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Did This Happen To You When You Went Gluten Free?

TheHeartRN

By TheHeartRN
in Coping with Celiac Disease

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TheHeartRN Newbie
TheHeartRN
Posted

Okay, so I was just diagnosed on the 22nd. And haven't even been gluten free for 1 week. But still every time I eat I have to go to the bathroom like right after. Is this normal? Does it take a while for your body to get used to gluten free?

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julissa Explorer
julissa
Posted

This actually did happen to me at first, then it settled down.

TheHeartRN Newbie
TheHeartRN
Posted
  • Author

Okay thank you. I have gotten to the point I am afraid to eat. Haha.

Wahls Newbie
Wahls
Posted

I experience that only when I have an issue with my thyroid. Do you have a thyroid issue? Have you been checked?

GFinDC Veteran
GFinDC
Posted

Hi HeartRN,

 

Yes, it is not unusual to have GI symptoms for months after going gluten-free.  Sometimes years even.  For some people going gluten-free is a big change in diet.  Your GI system has to adjust.  There are bacterial changes that will happen over time since you have changed the diet of the bacteria in your gut too.  That by itself can cause many GI symptoms.  I don't remember if I posted these tips for you or not.

 

Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy.
Avoid sugars and starchy foods.
Avoid alcohol.

Helpful threads:

FAQ Celiac com
https://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101
https://www.celiac.com/forums/topic/91878-newbie-info-101/

What's For Breakfast Today?
https://www.celiac.com/forums/topic/81858-whats-for-breakfast-today/

smpalesh Explorer
smpalesh
Posted

I didn't start having solid bowel movements until 6 weeks after going gluten-free and I had digestive problems after eating for 6-8 weeks.  Give it time, it will start to improve.

 

One tip - do not eat tons of gluten-free products right at the start.  Try to avoid all the gluten-free breads, muffins, etc until your digestive system has a chance to rest, just eat whole foods.

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

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    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
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