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Did This Happen To You When You Went Gluten Free?

TheHeartRN

By TheHeartRN
in Coping with Celiac Disease

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TheHeartRN Newbie
TheHeartRN
Posted

Okay, so I was just diagnosed on the 22nd. And haven't even been gluten free for 1 week. But still every time I eat I have to go to the bathroom like right after. Is this normal? Does it take a while for your body to get used to gluten free?

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julissa Explorer
julissa
Posted

This actually did happen to me at first, then it settled down.

TheHeartRN Newbie
TheHeartRN
Posted
  • Author

Okay thank you. I have gotten to the point I am afraid to eat. Haha.

Wahls Newbie
Wahls
Posted

I experience that only when I have an issue with my thyroid. Do you have a thyroid issue? Have you been checked?

GFinDC Veteran
GFinDC
Posted

Hi HeartRN,

 

Yes, it is not unusual to have GI symptoms for months after going gluten-free.  Sometimes years even.  For some people going gluten-free is a big change in diet.  Your GI system has to adjust.  There are bacterial changes that will happen over time since you have changed the diet of the bacteria in your gut too.  That by itself can cause many GI symptoms.  I don't remember if I posted these tips for you or not.

 

Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy.
Avoid sugars and starchy foods.
Avoid alcohol.

Helpful threads:

FAQ Celiac com
https://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101
https://www.celiac.com/forums/topic/91878-newbie-info-101/

What's For Breakfast Today?
https://www.celiac.com/forums/topic/81858-whats-for-breakfast-today/

smpalesh Explorer
smpalesh
Posted

I didn't start having solid bowel movements until 6 weeks after going gluten-free and I had digestive problems after eating for 6-8 weeks.  Give it time, it will start to improve.

 

One tip - do not eat tons of gluten-free products right at the start.  Try to avoid all the gluten-free breads, muffins, etc until your digestive system has a chance to rest, just eat whole foods.

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      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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      celiac.com support

      By MichaelDG · Posted

      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
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