and I'm honestly a bit shocked that I may have this disease. I'm 1/2 Irish and live in the USA, and just started having symptoms in July. Yesterday was my first and hopefully only till I'm 50 colonoscopy, and my doctor took a biopsy of my small intestines and said it looks like I have celiac disease.

I'm really scared. My cafeteria at college is all about bread and cereal, not only that, but I LOVE bread. I read I can make my own bread but does it taste different? And eating out, are there any national chains that anyone knows of that have gluten-free bread?

And my main question, is this a hard disease to live with? :(


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KaitiUSA Enthusiast
I'm really scared. My cafeteria at college is all about bread and cereal, not only that, but I LOVE bread. I read I can make my own bread but does it taste different? And eating out, are there any national chains that anyone knows of that have gluten-free bread?

And my main question, is this a hard disease to live with? :(

<{POST_SNAPBACK}>

It's not hard to live with when you get used to it. It was overwhelming at first and you need to learn alot because products like makeups, shampoos, lotions, soaps,medications and that kind of stuff needs to be changed in addition to food.

Feel free to contact me and I can give you a few lists that would be helpful. My email is in my signature.

Also, the bread does taste a little different but there is alot of good bread you can get.

My favorite 3 are listed below

1.Kinnikinnick donuts and breads

2.Cybros Rice Rolls

3. Foods By George cinnamon english muffins

nettiebeads Apprentice
Hello everyone. I'm new here and I'm honestly a bit shocked that I may have this disease. I'm 1/2 Irish and live in the USA, and just started having symptoms in July. Yesterday was my first and hopefully only till I'm 50 colonoscopy, and my doctor took a biopsy of my small intestines and said it looks like I have celiac disease.

I'm really scared. My cafeteria at college is all about bread and cereal, not only that, but I LOVE bread. I read I can make my own bread but does it taste different? And eating out, are there any national chains that anyone knows of that have gluten-free bread?

And my main question, is this a hard disease to live with? :(

<{POST_SNAPBACK}>

Hi and welcome to the forum. celiac disease is livable - one member wrote about her 80+ female relative who was dx 50 years ago! It takes some getting used to, but check out the threads related to products and restaurants and such. I used to be a major bread eater (warm biscuits dripping with butter and jam mmmm....) and loved to bake cookies and pies before I developed celiac disease nine years ago. You do get used to the dietary change after awhile. For me, bread is now a treat - at over $5 a loaf, I make it last. It is a major adjustment, I'll admit, especially at your age with socializing and such. I hope you weren't much of a beer drinker, because that's off limits too. But for me, I consider the things I gave up as a small inconvenience to feeling better, being more active and the big improvement in my quality of life. After awhile it will be second nature. Come here anytime to ask questions, no matter how silly or trivial you may think they are. There are lots of us and have had so many different experiences and everyone is very helpful and understanding (we have to be, most of the regular population isn't). :)

Guest BellyTimber

Bake your own in tins and a machine.

Dripping with butter & jam ...

:P:P:P:P:P

And your sense of destiny and self worth ...

B);):unsure::rolleyes::o<_<:huh:

tarnalberry Community Regular
Hello everyone. I'm new here and I'm honestly a bit shocked that I may have this disease. I'm 1/2 Irish and live in the USA, and just started having symptoms in July. Yesterday was my first and hopefully only till I'm 50 colonoscopy, and my doctor took a biopsy of my small intestines and said it looks like I have celiac disease.

I'm really scared. My cafeteria at college is all about bread and cereal, not only that, but I LOVE bread. I read I can make my own bread but does it taste different? And eating out, are there any national chains that anyone knows of that have gluten-free bread?

And my main question, is this a hard disease to live with? :(

<{POST_SNAPBACK}>

It's hard to adapt to, but once you learn it, it doesn't have to be hard to live with. A lot of "how hard it is" depends on your attitude towards food, your restriction with food, people (both rude and ignorant). If you don't have a kitchen (or at least *something* to cook on/with, it will be harder, but there are ways around that too.

I prefer to maintain the gluten-free diet by sticking with unprocessed foods that are naturally gluten-free. It means I cook, but it doesn't mean I spend two hours in the kitchen every day! Others make heavier use of specialty products (particularly bread, which I used to love, but don't much have any of these days) and that works for them. Keep reading this site - you'll find a lot of useful information and helpful people to answer your questions.

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